@donj
Forum Replies Created
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- February 19, 2013 at 3:30 pm
Unfortunately, our Daughter was not braf positive. She did have surgeries on each lung within about two months of each other. These were painful. Once we ran the gambit at Duke and moved on to other alternatives we were told that we probably didn't need to have the surgeries. Too late at that point.
Anyway, as another poster mentioned, here is a link of potential clinicaL trilas out there.
Keep the faith and never give up hope!
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- February 19, 2013 at 3:30 pm
Unfortunately, our Daughter was not braf positive. She did have surgeries on each lung within about two months of each other. These were painful. Once we ran the gambit at Duke and moved on to other alternatives we were told that we probably didn't need to have the surgeries. Too late at that point.
Anyway, as another poster mentioned, here is a link of potential clinicaL trilas out there.
Keep the faith and never give up hope!
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- February 19, 2013 at 3:30 pm
Unfortunately, our Daughter was not braf positive. She did have surgeries on each lung within about two months of each other. These were painful. Once we ran the gambit at Duke and moved on to other alternatives we were told that we probably didn't need to have the surgeries. Too late at that point.
Anyway, as another poster mentioned, here is a link of potential clinicaL trilas out there.
Keep the faith and never give up hope!
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- February 19, 2013 at 2:41 pm
Congratulations on your milestone. Don't worry about the other shoe, you can't control that. Hope is what keeps us going and you should never loose that. We battled melanoma four years with our Daughter (Interfuron, IL-2, clinical trials, CTLA-4, etc) and the one thing that kept us going was hope from the medical staff. This went on for four years. Without hope we may not have made it past the second year.
Keep your head up and enjoy each day!
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- February 19, 2013 at 2:41 pm
Congratulations on your milestone. Don't worry about the other shoe, you can't control that. Hope is what keeps us going and you should never loose that. We battled melanoma four years with our Daughter (Interfuron, IL-2, clinical trials, CTLA-4, etc) and the one thing that kept us going was hope from the medical staff. This went on for four years. Without hope we may not have made it past the second year.
Keep your head up and enjoy each day!
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- February 19, 2013 at 2:41 pm
Congratulations on your milestone. Don't worry about the other shoe, you can't control that. Hope is what keeps us going and you should never loose that. We battled melanoma four years with our Daughter (Interfuron, IL-2, clinical trials, CTLA-4, etc) and the one thing that kept us going was hope from the medical staff. This went on for four years. Without hope we may not have made it past the second year.
Keep your head up and enjoy each day!
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- February 19, 2013 at 3:21 pm
Here is a link to the many trials available. Most will not be pertinent, but you may find one that looks encouraging.
http://www.clinicaltrials.gov/ct2/results?term=melanoma
Keep the faith and never give up hope. I know this is not the forum but after reading many messages it brings back so many memories of my Daughter, Amanda and her four year battle. It helps me to share her memories:
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- February 19, 2013 at 3:21 pm
Here is a link to the many trials available. Most will not be pertinent, but you may find one that looks encouraging.
http://www.clinicaltrials.gov/ct2/results?term=melanoma
Keep the faith and never give up hope. I know this is not the forum but after reading many messages it brings back so many memories of my Daughter, Amanda and her four year battle. It helps me to share her memories:
-
- February 19, 2013 at 3:21 pm
Here is a link to the many trials available. Most will not be pertinent, but you may find one that looks encouraging.
http://www.clinicaltrials.gov/ct2/results?term=melanoma
Keep the faith and never give up hope. I know this is not the forum but after reading many messages it brings back so many memories of my Daughter, Amanda and her four year battle. It helps me to share her memories:
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- February 19, 2013 at 3:11 pm
My Daughter endured two separate trials of the TIL process at the NIH in Bethesda, MD. She also endured Interferon, IL-2, CTLA-4, Temador and other protocols. As one of the earlier posters noted, you need to be cautious in what order you inter into these treatments. In some cases, if you do A before B then you are not eligible for C, but if you do B before A you may be considered for C.
Anyway, as my Daughter told her many Docs, Bring it on!. She endured two rounds (not just 2 segments) of IL-2 and was determined to whip this thing, i ncluding two lung surgeries within two months.
Keep the faith and never give up hope!
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- February 19, 2013 at 3:11 pm
My Daughter endured two separate trials of the TIL process at the NIH in Bethesda, MD. She also endured Interferon, IL-2, CTLA-4, Temador and other protocols. As one of the earlier posters noted, you need to be cautious in what order you inter into these treatments. In some cases, if you do A before B then you are not eligible for C, but if you do B before A you may be considered for C.
Anyway, as my Daughter told her many Docs, Bring it on!. She endured two rounds (not just 2 segments) of IL-2 and was determined to whip this thing, i ncluding two lung surgeries within two months.
Keep the faith and never give up hope!
-
- February 19, 2013 at 3:11 pm
My Daughter endured two separate trials of the TIL process at the NIH in Bethesda, MD. She also endured Interferon, IL-2, CTLA-4, Temador and other protocols. As one of the earlier posters noted, you need to be cautious in what order you inter into these treatments. In some cases, if you do A before B then you are not eligible for C, but if you do B before A you may be considered for C.
Anyway, as my Daughter told her many Docs, Bring it on!. She endured two rounds (not just 2 segments) of IL-2 and was determined to whip this thing, i ncluding two lung surgeries within two months.
Keep the faith and never give up hope!
