dewdads

Hi Dale,

I have been on test since 1/3 and so am one of the older cases in the study.  I have been very successful at 14 mg.  I started at 24 which was a disaster, did 8 weeks, took two weeks off, came back at 20mg and was having sideeffects after 3 days, went off 2 weeks came back at 14mg and have done reasonably well since them.

My side effects at this point are mostly fatigue.  I can easily sleep till 11:00 am, and then again for several hours in the afternoon.  I have lost a considerable amount of weight and continue to do so.  I have no taste and because nothing tastes good I am not eating enough.  I have also had long running diarrhea (5 weeks)  It isn't constant –just 4-5 hrs a day.  I have no mouth sores or sore throat like I had with the 24mg dosage.  I have had a lot of pain in my bones.muscles/joints but that seems to have cleared up.  I am much steadier  in my steps and do not stumble as I did.  Falling is still a concern, but  my feet have gotten back a lot of their feeling and that helps steady me.

Really, I feel pretty good for taking this medication.  My chemistrys have been normal and with a few glitches that have no logical causes body chemistry is within tolerable  ranges.  I have been outside in my garden a lot this spring, but I do have trouble with the wind and the high temps.  Bright sun effects my skin and the heat and sun makes me dizzy and faint.  

Dehydration continues to be a problem.  Just keep drinking.  My CAT/PET from a month ago showed the metastisis in my lungs had shrunk about 50% and that some of the lesions may have disappeared.  I do a MRI and CAT in late June and hope to see that trend continue.

Hope this helps.  Cutting down the dosage was my solution.  You just have to hope your response is adequate to keep the Cancer at bay.  But if you can't function you can't live.

Hi Dale,

I have been on test since 1/3 and so am one of the older cases in the study.  I have been very successful at 14 mg.  I started at 24 which was a disaster, did 8 weeks, took two weeks off, came back at 20mg and was having sideeffects after 3 days, went off 2 weeks came back at 14mg and have done reasonably well since them.

My side effects at this point are mostly fatigue.  I can easily sleep till 11:00 am, and then again for several hours in the afternoon.  I have lost a considerable amount of weight and continue to do so.  I have no taste and because nothing tastes good I am not eating enough.  I have also had long running diarrhea (5 weeks)  It isn't constant –just 4-5 hrs a day.  I have no mouth sores or sore throat like I had with the 24mg dosage.  I have had a lot of pain in my bones.muscles/joints but that seems to have cleared up.  I am much steadier  in my steps and do not stumble as I did.  Falling is still a concern, but  my feet have gotten back a lot of their feeling and that helps steady me.

Really, I feel pretty good for taking this medication.  My chemistrys have been normal and with a few glitches that have no logical causes body chemistry is within tolerable  ranges.  I have been outside in my garden a lot this spring, but I do have trouble with the wind and the high temps.  Bright sun effects my skin and the heat and sun makes me dizzy and faint.  

Dehydration continues to be a problem.  Just keep drinking.  My CAT/PET from a month ago showed the metastisis in my lungs had shrunk about 50% and that some of the lesions may have disappeared.  I do a MRI and CAT in late June and hope to see that trend continue.

Hope this helps.  Cutting down the dosage was my solution.  You just have to hope your response is adequate to keep the Cancer at bay.  But if you can't function you can't live.