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DennysGirl

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      DennysGirl
      Participant

      Thank you for your replys and advise! The melanoma specialist here at UW said if we want to continue chemo then we should not go with hospice. He said since Dennis has shown so much improvement, he thinks further treatment is a good plan! So they are going to call and schedule a appointment for us with his regular oncologist back home! He is also totally off of oxygen now!  He is still being discharged to home today. Praying for more improvement and success with further treatments! 

      DennysGirl
      Participant

      Thank you for your replys and advise! The melanoma specialist here at UW said if we want to continue chemo then we should not go with hospice. He said since Dennis has shown so much improvement, he thinks further treatment is a good plan! So they are going to call and schedule a appointment for us with his regular oncologist back home! He is also totally off of oxygen now!  He is still being discharged to home today. Praying for more improvement and success with further treatments! 

      DennysGirl
      Participant

      Thank you for your replys and advise! The melanoma specialist here at UW said if we want to continue chemo then we should not go with hospice. He said since Dennis has shown so much improvement, he thinks further treatment is a good plan! So they are going to call and schedule a appointment for us with his regular oncologist back home! He is also totally off of oxygen now!  He is still being discharged to home today. Praying for more improvement and success with further treatments! 

      DennysGirl
      Participant

      Oh I forgot to mention that he has only had 1 dose of Opdivo… That was on Oct 16th. The Opdivo was not what caused the vomiting because that started on Oct 11.  I'm just feeling like it's too early to just give up.

      DennysGirl
      Participant

      Oh I forgot to mention that he has only had 1 dose of Opdivo… That was on Oct 16th. The Opdivo was not what caused the vomiting because that started on Oct 11.  I'm just feeling like it's too early to just give up.

      DennysGirl
      Participant

      Oh I forgot to mention that he has only had 1 dose of Opdivo… That was on Oct 16th. The Opdivo was not what caused the vomiting because that started on Oct 11.  I'm just feeling like it's too early to just give up.

      DennysGirl
      Participant

      Thank you, Maggie. To be honest… Money is a lot of our issue.  We did have Humana through my husbands employer and I must say…They are HORRIBLE! It was like pulling teeth for our oncologist to get any treatments approved. The Humana ends the end of October. Then we are on Medicaid. Right now our only income is SSI $733 a month until his SSDI kicks in in January which will bump it up but no where near what my husband used to make. I was always a housewife and we never had a problem paying our bills but now I am trying to get a job but that's tough with his physical needs right now, but still trying. I guess what I'm trying to say is….If I won the lottery tonight I would be buying a plane ticket to see the best melanoma specialist out there! But for Her to just assume that it was my lack of trying or interest in my husbands health is appalling and rude. 

      I understand the importance of a specialist and I must say that I am glad our oncologist knows our financial situation and all his physical problems and knows it's important for him to be talking to North Western and getting advice from them. I will try to get him to a specialist though. 

      Thank you for your concern

      DennysGirl
      Participant

      Thank you, Maggie. To be honest… Money is a lot of our issue.  We did have Humana through my husbands employer and I must say…They are HORRIBLE! It was like pulling teeth for our oncologist to get any treatments approved. The Humana ends the end of October. Then we are on Medicaid. Right now our only income is SSI $733 a month until his SSDI kicks in in January which will bump it up but no where near what my husband used to make. I was always a housewife and we never had a problem paying our bills but now I am trying to get a job but that's tough with his physical needs right now, but still trying. I guess what I'm trying to say is….If I won the lottery tonight I would be buying a plane ticket to see the best melanoma specialist out there! But for Her to just assume that it was my lack of trying or interest in my husbands health is appalling and rude. 

      I understand the importance of a specialist and I must say that I am glad our oncologist knows our financial situation and all his physical problems and knows it's important for him to be talking to North Western and getting advice from them. I will try to get him to a specialist though. 

      Thank you for your concern

      DennysGirl
      Participant

      Thank you, Maggie. To be honest… Money is a lot of our issue.  We did have Humana through my husbands employer and I must say…They are HORRIBLE! It was like pulling teeth for our oncologist to get any treatments approved. The Humana ends the end of October. Then we are on Medicaid. Right now our only income is SSI $733 a month until his SSDI kicks in in January which will bump it up but no where near what my husband used to make. I was always a housewife and we never had a problem paying our bills but now I am trying to get a job but that's tough with his physical needs right now, but still trying. I guess what I'm trying to say is….If I won the lottery tonight I would be buying a plane ticket to see the best melanoma specialist out there! But for Her to just assume that it was my lack of trying or interest in my husbands health is appalling and rude. 

      I understand the importance of a specialist and I must say that I am glad our oncologist knows our financial situation and all his physical problems and knows it's important for him to be talking to North Western and getting advice from them. I will try to get him to a specialist though. 

      Thank you for your concern

      DennysGirl
      Participant

      Dear lovely person, 

      I appreciate your uncensored view of me as a wife and caregiver but also would like to remind you that you don't know me. Thank you so much for shedding the light as to how it will be my fault if my husband passes as if I don't feel enough strain and stress as it is. All melanoma is different. My oncologist is the melanoma specialist at my hospital. If I wanted to take my husband hours away to see the closest doctor who would meet your approval… He would be in even worse shape for the drive and time spent getting him there. His dr sends all my husbands charts and scans to NorthWestern in Chicago for consultation. My husband is now on Opdivo. I call the oncologist every other day to give updates on my husbands situation and condition. Oh and by the way the brain met he had shrunk. We have already met with the radiologist about GammaKnife and radiation of the lesions in his bones and spine. 

      People come here to this site for support not to be belittled. Thank you again. 

      DennysGirl
      Participant

      Dear lovely person, 

      I appreciate your uncensored view of me as a wife and caregiver but also would like to remind you that you don't know me. Thank you so much for shedding the light as to how it will be my fault if my husband passes as if I don't feel enough strain and stress as it is. All melanoma is different. My oncologist is the melanoma specialist at my hospital. If I wanted to take my husband hours away to see the closest doctor who would meet your approval… He would be in even worse shape for the drive and time spent getting him there. His dr sends all my husbands charts and scans to NorthWestern in Chicago for consultation. My husband is now on Opdivo. I call the oncologist every other day to give updates on my husbands situation and condition. Oh and by the way the brain met he had shrunk. We have already met with the radiologist about GammaKnife and radiation of the lesions in his bones and spine. 

      People come here to this site for support not to be belittled. Thank you again. 

      DennysGirl
      Participant

      Dear lovely person, 

      I appreciate your uncensored view of me as a wife and caregiver but also would like to remind you that you don't know me. Thank you so much for shedding the light as to how it will be my fault if my husband passes as if I don't feel enough strain and stress as it is. All melanoma is different. My oncologist is the melanoma specialist at my hospital. If I wanted to take my husband hours away to see the closest doctor who would meet your approval… He would be in even worse shape for the drive and time spent getting him there. His dr sends all my husbands charts and scans to NorthWestern in Chicago for consultation. My husband is now on Opdivo. I call the oncologist every other day to give updates on my husbands situation and condition. Oh and by the way the brain met he had shrunk. We have already met with the radiologist about GammaKnife and radiation of the lesions in his bones and spine. 

      People come here to this site for support not to be belittled. Thank you again. 

      DennysGirl
      Participant

      His largest tumor was on his right lung and was too close to his heart to operate. It was pretty big. About 3/4 size of his lung in the scan I would say.  My hubby didn't want to know "size" because he didn't want to be discouraged. It caused a constant pain in his upper right chest and upper right back until it shrank. Now he has the same type of constant pain but on the left side. So we are only assuming that there is possibly a new tumor growth there. His PET scan and MRI are this morning. We will know the results on Friday afternoon. 

      DennysGirl
      Participant

      His largest tumor was on his right lung and was too close to his heart to operate. It was pretty big. About 3/4 size of his lung in the scan I would say.  My hubby didn't want to know "size" because he didn't want to be discouraged. It caused a constant pain in his upper right chest and upper right back until it shrank. Now he has the same type of constant pain but on the left side. So we are only assuming that there is possibly a new tumor growth there. His PET scan and MRI are this morning. We will know the results on Friday afternoon. 

      DennysGirl
      Participant

      His largest tumor was on his right lung and was too close to his heart to operate. It was pretty big. About 3/4 size of his lung in the scan I would say.  My hubby didn't want to know "size" because he didn't want to be discouraged. It caused a constant pain in his upper right chest and upper right back until it shrank. Now he has the same type of constant pain but on the left side. So we are only assuming that there is possibly a new tumor growth there. His PET scan and MRI are this morning. We will know the results on Friday afternoon. 

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