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- June 25, 2014 at 8:45 pm
Still in limbo. The docs have decided to treat the skin melanoma first and watch the eye. The eye dr. still insists it is 2 different kinds of melanoma and has therefore thrown the wrench into any clinical trials! He MAY start Yervoy Monday BUT they are still trying to figure out if medicare will pay and how much we may have to pay, as the VA is his primary and since we are just doing yervoy now the VA can do that. We don't have a sujpplement to medicare because he was covered by the VA and we did not take one out. We would like for the specialist at IU to be his primary care dr. but she says the treatment is quite expensive and doesn't want to bankrupt us. She is having her social worker check on all of this. What a mess, we just want him to get treatment and we will figure out payment.
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- June 25, 2014 at 8:45 pm
Still in limbo. The docs have decided to treat the skin melanoma first and watch the eye. The eye dr. still insists it is 2 different kinds of melanoma and has therefore thrown the wrench into any clinical trials! He MAY start Yervoy Monday BUT they are still trying to figure out if medicare will pay and how much we may have to pay, as the VA is his primary and since we are just doing yervoy now the VA can do that. We don't have a sujpplement to medicare because he was covered by the VA and we did not take one out. We would like for the specialist at IU to be his primary care dr. but she says the treatment is quite expensive and doesn't want to bankrupt us. She is having her social worker check on all of this. What a mess, we just want him to get treatment and we will figure out payment.
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- June 25, 2014 at 8:45 pm
Still in limbo. The docs have decided to treat the skin melanoma first and watch the eye. The eye dr. still insists it is 2 different kinds of melanoma and has therefore thrown the wrench into any clinical trials! He MAY start Yervoy Monday BUT they are still trying to figure out if medicare will pay and how much we may have to pay, as the VA is his primary and since we are just doing yervoy now the VA can do that. We don't have a sujpplement to medicare because he was covered by the VA and we did not take one out. We would like for the specialist at IU to be his primary care dr. but she says the treatment is quite expensive and doesn't want to bankrupt us. She is having her social worker check on all of this. What a mess, we just want him to get treatment and we will figure out payment.
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- May 6, 2014 at 7:13 pm
Got results of biopsys today it is melanoma the derm said he would be going for surgery then chemo. Waiting to hear from VA derm as to course of action for the VA. Hoping they send him somewhere local, instead of having to drive 60 miles on way to Indy. Don't they do chemo everyday?
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- May 6, 2014 at 7:13 pm
Got results of biopsys today it is melanoma the derm said he would be going for surgery then chemo. Waiting to hear from VA derm as to course of action for the VA. Hoping they send him somewhere local, instead of having to drive 60 miles on way to Indy. Don't they do chemo everyday?
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- May 6, 2014 at 7:13 pm
Got results of biopsys today it is melanoma the derm said he would be going for surgery then chemo. Waiting to hear from VA derm as to course of action for the VA. Hoping they send him somewhere local, instead of having to drive 60 miles on way to Indy. Don't they do chemo everyday?
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- May 2, 2014 at 1:49 pm
Thanks so much for your reply, I am sorry to hear about your father. I may not have explained myself well enough, the Dr. I don't care for and confused me isn't the eye Dr. (who is very nice and explains things extremely well) it was a different dermatologist We were sent to him from the local VA because the derm. there wanted him to look at the new spots on his skin. Am I wrong thinking the dermatologist isn't the one to plan out treatment, and that we need to find an oncologist? Wish we lived closer to one of the specialists you mentioned. We live about 60 miles north of Indianapolis, in a very small town.
My daughter's best friend only 39. has melanoma started on her back and has spread they tried everything here, she is now going for clinical trials in Tennnesse, don't know if that is the closest place to us or not.
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- May 2, 2014 at 1:49 pm
Thanks so much for your reply, I am sorry to hear about your father. I may not have explained myself well enough, the Dr. I don't care for and confused me isn't the eye Dr. (who is very nice and explains things extremely well) it was a different dermatologist We were sent to him from the local VA because the derm. there wanted him to look at the new spots on his skin. Am I wrong thinking the dermatologist isn't the one to plan out treatment, and that we need to find an oncologist? Wish we lived closer to one of the specialists you mentioned. We live about 60 miles north of Indianapolis, in a very small town.
My daughter's best friend only 39. has melanoma started on her back and has spread they tried everything here, she is now going for clinical trials in Tennnesse, don't know if that is the closest place to us or not.
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- May 2, 2014 at 1:49 pm
Thanks so much for your reply, I am sorry to hear about your father. I may not have explained myself well enough, the Dr. I don't care for and confused me isn't the eye Dr. (who is very nice and explains things extremely well) it was a different dermatologist We were sent to him from the local VA because the derm. there wanted him to look at the new spots on his skin. Am I wrong thinking the dermatologist isn't the one to plan out treatment, and that we need to find an oncologist? Wish we lived closer to one of the specialists you mentioned. We live about 60 miles north of Indianapolis, in a very small town.
My daughter's best friend only 39. has melanoma started on her back and has spread they tried everything here, she is now going for clinical trials in Tennnesse, don't know if that is the closest place to us or not.
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