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dawnmfld

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      dawnmfld
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        I just want to let you know that I am a melanoma mom as well.  My daughter was diagnosed Nov 09 with melanoma at the age of 8.  We have been fighting this for one year already.  Her melanoma is in her brain and spine….no where else in the body….PET and bone scans are negative; no lesions noted.  We have been treated at St. Judes and will be starting treatment at Sloan Kettering.  Although we are in two different ball parks, we are still in the same game.  Becca is doing very well even though it sounds terrible….we are defying the odds.  I just want to let you know, you are your son's best advocate.  I have talked with, emailed, and visited many doctors around the country….Memphis TN, Nashville, TN,  MD Anderson..Houston TX,  Yale and New York.   I have personally talked with the doctors from the pharmaceutical companies regarding drugs and protocols that may be beneficial for Becca.  You will find great info on this site as well as the other MIF site.  Continue to do lots of research and push for your son.  Again, you are the best advocate so get all the info and opinions you can….Push for the answers because an informed mom is an empowered mom!!!!

        dawnmfld
        Participant

          I just want to let you know that I am a melanoma mom as well.  My daughter was diagnosed Nov 09 with melanoma at the age of 8.  We have been fighting this for one year already.  Her melanoma is in her brain and spine….no where else in the body….PET and bone scans are negative; no lesions noted.  We have been treated at St. Judes and will be starting treatment at Sloan Kettering.  Although we are in two different ball parks, we are still in the same game.  Becca is doing very well even though it sounds terrible….we are defying the odds.  I just want to let you know, you are your son's best advocate.  I have talked with, emailed, and visited many doctors around the country….Memphis TN, Nashville, TN,  MD Anderson..Houston TX,  Yale and New York.   I have personally talked with the doctors from the pharmaceutical companies regarding drugs and protocols that may be beneficial for Becca.  You will find great info on this site as well as the other MIF site.  Continue to do lots of research and push for your son.  Again, you are the best advocate so get all the info and opinions you can….Push for the answers because an informed mom is an empowered mom!!!!

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