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dafad777

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      dafad777
      Participant

        dawn i came across your post looking for other mothers.my daughter is nine and we havent been giving a stage or treatment yet.we go see the specialist feb 22.I just had a question.how was she dignoised?my daughters case has gone to three different patholigist.and know one gives me clear answers,because they think her case is problematic.im sure because of her age.my thoughts got out to you and your family. 

        dafad777
        Participant

          dawn i came across your post looking for other mothers.my daughter is nine and we havent been giving a stage or treatment yet.we go see the specialist feb 22.I just had a question.how was she dignoised?my daughters case has gone to three different patholigist.and know one gives me clear answers,because they think her case is problematic.im sure because of her age.my thoughts got out to you and your family. 

          dafad777
          Participant
            So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
            dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck
            dafad777
            Participant
              So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
              dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck
              dafad777
              Participant
                So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
                dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck
                dafad777
                Participant

                  im glad im not the only one that seems not to understand it.she was at first recomended to dana farber in boston.then the dermatoligist called back and told me to wait  because she was going to see if she could get me someone else.she took a week because no one would see her because of her age.then she called and said dr.martin mihm would see her even thought he usally only sees 16 and up.we had an appt. dec 18th at mass eye ear informery because he does melanoma clinic there once a month.we went and when we got there he wasnt because someone pasted away in his family night before.thats why now we have an appt. feb. 22 know at his office at brighham and womens hosptial in boston.thats why im trying to get all my Q and a's in order.to be honest its consumed me.when she says she has a head ache or neck pain im wondering if i should take her to doctor.or if its just normal stuff.cant wait to see doctor hope i get some answers thank you youve been so helpful.

                  dafad777
                  Participant

                    im glad im not the only one that seems not to understand it.she was at first recomended to dana farber in boston.then the dermatoligist called back and told me to wait  because she was going to see if she could get me someone else.she took a week because no one would see her because of her age.then she called and said dr.martin mihm would see her even thought he usally only sees 16 and up.we had an appt. dec 18th at mass eye ear informery because he does melanoma clinic there once a month.we went and when we got there he wasnt because someone pasted away in his family night before.thats why now we have an appt. feb. 22 know at his office at brighham and womens hosptial in boston.thats why im trying to get all my Q and a's in order.to be honest its consumed me.when she says she has a head ache or neck pain im wondering if i should take her to doctor.or if its just normal stuff.cant wait to see doctor hope i get some answers thank you youve been so helpful.

                    dafad777
                    Participant

                      thank you janner I have my daughters path report.which i wish it helped me understand.but under assessment they called it severely atypical pigmented tumorigenic melanocytic neoplasm(melanocytic tumor of uncertain malignant potential)and under the comments/recommendation;this lesion has characteristics of what has been termed 'pigmented epithelioid melanocytoma'such lesions have overlap with melanophagic/animal-type melanoma.my concern was that she had it for three years and it had ulcerationand was about the size of a dime.the first surgery they took a ellipse of skin that measures 1.1x 0.6 cm,deepth 0.6 cm.on the surface there is a black gray lesion that measures 0.6 x0.5 cm then after that they went back and took the wle that was on dec 3 they took 1.6 x 0.8 cm and has a depth of 0.5 cm little tricky reading there report.thanks

                      dafad777
                      Participant

                        thank you janner I have my daughters path report.which i wish it helped me understand.but under assessment they called it severely atypical pigmented tumorigenic melanocytic neoplasm(melanocytic tumor of uncertain malignant potential)and under the comments/recommendation;this lesion has characteristics of what has been termed 'pigmented epithelioid melanocytoma'such lesions have overlap with melanophagic/animal-type melanoma.my concern was that she had it for three years and it had ulcerationand was about the size of a dime.the first surgery they took a ellipse of skin that measures 1.1x 0.6 cm,deepth 0.6 cm.on the surface there is a black gray lesion that measures 0.6 x0.5 cm then after that they went back and took the wle that was on dec 3 they took 1.6 x 0.8 cm and has a depth of 0.5 cm little tricky reading there report.thanks

                        dafad777
                        Participant

                          Thank you for this information Ihave been trying to get some information on line and there wasnt much I could find.This helps when i go see the doctor.

                          dafad777
                          Participant

                            Thank you for this information Ihave been trying to get some information on line and there wasnt much I could find.This helps when i go see the doctor.

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