Forum Replies Created
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- February 9, 2011 at 12:06 pm
dawn i came across your post looking for other mothers.my daughter is nine and we havent been giving a stage or treatment yet.we go see the specialist feb 22.I just had a question.how was she dignoised?my daughters case has gone to three different patholigist.and know one gives me clear answers,because they think her case is problematic.im sure because of her age.my thoughts got out to you and your family.
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- February 9, 2011 at 12:06 pm
dawn i came across your post looking for other mothers.my daughter is nine and we havent been giving a stage or treatment yet.we go see the specialist feb 22.I just had a question.how was she dignoised?my daughters case has gone to three different patholigist.and know one gives me clear answers,because they think her case is problematic.im sure because of her age.my thoughts got out to you and your family.
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- August 19, 2012 at 3:07 pm
So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck -
- August 19, 2012 at 3:07 pm
So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck -
- August 19, 2012 at 3:07 pm
So far my daughter hasn’t had any regrowth on the ear but she does have a lession on the pupic area that they are watching.she sees her
dermo every six months and sees melanoma specialist once a year.I would say if you can get appt with Dr Martin mihm he’s from mass general Boston.very good Dr.let me know how your son is doing best of luck -
- February 12, 2011 at 5:41 pm
im glad im not the only one that seems not to understand it.she was at first recomended to dana farber in boston.then the dermatoligist called back and told me to wait because she was going to see if she could get me someone else.she took a week because no one would see her because of her age.then she called and said dr.martin mihm would see her even thought he usally only sees 16 and up.we had an appt. dec 18th at mass eye ear informery because he does melanoma clinic there once a month.we went and when we got there he wasnt because someone pasted away in his family night before.thats why now we have an appt. feb. 22 know at his office at brighham and womens hosptial in boston.thats why im trying to get all my Q and a's in order.to be honest its consumed me.when she says she has a head ache or neck pain im wondering if i should take her to doctor.or if its just normal stuff.cant wait to see doctor hope i get some answers thank you youve been so helpful.
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- February 12, 2011 at 5:41 pm
im glad im not the only one that seems not to understand it.she was at first recomended to dana farber in boston.then the dermatoligist called back and told me to wait because she was going to see if she could get me someone else.she took a week because no one would see her because of her age.then she called and said dr.martin mihm would see her even thought he usally only sees 16 and up.we had an appt. dec 18th at mass eye ear informery because he does melanoma clinic there once a month.we went and when we got there he wasnt because someone pasted away in his family night before.thats why now we have an appt. feb. 22 know at his office at brighham and womens hosptial in boston.thats why im trying to get all my Q and a's in order.to be honest its consumed me.when she says she has a head ache or neck pain im wondering if i should take her to doctor.or if its just normal stuff.cant wait to see doctor hope i get some answers thank you youve been so helpful.
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- February 12, 2011 at 12:29 pm
thank you janner I have my daughters path report.which i wish it helped me understand.but under assessment they called it severely atypical pigmented tumorigenic melanocytic neoplasm(melanocytic tumor of uncertain malignant potential)and under the comments/recommendation;this lesion has characteristics of what has been termed 'pigmented epithelioid melanocytoma'such lesions have overlap with melanophagic/animal-type melanoma.my concern was that she had it for three years and it had ulcerationand was about the size of a dime.the first surgery they took a ellipse of skin that measures 1.1x 0.6 cm,deepth 0.6 cm.on the surface there is a black gray lesion that measures 0.6 x0.5 cm then after that they went back and took the wle that was on dec 3 they took 1.6 x 0.8 cm and has a depth of 0.5 cm little tricky reading there report.thanks
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- February 12, 2011 at 12:29 pm
thank you janner I have my daughters path report.which i wish it helped me understand.but under assessment they called it severely atypical pigmented tumorigenic melanocytic neoplasm(melanocytic tumor of uncertain malignant potential)and under the comments/recommendation;this lesion has characteristics of what has been termed 'pigmented epithelioid melanocytoma'such lesions have overlap with melanophagic/animal-type melanoma.my concern was that she had it for three years and it had ulcerationand was about the size of a dime.the first surgery they took a ellipse of skin that measures 1.1x 0.6 cm,deepth 0.6 cm.on the surface there is a black gray lesion that measures 0.6 x0.5 cm then after that they went back and took the wle that was on dec 3 they took 1.6 x 0.8 cm and has a depth of 0.5 cm little tricky reading there report.thanks
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