The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

cldeters

Forum Replies Created

Viewing 8 reply threads
  • Replies
      cldeters
      Participant

      I had a TLND of the groin on Dec. 6, 2011. I obeyed the doctor's orders and kept my leg elevated for 1 1/2 – 2 weeks. I had very little pain and didn't need any pain medication at all after surgery. I have a very minimal amount of swelling in my leg, and I am hoping it will eventually go away. I was off work for 2 weeks and then went back for about 6 hours every other day. I work in an office setting so I am able to sit down the majority of the time. I still try to elevate my leg as much as possible and elevate it every night on 2-3 pillows. I wish you well on Thursday!!

      ~Cindy

      cldeters
      Participant

      I had a TLND of the groin on Dec. 6, 2011. I obeyed the doctor's orders and kept my leg elevated for 1 1/2 – 2 weeks. I had very little pain and didn't need any pain medication at all after surgery. I have a very minimal amount of swelling in my leg, and I am hoping it will eventually go away. I was off work for 2 weeks and then went back for about 6 hours every other day. I work in an office setting so I am able to sit down the majority of the time. I still try to elevate my leg as much as possible and elevate it every night on 2-3 pillows. I wish you well on Thursday!!

      ~Cindy

      cldeters
      Participant

      I had a TLND of the groin on Dec. 6, 2011. I obeyed the doctor's orders and kept my leg elevated for 1 1/2 – 2 weeks. I had very little pain and didn't need any pain medication at all after surgery. I have a very minimal amount of swelling in my leg, and I am hoping it will eventually go away. I was off work for 2 weeks and then went back for about 6 hours every other day. I work in an office setting so I am able to sit down the majority of the time. I still try to elevate my leg as much as possible and elevate it every night on 2-3 pillows. I wish you well on Thursday!!

      ~Cindy

      cldeters
      Participant

      Hi Brenda,

      My heart goes out to you and all the others with stage 4. I was just given the terrible news last week that I have stage 4 as well. I had a wide excision 14 years ago of the primary and have been NED since then. All of a sudden a few weeks ago I had some tumors show up and was told I am stage 4 now. Wow, this is devastaing. I have had the same feelings that you have had, how could this happen. I don't have young children at home anymore, but it is still very hard. I have 4 very young grandchildren I would like to see grow up.

      Thanks for sharing your story and I hope we can all be great support for eachother.

      Take care,

      ~Cindy

      cldeters
      Participant

      Hi Brenda,

      My heart goes out to you and all the others with stage 4. I was just given the terrible news last week that I have stage 4 as well. I had a wide excision 14 years ago of the primary and have been NED since then. All of a sudden a few weeks ago I had some tumors show up and was told I am stage 4 now. Wow, this is devastaing. I have had the same feelings that you have had, how could this happen. I don't have young children at home anymore, but it is still very hard. I have 4 very young grandchildren I would like to see grow up.

      Thanks for sharing your story and I hope we can all be great support for eachother.

      Take care,

      ~Cindy

      cldeters
      Participant

      Hi Brenda,

      My heart goes out to you and all the others with stage 4. I was just given the terrible news last week that I have stage 4 as well. I had a wide excision 14 years ago of the primary and have been NED since then. All of a sudden a few weeks ago I had some tumors show up and was told I am stage 4 now. Wow, this is devastaing. I have had the same feelings that you have had, how could this happen. I don't have young children at home anymore, but it is still very hard. I have 4 very young grandchildren I would like to see grow up.

      Thanks for sharing your story and I hope we can all be great support for eachother.

      Take care,

      ~Cindy

      cldeters
      Participant

      HI Karen,

      Thank you sooooo much for updating us on your good news. I just found out yesterday that I am Stage IV. Wow….this is very scary. My oncologist is making an appointment for me to go to U of M to see if they can help me. It is so good to hear your testimony of survivalship and it gives me great hope! Thanks for sharing.

      ~Cindy

      cldeters
      Participant

      HI Karen,

      Thank you sooooo much for updating us on your good news. I just found out yesterday that I am Stage IV. Wow….this is very scary. My oncologist is making an appointment for me to go to U of M to see if they can help me. It is so good to hear your testimony of survivalship and it gives me great hope! Thanks for sharing.

      ~Cindy

      cldeters
      Participant

      HI Karen,

      Thank you sooooo much for updating us on your good news. I just found out yesterday that I am Stage IV. Wow….this is very scary. My oncologist is making an appointment for me to go to U of M to see if they can help me. It is so good to hear your testimony of survivalship and it gives me great hope! Thanks for sharing.

      ~Cindy

      cldeters
      Participant

      Thank you for your input, Linda. So sorry to hear about your brain met. Are you on a treatment now? 

      cldeters
      Participant

      Thank you for your input, Linda. So sorry to hear about your brain met. Are you on a treatment now? 

      cldeters
      Participant

      Thank you for your input, Linda. So sorry to hear about your brain met. Are you on a treatment now? 

      cldeters
      Participant

      I don't know how or why I am considered stage 4. That was not good news for me when my oncologist told me that. I don't have evidence of disease in any organs. She considers it stage 4 because it has metastasized beyond the lymph nodes to other areas of both legs. I am supposed to go to U of M to meet with melanoma specialist. He might tell me something different.

      I did have a recliner and also put my leg up on a couple pillows. I wasn't really told how high to elevate my leg. I was just told not to let it hang down.

      This is all very tough to go thru. I had a crying spell this morning. Not fun!!!

      Best wishes to you!!

      ~Cindy

      cldeters
      Participant

      I don't know how or why I am considered stage 4. That was not good news for me when my oncologist told me that. I don't have evidence of disease in any organs. She considers it stage 4 because it has metastasized beyond the lymph nodes to other areas of both legs. I am supposed to go to U of M to meet with melanoma specialist. He might tell me something different.

      I did have a recliner and also put my leg up on a couple pillows. I wasn't really told how high to elevate my leg. I was just told not to let it hang down.

      This is all very tough to go thru. I had a crying spell this morning. Not fun!!!

      Best wishes to you!!

      ~Cindy

      cldeters
      Participant

      I don't know how or why I am considered stage 4. That was not good news for me when my oncologist told me that. I don't have evidence of disease in any organs. She considers it stage 4 because it has metastasized beyond the lymph nodes to other areas of both legs. I am supposed to go to U of M to meet with melanoma specialist. He might tell me something different.

      I did have a recliner and also put my leg up on a couple pillows. I wasn't really told how high to elevate my leg. I was just told not to let it hang down.

      This is all very tough to go thru. I had a crying spell this morning. Not fun!!!

      Best wishes to you!!

      ~Cindy

Viewing 8 reply threads
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.