Melanoma Research Foundation | Christinad | Activity https://forum.melanoma.org/user/christinad/activity/ Activity feed for Christinad. Tue, 21 Apr 2026 10:28:09 -0400 https://buddypress.org/?v= en-US 30 hourly 2 906ce1d5801fc2bcdc4bcb9fb1477ebc Christinad replied to the topic Lung Mets? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/lung-mets-2/#post-280503 Tue, 15 Oct 2024 04:11:43 -0400 I had a similar report after two years of immunotherapy. A scary time for me! Was told lung progression until 3rd scan (1 CT and 2 pet scans). The radiologist who read the third scan read the findings as infection or inflammation, likely pneumonitis – a reaction from immunotherapy. My oncologist wasn’t convinced I had progression because each s…Read more

]]> 8cbdbf1bb1114e2f528dfb49abed308c Christinad replied to the topic I urgently need help or advice in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-urgently-need-help-or-advice/#post-279880 Fri, 19 Jan 2024 04:39:00 -0500 I am now a type 1 diabetic and on insulin after 2 1/2 years of immunotherapy. I ended up in the ICU with diabetic ketoacidosis. I’m still on immunotherapy but unfortunately will be insulin dependent for the rest of my life.

]]> 327b85b8b1157a74e36c7b0dfe2444e4 Christinad replied to the topic Simple question or not in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/simple-question-or-not/#post-276352 Sat, 12 Feb 2022 04:48:07 -0500 I too have multiple bone Mets. Fortunately, I don’t have pain other than mild aches here and there. So far I’ve only had one scan that showed an overall improvement in all areas. Next one is end of March. My oncologist said if I reach a complete response, I’d have to do immunotherapy at least another year before having a discussion about stopp…Read more

]]> 0419f3f6f1a116dd8f503d85b007ac28 Christinad replied to the topic Still NED - Almost 5 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/still-ned-almost-5-years/#post-276292 Mon, 07 Feb 2022 02:14:45 -0500 Congratulations 💗

]]> bc1ee5a53a63492ad06d64a3b54b7f18 Christinad replied to the topic I rang the bell today, folks! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-rang-the-bell-today-folks/#post-276247 Sat, 22 Jan 2022 04:26:49 -0500 Great news! Congratulations!! 🙂

]]> 5bf028687c164766a5243a69135b3b06 Christinad replied to the topic NED for 2 Years in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/ned-for-2-years-2/#post-276180 Tue, 04 Jan 2022 01:24:20 -0500 Congratulations

]]> c950e0e4667f2cb82a8c27f2f3d2836f Christinad replied to the topic Happy New Year - an update and some intel in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-new-year-an-update-and-some-intel/#post-276173 Mon, 03 Jan 2022 19:28:17 -0500 Thank you for sharing the video, Ed. I watched the whole thing. Interesting stuff! The only negative part for me was the OS predictor tool. I was reminded of my reality as I checked almost every box on the tool. I had to have a pep talk with myself and give myself the same advice I give my patients. We are all different and can beat the odds!…Read more

]]> 4e9f764f8b49ed34b531718bf653e3af Christinad replied to the topic Happy New Year - an update and some intel in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/happy-new-year-an-update-and-some-intel/#post-276167 Mon, 03 Jan 2022 03:10:46 -0500 Hi! I read your blog….thank you for sharing. I read you still suffer from neuropathy. Just wondering if you’ve ever tried acupuncture? It helped me a great deal. My neuropathy is pretty much gone now and at one point it was excruciating pain to put weight on my feet. It continually improved after each acupuncture session. Coincidence or pla…Read more

]]> ff9bb599286e64f114b5329015053fbb Christinad replied to the topic Hair loss/thinning in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hair-loss-thinning/#post-276155 Thu, 30 Dec 2021 06:01:10 -0500 Grace, I’m happy for you that it is not too noticeable. My new hairs growing back in are white. Has that been your experience as well? You’re a little younger than I am, so maybe not, but I now have white lashes, brows, and lots of white hair changes all over.

]]> 8cdcea6fc3dbfb5b01d3e216cca876d1 Christinad replied to the topic Hair loss/thinning in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hair-loss-thinning/#post-276154 Thu, 30 Dec 2021 05:57:53 -0500 Interesting that your hair came back in curly. I hope you like it 🙂

]]> e985c80bbd87e5e4af26342bbaa7eb44 Christinad started the topic Hair loss/thinning in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/hair-loss-thinning/ Wed, 29 Dec 2021 06:04:01 -0500 Happy Holidays,

Curious if anyone has had hair thinning while on ipi/nivo? Luckily, I have a ton of hair but it comes out in handfuls daily, similarly to when I was on interferon. While on interferon I ended losing about 80% of my hair during the course of a year
Been on immunotherapy for 7 months and the hair loss isn’t as bad, but n…Read more

]]> eeb68b8c6869f0c260d4a735820d1424 Christinad replied to the topic Brain mets have shrunk after Cyberknife radiation and Braf/Mek in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-have-shrunk-after-cyberknife-radiation-and-braf-mek/#post-276148 Tue, 28 Dec 2021 04:17:18 -0500 Great news!!

]]> 0c238a924d104bbd4b355c6502459bf9 Christinad started the topic Anti-cholesterol drugs to increase efficacy of immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anti-cholesterol-drugs-to-increase-efficacy-of-immunotherapy/ Sun, 12 Dec 2021 16:16:44 -0500 https://apple.news/A49r75icUQOWgGACcO4eSEQ

Another interesting read – of course more research needs do be done, but who knows what the future holds in the melanoma world.

 

]]> 61b04fcf25185d9750681d13515984c7 Christinad replied to the topic Covid vaccine and immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/covid-vaccine-and-immunotherapy/#post-276083 Thu, 09 Dec 2021 00:58:26 -0500 Thank you, Ed!

]]> ea937fb3a983dff2512c01e898f6be1f Christinad started the topic Covid vaccine and immunotherapy in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/covid-vaccine-and-immunotherapy/ Wed, 08 Dec 2021 20:39:28 -0500 I’ve been putting off getting my second Covid vaccine since starting immunotherapy May of this year. I’m terrified of the unknown affect the vaccine can have on the immunotherapy medications and/or immune system. I’ve read several articles that say cancer patients should get the vaccine but can’t find anything that says it is 100% safe while o…Read more

]]> 3b8a146c202f243f4dce7e13209c550f Christinad replied to the topic Recurrent after 12 years, stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrent-after-12-years-stage-4/#post-276057 Sun, 05 Dec 2021 22:09:20 -0500 Hi Mary,

I’m sorry your having to revisit the board. I was diagnosed with stage 3a in 2014, which was a whirlwind for me. As the years passed, I didn’t think about melanoma much and thought I was in the clear until May of this year when I was diagnosed with stage 4. I had symptoms similar to a stomach flu, but I knew something was wrong and it…Read more

]]> fbd41fd764c3efb2239d896799ac6695 Christinad replied to the topic Recurrent after 12 years, stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/recurrent-after-12-years-stage-4/#post-276056 Sun, 05 Dec 2021 05:02:54 -0500 Hi Mary,

I’m sorry you’ve had to come back to visit the board under these circumstances. I was diagnosed with stage III in 2014 and that was a whirlwind of emotion. As the years passed I thought I was in the clear and started not to worry about melanoma anymore. Earlier this year I started to not feel good with symptoms similar to a stomach bug…Read more

]]> 030e3c3b77ad22ca825a9ff11e0e1ccc Christinad replied to the topic Melanoma Trial ends early due to great results in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/melanoma-trial-ends-early-due-to-great-results/#post-276045 Thu, 02 Dec 2021 03:23:14 -0500 Thank you both for sharing! My interpretation of both articles is combination ipi/nivo is still most effective based on the results.  Is that your understanding as well? Just want to make sure I’m still on the right track with my current treatment.

]]> c1df3988848ee1d34f8d37008da0f50f Christinad replied to the topic Antihistamines can influence immunotherapy response? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/antihistamines-can-influence-immunotherapy-response/#post-276038 Sun, 28 Nov 2021 16:42:46 -0500 Very true, Celeste. This would br difficult to study since NSAIDS and antihistamines are sold OTC. There’s no way to ensure one group does or does not take these meds. As Ed mentioned it would be interesting to study and I’d also be curious to see how the trial would be set up (if it ever happens). 🤔

]]> 88445747a4a56544fc3e9cef303fcef6 Christinad started the topic Antihistamines can influence immunotherapy response? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/antihistamines-can-influence-immunotherapy-response/ Wed, 24 Nov 2021 19:54:16 -0500 https://apple.news/AY_CyXfMDRPqv0XH3RgNKiQ

I saw this on the news today and found it interesting, so I thought I would share and get others thoughts or opinions on this topic.

]]> 20117c3a5b7f5afaf8a5c5f76e1ea50a Christinad replied to the topic Anyone have an occasional glass of wine while on treatment? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-an-occasional-glass-of-wine-while-on-treatment/#post-276018 Tue, 23 Nov 2021 05:55:52 -0500 Thank you both for your responses. I did have one glass of wine (just one) and it was nice. I made sure to get my labs drawn this morning to prepare for my upcoming infusion Saturday and liver function was normal which helped make my decision to go ahead and indulge for this special occasion and it was wonderful.

]]> a693bc2932209186b23fdc4347b9427d Christinad started the topic Anyone have an occasional glass of wine while on treatment? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-an-occasional-glass-of-wine-while-on-treatment/ Mon, 22 Nov 2021 18:57:10 -0500 Hi All,

I have not had any alcohol since starting immunotherapy in May, but am going to dinner tonight with my husband to celebrate our anniversary and am considering having one glass of red wine. My oncologist said a glass of wine is okay but for some reason I’m still hesitant to drink it. Anyone have an occasional glass of wine while on treatment?

]]> 2b02d8d6cb50211b2faab7c7dd47b361 Christinad replied to the topic More vitiligo….yay!!! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/more-vitiligo-yay/#post-275990 Tue, 16 Nov 2021 21:13:04 -0500 Thank you all for your encouragement and support.

]]> fd262416ad425c922dddb8e95ce1c3b2 Christinad replied to the topic More vitiligo….yay!!! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/more-vitiligo-yay/#post-275989 Tue, 16 Nov 2021 21:12:29 -0500 Thank you for sharing the research reports. Very encouraging   A lighter shade of pale applies to me too LOL. Pale and proud 😊. It is awesome you’re a patient of Dr. Webber. I’ve watched some of his videos. Seems like an incredible man. Thank you for paving the way for the rest of us.

]]> e6feee1f4e01af19ac7d429af63ed124 Christinad replied to the topic More vitiligo….yay!!! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/more-vitiligo-yay/#post-275988 Tue, 16 Nov 2021 21:09:12 -0500 Bob Marley is the artist and he died of melanoma. I did not know that until I looked it up.

]]> 5abb27f9d7e8b3458483f5d433d0979f Christinad started the topic More vitiligo….yay!!! in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/more-vitiligo-yay/ Fri, 12 Nov 2021 21:38:43 -0500 I noticed my eye lashes and eyebrows turning white a while back. I now have vitiligo on my hands, arms, chest, abdomen and back….whooohoo! Is it noticeable, yes! Do people point out my lashes and brows, yep!! Does it bother me, absolutely not! I’m wearing it proud and praying in my case it’s a good prognostic sign. My Onc says it is, but we know…Read more

]]> f601f940465e1a57ba6bf2c3cfada0df Christinad replied to the topic 35 Year Old with Stage IV Melanoma in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/35-year-old-with-stage-iv-melanoma/#post-275946 Mon, 08 Nov 2021 01:02:56 -0500 Hi Grace,

I was stage 3 for 6 1/2 years and diagnosed with stage 4 the end of May.  I am BRAF negative and started immunotherapy (ipi/nivo) the end of May.  Like you, I have tumors in many locations and was symptomatic when diagnosed. I had significant side effects to the 4 combo doses of immunotherapy but am doing much better now that I’m on the…Read more

]]> 84412b79a1f6827d7f95025490bad49b Christinad replied to the topic Update Stage 4 in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/update-stage-4/#post-275932 Fri, 05 Nov 2021 00:34:20 -0400 Great news! I’m happy for you and am glad your side effects are manageable.

]]> e729b625cbd85b4f27103bb4e479a240 Christinad replied to the topic Brain met stats are so horrific (>3) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-met-stats-are-so-horrific-3/#post-275931 Fri, 05 Nov 2021 00:31:51 -0400 Jenn, sending good vibes your way for good news on your upcoming scan. Hang in there.

]]> 2fe656ed0636717dff0b6e6bf8111f99 Christinad replied to the topic Brain met stats are so horrific (>3) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-met-stats-are-so-horrific-3/#post-275930 Fri, 05 Nov 2021 00:29:37 -0400 Hi Kathy,
I’m sorry you’re going through a hard time. I don’t have stats to share nor do I have brain mets, but I do have a large tumor burden in multiple places and am currently on the ipi/nivo regimen. This sure is a tough road with hard days which I can relate to. Please don’t give up! Sending you big hugs from CA. Keep fighting a good fight!…Read more

]]> f6985beabb02294151133a781742b9c3 Christinad replied to the topic Stomach Mets in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stomach-mets-2/#post-275891 Thu, 28 Oct 2021 03:57:12 -0400 I meant to say “I’m” not mom.  Autocorrect gets me every time:)

]]> 96950a412de517956a883d15d1c1f646 Christinad replied to the topic Stomach Mets in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/stomach-mets-2/#post-275888 Thu, 28 Oct 2021 01:12:32 -0400 Hi Amanda,

mom happy to hear your results are looking good! That’s great! Sorry you’re not feeling well with stomach issues. Have you tried eating a soft diet? Things like oatmeal, cream of wheat, mashed potatoes, Mac n cheese, yogurt etc. I don’t have a stomach net but have had a lot of stomach issues since starting immunotherapy and am down…Read more

]]> 750ab964fd980704a68bbe33967ee3bf Christinad replied to the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275875 Wed, 27 Oct 2021 03:18:24 -0400 Thank you Mark! Like you I normally wouldn’t ask for help but I finally did. My Oncologist is very patient with me. He prescribed a medication to help and also referred me to a psychiatrist who specializes in oncology and only sees oncology patients. Hopefully this helps.
I’m glad you’re able to sit through meetings now. That’s a step in the rig…Read more

]]> 40c1d0502fb6b67707e846401e9f90ba Christinad replied to the topic Recurrence after 8 years - treatment options? in the forum Cutaneous Melanoma Community https://forum.melanoma.org/forums/topic/recurrence-after-8-years-treatment-options/#post-275871 Tue, 26 Oct 2021 15:11:22 -0400 Arlene, sorry you are dealing with this again! Try to stay positive and string. You got this!

]]> 4d168f90712f70e3c62b8e31d9b41ce5 Christinad replied to the topic Forum activity has virtually ceased and MRF does not seem to care in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/forum-activity-has-virtually-ceased-and-mrf-does-not-seem-to-care/#post-275869 Tue, 26 Oct 2021 06:08:16 -0400 I found this forum in 2014 when I was diagnosed with stage III. I didn’t post much back then or reply to posts but I read everyone else’s posts or searched for specific things I was personally interested in. I relied on this forum a lot for information related to my diagnosis. At that time it seemed like there were many more people on the sit…Read more

]]> 95b6df9bf7ca2c1be8aa27379845e551 Christinad replied to the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275868 Tue, 26 Oct 2021 06:00:28 -0400 Thank you all for your responses. I saw my oncologist today and told him I need help with anxiety and depression because I was feeling overwhelmed with all of this. Reading all of the posts gives makes me hopeful.  I have a lot to be thankful for and I need to remind myself of that.

]]> d306cb3f62271bc3ecaa1857565c7b86 Christinad replied to the topic Proton Pump Inhibitors - decrease efficacy of immunotherapy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/proton-pump-inhibitors-decrease-efficacy-of-immunotherapy/#post-275846 Wed, 13 Oct 2021 02:10:57 -0400 Hi Ed,

Thank you for sharing the articles. I will read them both. I know you’ve suffered quite a bit from reflux. I thought of you when I read my PET scan report and it showed intense FDG activity and wall thickening of the stomach, but the radiologist said favorable for “gastritis”.  I didn’t know gastritis shows on a PET scan. I thought…Read more

]]> 71048793fbb54046f9a1991e1f5d849f Christinad started the topic Proton Pump Inhibitors - decrease efficacy of immunotherapy? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/proton-pump-inhibitors-decrease-efficacy-of-immunotherapy/ Wed, 13 Oct 2021 00:58:25 -0400 Hi All,

I’m taking 2 Prilosec (PPI) and 2 Pepcid (H2blocker) in the evening to help manage gastritis/reflux. Some studies suggest the use of a PPI can lower the efficacy of immunotherapy. Anyone else have insight on this?

Celeste, have you read any reliable article that supports this theory?

]]> 5858258a529367cfbd3a985f681bf57c Christinad replied to the topic WLE / SLNB - what to expect? in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/wle-slnb-what-to-expect/#post-275834 Mon, 11 Oct 2021 12:43:56 -0400 Hi JD_NY,

I’m sorry you and your husband are going down this road. I had a WLE and SNB done about 7 years ago. What I remember most in terms of pain is the injections under the skin to locate the SNB. I feels like a sting or burn but is gone quickly. I think I had 4 injections. Pain associated with the WLE probably depends on the location and s…Read more

]]> d785f6d0260a79031518412830782eb7 Christinad replied to the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275821 Sun, 10 Oct 2021 04:57:11 -0400 What a great feeling it must be to have your last oncology visit and scans. Way to fight the fight! I’m very happy for you! Enjoy your success!

]]> 4e284db9983adc6490516333d48c83fa Christinad replied to the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275816 Fri, 08 Oct 2021 21:48:22 -0400 <p style=”text-align: left;”>John, Can I ask how long it took before you became NED?  Since you were on the clinical trial quite some time ago I’m assuming your infusion schedule and dosing was different than mine. How long were you on the ipi/nivo? Did you start with the combo and finish with nivo for the rest of your treatment?</p>

]]> 73fe67c0c30fb52b859e7ca1528b63f6 Christinad replied to the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/#post-275815 Fri, 08 Oct 2021 21:36:12 -0400 Thank you for sharing! Reading your response has me in tears and has given me hope! Congratulations on 9 years NED.

]]> 6f8c62e6a461697c8f09e33bada6fa37 Christinad replied to the topic I got my first scan result today after completing four doses of ipi/nivo in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-got-my-first-scan-result-today-after-completing-four-doses-of-ipi-nivo/#post-275813 Fri, 08 Oct 2021 21:12:50 -0400 Thank you everyone 🙂

]]> 2ac4e54577d1d061c17f78fc65621a0e Christinad started the topic Anyone have large tumor burden that is now NED in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/anyone-have-large-tumor-burden-that-is-now-ned/ Fri, 08 Oct 2021 17:58:48 -0400 My Oncologist said I’m responding well to immunotherapy but I look at my PET scan result and get discouraged because I have so many areas of tumor burden. I’m thankful the PET scan showed all areas are shrinking but wonder how realistic is that the immunotherapy will get rid of all of it. My Oncologist said he’s seen worse so I’m trying to stay op…Read more

]]> 73fcfa1d714e087877f725f1d4d242f6 Christinad started the topic I got my first scan result today after completing four doses of ipi/nivo in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/i-got-my-first-scan-result-today-after-completing-four-doses-of-ipi-nivo/ Tue, 05 Oct 2021 03:41:11 -0400 My Oncologist called me this evening and said I’m “responding beautifully” to the immunotherapy. All tumors (I have many) have decreased in size. There’s still a lot of work to be done but at least I know I’m on the right track. Of course I am hopeful and waiting patiently for the words complete response, but for now I’ll keep doing what I’m do…Read more

]]> 2f048237adbba3e4fa9033d3a291aa89 Christinad replied to the topic Brain mets found after being declared NED 3 months ago in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/brain-mets-found-after-being-declared-ned-3-months-ago/#post-275774 Sat, 02 Oct 2021 03:37:56 -0400 Hi Jenn, sorry you’ve encountered this bump in the road. Sending good vibes your way. I hope all goes well with the radiation and you are NED once again. Hang in there! ((Hugs))

]]> ee60beeae55bff763bc360ca13f147da Christinad replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275655 Thu, 09 Sep 2021 23:46:27 -0400 Hi Marilyn,

Feel free to reach out anytime. I’m certainly not an expert at this and there are others who are way more knowledgeable than I am but I will do my best to answer any questions you have that relates to my experience. This can be a lonely and scary road at times. Having this forum of people who can relate has been very helpful.

]]> fff91ca1c311652f76932f64bdecf142 Christinad replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275653 Thu, 09 Sep 2021 22:08:00 -0400 Hi Marilyn,

I hope your first combo dose went well. I pray you’ll have minimal side effects. Keeping my fingers crossed for you. I have a friend who just completed his treatment and didn’t have any side effects the whole time. That’s my wish for you 🙂

It took some trial and error of trying different nausea meds to get my nausea under contr…Read more

]]> bb6aa66ca785e9c9a190f8bfd553f025 Christinad replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275652 Thu, 09 Sep 2021 21:53:31 -0400 Hi Nick,

Since completing the combo doses I’ve only had one dose of the Nivo so far. For me the single dose was much easier and tolerable compared to the combo doses. I’m finally starting to feel better.

]]> f6a25a77ca661adf92af4aa11b093b1c Christinad replied to the topic Fatigue & lack of appetite with Nivolumab (Opdivo) and Ipilimumab (Yervoy) in the forum General Melanoma Community https://forum.melanoma.org/forums/topic/fatigue-lack-of-appetite-with-nivolumab-opdivo-and-ipilimumab-yervoy/#post-275619 Tue, 07 Sep 2021 13:59:54 -0400 Hi Nick,

Sorry to hear about your mom. I completed the four combo doses of ipi/yervoy and am now on the nivo maintenance phase. It was about the first week of the combo dose that I lost my appetite and started to experience fatigue. I also had horrible nausea and indigestion to go along with it. I’ve lost 35 pounds in a little over 2 months. My s…Read more

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