chenrydh

Kris –

I'm sorry for you've got decisions to make as it's hard enough fighting this disease then add all the treatment stress to it.  I can only speak for myself – but Yervoy (formerly IPI) has kept me here on this earth.    I've don't look at statistics, nor do my drs. share it with me as I feel the only one that truly knows when it's my time is God.  Honestly, I've been fighting this disease since late 2008 with brain mets since 2009.   I know by what I've heard that by statistics I shouldn't be here but I'm blessed to still be fighting.  I did the IPI in clinical trial and didn't have much success, did it again after it was FDA approved and it worked greatly by shrinking all tumors and not having anymore mets at this time.  I currently have melanoma in my lungs, stomach and brain.   I was taken off the Yervoy due to the fact it was destroying my immune system but I'm going to be hopefully starting it again in the next week.  Also along with the IPI I did Temodar.  My side effects were pretty standard but I will admit the rash and itching drove me crazy.    I know everyone responds differently to each treatment and you have to decide what's best for you but for me personally I say IPI (Yervoy) totally rocks.

I will keep you in my prayers that you make the right decision for you and that you continue to fight this demon and that you can get into stablization, remission or even NED.  Remember anything is possible is you just believe.

Prayers –

Chris

Kris –

I'm sorry for you've got decisions to make as it's hard enough fighting this disease then add all the treatment stress to it.  I can only speak for myself – but Yervoy (formerly IPI) has kept me here on this earth.    I've don't look at statistics, nor do my drs. share it with me as I feel the only one that truly knows when it's my time is God.  Honestly, I've been fighting this disease since late 2008 with brain mets since 2009.   I know by what I've heard that by statistics I shouldn't be here but I'm blessed to still be fighting.  I did the IPI in clinical trial and didn't have much success, did it again after it was FDA approved and it worked greatly by shrinking all tumors and not having anymore mets at this time.  I currently have melanoma in my lungs, stomach and brain.   I was taken off the Yervoy due to the fact it was destroying my immune system but I'm going to be hopefully starting it again in the next week.  Also along with the IPI I did Temodar.  My side effects were pretty standard but I will admit the rash and itching drove me crazy.    I know everyone responds differently to each treatment and you have to decide what's best for you but for me personally I say IPI (Yervoy) totally rocks.

I will keep you in my prayers that you make the right decision for you and that you continue to fight this demon and that you can get into stablization, remission or even NED.  Remember anything is possible is you just believe.

Prayers –

Chris

Kris –

I'm sorry for you've got decisions to make as it's hard enough fighting this disease then add all the treatment stress to it.  I can only speak for myself – but Yervoy (formerly IPI) has kept me here on this earth.    I've don't look at statistics, nor do my drs. share it with me as I feel the only one that truly knows when it's my time is God.  Honestly, I've been fighting this disease since late 2008 with brain mets since 2009.   I know by what I've heard that by statistics I shouldn't be here but I'm blessed to still be fighting.  I did the IPI in clinical trial and didn't have much success, did it again after it was FDA approved and it worked greatly by shrinking all tumors and not having anymore mets at this time.  I currently have melanoma in my lungs, stomach and brain.   I was taken off the Yervoy due to the fact it was destroying my immune system but I'm going to be hopefully starting it again in the next week.  Also along with the IPI I did Temodar.  My side effects were pretty standard but I will admit the rash and itching drove me crazy.    I know everyone responds differently to each treatment and you have to decide what's best for you but for me personally I say IPI (Yervoy) totally rocks.

I will keep you in my prayers that you make the right decision for you and that you continue to fight this demon and that you can get into stablization, remission or even NED.  Remember anything is possible is you just believe.

Prayers –

Chris

Kris –

I'm sorry for you've got decisions to make as it's hard enough fighting this disease then add all the treatment stress to it.  I can only speak for myself – but Yervoy (formerly IPI) has kept me here on this earth.    I've don't look at statistics, nor do my drs. share it with me as I feel the only one that truly knows when it's my time is God.  Honestly, I've been fighting this disease since late 2008 with brain mets since 2009.   I know by what I've heard that by statistics I shouldn't be here but I'm blessed to still be fighting.  I did the IPI in clinical trial and didn't have much success, did it again after it was FDA approved and it worked greatly by shrinking all tumors and not having anymore mets at this time.  I currently have melanoma in my lungs, stomach and brain.   I was taken off the Yervoy due to the fact it was destroying my immune system but I'm going to be hopefully starting it again in the next week.  Also along with the IPI I did Temodar.  My side effects were pretty standard but I will admit the rash and itching drove me crazy.    I know everyone responds differently to each treatment and you have to decide what's best for you but for me personally I say IPI (Yervoy) totally rocks.

I will keep you in my prayers that you make the right decision for you and that you continue to fight this demon and that you can get into stablization, remission or even NED.  Remember anything is possible is you just believe.

Prayers –

Chris

Hi there.  Congrats on starting the Zelboraf.  Have you had any side effects?  I did the IPI but was taken off due to the fact it was tearing my immune system up.  I've been without treatment for over a month and am to start on the Zelboraf next Mon.  Are you doing the treatment for 6 months, correct?  Scans every 2?  Not sure if it's the same for everyone or not.  May I ask when you take your pills?  When doing the IPI I was also doing Temodar due to my brain mets so I've already lost my hear which I hear is a side effect of the Zelboraf.  However, in my battle with melanoma I've learned side effects are different for everyone.  I hope and pray this works for you and for all who are going to be on it. 

God bless –

Chris

Hi there.  Congrats on starting the Zelboraf.  Have you had any side effects?  I did the IPI but was taken off due to the fact it was tearing my immune system up.  I've been without treatment for over a month and am to start on the Zelboraf next Mon.  Are you doing the treatment for 6 months, correct?  Scans every 2?  Not sure if it's the same for everyone or not.  May I ask when you take your pills?  When doing the IPI I was also doing Temodar due to my brain mets so I've already lost my hear which I hear is a side effect of the Zelboraf.  However, in my battle with melanoma I've learned side effects are different for everyone.  I hope and pray this works for you and for all who are going to be on it. 

God bless –

Chris

Hi there.  I'm currently doing IPI and also did the compassionate clinical trial.  My side effects have been itching, rash and very tired.  I've found out this time around (as I do my 3rd infusion on the 18th) there's more pain where tumors are located as well as swelling and soreness.  I've been told that it does take sometimes a while to work as with my compassionate trial it did show some shrinkage in the tumors while yet others grew a little.  I was very thankful when the FDA approved this drug.  I was given lots of information from my doctor's on this treatment as I'm sure you will too.  My prayers are with you and your husband.