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caro78

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      caro78
      Participant

        Hi Nahmi,

        My father too has brain mets and we are hopefully going to start the yervoy trial (blinded study of 3mg v 10mg). There seems to be a lot of side effects and I'm not really sure if this is the best path. We find out tomorrow if he will go on this. Does your dad have any symptoms? My dad also has mets in his liver and two on his lung. There doesn't seem too many paths you are able to travel with this which is such a shame. We did WHR and we aren't sure if this has been successful since its only been four weeks and they won't do a scan till after six weeks.

        If you know of anything, would love to hear about it. Any information is good as I ask as many questions as I can for my dad. My sisters and I will do anything we can to help him.

        Good luck with your dad.

        Thanks

        caro78
        Participant

          Hi Nahmi,

          My father too has brain mets and we are hopefully going to start the yervoy trial (blinded study of 3mg v 10mg). There seems to be a lot of side effects and I'm not really sure if this is the best path. We find out tomorrow if he will go on this. Does your dad have any symptoms? My dad also has mets in his liver and two on his lung. There doesn't seem too many paths you are able to travel with this which is such a shame. We did WHR and we aren't sure if this has been successful since its only been four weeks and they won't do a scan till after six weeks.

          If you know of anything, would love to hear about it. Any information is good as I ask as many questions as I can for my dad. My sisters and I will do anything we can to help him.

          Good luck with your dad.

          Thanks

          caro78
          Participant

            Hi Nahmi,

            My father too has brain mets and we are hopefully going to start the yervoy trial (blinded study of 3mg v 10mg). There seems to be a lot of side effects and I'm not really sure if this is the best path. We find out tomorrow if he will go on this. Does your dad have any symptoms? My dad also has mets in his liver and two on his lung. There doesn't seem too many paths you are able to travel with this which is such a shame. We did WHR and we aren't sure if this has been successful since its only been four weeks and they won't do a scan till after six weeks.

            If you know of anything, would love to hear about it. Any information is good as I ask as many questions as I can for my dad. My sisters and I will do anything we can to help him.

            Good luck with your dad.

            Thanks

            caro78
            Participant

              Hi Nahmi,

              Any information you could give me would be great. A contact number would be wonderful!

              Its such a terrible disease and so heartbreaking to watch loved ones go through. But I guess, we have to believe that everything happens for a reason and if they believe that they can fight this, then hopefully that will help them get through it. It has brought our family much closer and my dad has been so great.

              I just want him to keep fighting and if anything can help him continue on for however long, then we will give it it a go. He has never been sick a day in his life and still looks great (minus his hair from WBR) but gets frustrated from being tired and short of breath.

              Thanks Nahmi. Its nice to be able to talk to someone going through the same thing.

              Caro 🙂

              caro78
              Participant

                Hi Nahmi,

                Any information you could give me would be great. A contact number would be wonderful!

                Its such a terrible disease and so heartbreaking to watch loved ones go through. But I guess, we have to believe that everything happens for a reason and if they believe that they can fight this, then hopefully that will help them get through it. It has brought our family much closer and my dad has been so great.

                I just want him to keep fighting and if anything can help him continue on for however long, then we will give it it a go. He has never been sick a day in his life and still looks great (minus his hair from WBR) but gets frustrated from being tired and short of breath.

                Thanks Nahmi. Its nice to be able to talk to someone going through the same thing.

                Caro 🙂

                caro78
                Participant

                  Hi Nahmi,

                  Any information you could give me would be great. A contact number would be wonderful!

                  Its such a terrible disease and so heartbreaking to watch loved ones go through. But I guess, we have to believe that everything happens for a reason and if they believe that they can fight this, then hopefully that will help them get through it. It has brought our family much closer and my dad has been so great.

                  I just want him to keep fighting and if anything can help him continue on for however long, then we will give it it a go. He has never been sick a day in his life and still looks great (minus his hair from WBR) but gets frustrated from being tired and short of breath.

                  Thanks Nahmi. Its nice to be able to talk to someone going through the same thing.

                  Caro 🙂

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