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J

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      J
      Participant
        I started  on braf/ mek I took it for two weeks it was too much I took two weeks off and then I started taking 2/3 dosage it’s not as bad but I’m just unmotivated to do anything and I lost 50% of my energy. I’ve been on it now for eight weeks at a 2/3 dose. I hope I get a break from it soon.
        what did you decide to do in the last two weeks?
        J
        Participant
          I did a gym rat for 30 years tried everything under the sun been  Yogi for the last 10 years. Cancer don’t care. I’m still trying to figure out how to do this for real. So far the best answer I have is the Tom Brady diet because I ain’t going vegan
          J
          Participant
            Jen,

             

            i’ve already been through two melanomas surgeries but these are in my organs and I think they’re scared  of surgery so like they’d rather break them up did you try the 2/3 dosage on the Combo before quitting and advancing the surgery. I’m not sure surgeries in my cars because of where my tumors are located my liver and pancreas but yet they continue to grow the first two amino therapy side effects weren’t that bad but this one damn I got older month. They tell me the other options have worst side effects I did take 10 days off before continuing on the drug combo doctors weren’t happy about that. But my stomach pain advance significantly so I got back on it at a 2/3 dosage. Do people in this forum eat a high alkaline anti-inflammatory diet or do you guys just like eat normal. I’ve been eating ridiculously high fiber to fix the constipation against my doctors order who’s wants me to take laxatives.
            I have read a lot of people can’t take it. I said it’s been a month but I did skip 10 days in the middle. I will ask about surgery when I see them next in a week

             

             

            J
            Participant
              So I’ve been on the combination. For about a month. I failed my first two treatments. Side effects sucked dropped to 2/3 dose. I’m half as strong as I used to be a month ago. I don’t know how long I’ll stay on it.

              Doc took me off of immunotherapy last year. Because I told him I had Covid a month earlier so he pulled me off and six months later tumors were in my organs. Did second round mutated tumors. Now I’m trying three with the side effects of the worst and they say that if I go to the other side I got the next one side effects get even worse.
              guess I can just be 50% healthy with my diet anymore probably gonna have to go up.
              I’m just pissed the Burning man is canceled this year. Don’t know if I can make it next year.

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