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Aoife

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      Aoife
      Participant

        Hi there, 

        I'm new to this site but I just wanted to add my experience with the ketogenic diet and ocular melanoma. 

        In August 2012 I was diagnosed with Stage 4 ocular melanoma in my liver and spine. I immediately changed my diet to clean, organic, and non-processed. I had IPI, dacarbazine and TACE and none of these treatments worked. 

        In July 2013 I switched to the ketogenic diet. I had a scan immediately before starting, and then another scan 6 weeks later. All my smaller liver tumours had stopped growing. The largest one had changed shape dramatically. This was in a period when I had no other treatments, and all previous treatments had been deemed ineffective. 

        I have been having various treatments for the past two years, most recently chemosaturation (Delcath) in Southampton. I was told in Southampton by the oncology professor that my disease is very unusual in that it is very slow growing, and that for me, this ketogenic diet must be having an impact. The ketogenic diet, I feel, kept my disease stable long enough for me to be able to have the chemosaturation in Southampton. 

        I am awaiting scan results after my second chemosaturation, but they said that my results after the first chemosaturation (average 20% decrease in all liver tumours), was the best they have seen for such a large tumour. I believe this may partly be due to my ketogenic diet. 

        I think that all ocular melanoma patients should at least try the ketogenic diet and see what effects it has for them. I believe I would not be alive right now were it not for the combined effects of my ketogenic diet and some excellent new treatments. The ketogenic diet really should be embarked upon under the guidance of a specialist nutritionist who deals with the ketogenic diet. 

        Best wishes.

        Aoife
        Participant

          Hi there, 

          I'm new to this site but I just wanted to add my experience with the ketogenic diet and ocular melanoma. 

          In August 2012 I was diagnosed with Stage 4 ocular melanoma in my liver and spine. I immediately changed my diet to clean, organic, and non-processed. I had IPI, dacarbazine and TACE and none of these treatments worked. 

          In July 2013 I switched to the ketogenic diet. I had a scan immediately before starting, and then another scan 6 weeks later. All my smaller liver tumours had stopped growing. The largest one had changed shape dramatically. This was in a period when I had no other treatments, and all previous treatments had been deemed ineffective. 

          I have been having various treatments for the past two years, most recently chemosaturation (Delcath) in Southampton. I was told in Southampton by the oncology professor that my disease is very unusual in that it is very slow growing, and that for me, this ketogenic diet must be having an impact. The ketogenic diet, I feel, kept my disease stable long enough for me to be able to have the chemosaturation in Southampton. 

          I am awaiting scan results after my second chemosaturation, but they said that my results after the first chemosaturation (average 20% decrease in all liver tumours), was the best they have seen for such a large tumour. I believe this may partly be due to my ketogenic diet. 

          I think that all ocular melanoma patients should at least try the ketogenic diet and see what effects it has for them. I believe I would not be alive right now were it not for the combined effects of my ketogenic diet and some excellent new treatments. The ketogenic diet really should be embarked upon under the guidance of a specialist nutritionist who deals with the ketogenic diet. 

          Best wishes.

          Aoife
          Participant

            Hi there, 

            I'm new to this site but I just wanted to add my experience with the ketogenic diet and ocular melanoma. 

            In August 2012 I was diagnosed with Stage 4 ocular melanoma in my liver and spine. I immediately changed my diet to clean, organic, and non-processed. I had IPI, dacarbazine and TACE and none of these treatments worked. 

            In July 2013 I switched to the ketogenic diet. I had a scan immediately before starting, and then another scan 6 weeks later. All my smaller liver tumours had stopped growing. The largest one had changed shape dramatically. This was in a period when I had no other treatments, and all previous treatments had been deemed ineffective. 

            I have been having various treatments for the past two years, most recently chemosaturation (Delcath) in Southampton. I was told in Southampton by the oncology professor that my disease is very unusual in that it is very slow growing, and that for me, this ketogenic diet must be having an impact. The ketogenic diet, I feel, kept my disease stable long enough for me to be able to have the chemosaturation in Southampton. 

            I am awaiting scan results after my second chemosaturation, but they said that my results after the first chemosaturation (average 20% decrease in all liver tumours), was the best they have seen for such a large tumour. I believe this may partly be due to my ketogenic diet. 

            I think that all ocular melanoma patients should at least try the ketogenic diet and see what effects it has for them. I believe I would not be alive right now were it not for the combined effects of my ketogenic diet and some excellent new treatments. The ketogenic diet really should be embarked upon under the guidance of a specialist nutritionist who deals with the ketogenic diet. 

            Best wishes.

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