AmandaLivingston

Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

http://faculty.mdanderson.org/Sapna_Patel/

We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

Hang in there.

Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

http://faculty.mdanderson.org/Sapna_Patel/

We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

Hang in there.

Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

http://faculty.mdanderson.org/Sapna_Patel/

We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

Hang in there.