AmandaLivingston
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AmandaLivingston

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      • November 20, 2015 at 9:35 pm
      AmandaLivingston
      Participant

      Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

      http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

      My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

       

      He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

       

      http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

      We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

      http://faculty.mdanderson.org/Sapna_Patel/

      We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

       

      Hang in there.

      • November 20, 2015 at 9:35 pm
      AmandaLivingston
      Participant

      Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

      http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

      My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

       

      He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

       

      http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

      We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

      http://faculty.mdanderson.org/Sapna_Patel/

      We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

       

      Hang in there.

      • November 20, 2015 at 9:35 pm
      AmandaLivingston
      Participant

      Please don't lost hope – my husband is stage IV and has liver mets (GNAQ postivie) as well and we know how stubborn those guys can be. We've been to hosptials all across the country and are leaving for UPMC in Pittsburgh for him to have a Isolate Hepatic Perfusion surgery on December 7. Google it. Dr. Pingpank is the only one who does it and he will review your scans remotely so you don't have to travel just for a consult. 

      http://www.upmc.com/media/experts/Pages/james-f-pingpank.aspx

      My husband is at 50% disease in his liver and we've been told by a number of docs at UCSF, MD Anderson, NCI that this is his best option.

       

      He also just heard about this Celldex therapy clinical trial out of LA (Dr. Hamid) that is showing promise in the liver. We're investigating this as we speak so don't have a ton more info. They are also doing the trial out of St. Mary's hospital in San Francisco. 

       

      http://www.theangelesclinic.org/Home/MeetOurTeam/Doctors/tabid/19273/Default.aspx

      We've also been in touch with Dr. Sapna Patel at MD Anderson and she has a clinical trial that's shown promise in the liver and is accepting patients.

      http://faculty.mdanderson.org/Sapna_Patel/

      We're investigating this all fast and furiously so I wish I had more data to share with you but look into these! 

       

      Hang in there.

      • February 20, 2015 at 3:39 am
      AmandaLivingston
      Participant

      Thanks for responding! I'm so sorry to hear about your wife – your message really made me realize that the time to do this is now because you just never know what's around the corner. I'll be sure to report back once we're on the other side.

      • February 20, 2015 at 3:39 am
      AmandaLivingston
      Participant

      Thanks for responding! I'm so sorry to hear about your wife – your message really made me realize that the time to do this is now because you just never know what's around the corner. I'll be sure to report back once we're on the other side.

      • February 20, 2015 at 3:39 am
      AmandaLivingston
      Participant

      Thanks for responding! I'm so sorry to hear about your wife – your message really made me realize that the time to do this is now because you just never know what's around the corner. I'll be sure to report back once we're on the other side.

      • February 20, 2015 at 3:37 am
      AmandaLivingston
      Participant

      Thanks for responding – that's such great news that he's stable and feeling great! We just booked all our travel so we'll be out there the first week of March. I'll report back!

      • February 20, 2015 at 3:37 am
      AmandaLivingston
      Participant

      Thanks for responding – that's such great news that he's stable and feeling great! We just booked all our travel so we'll be out there the first week of March. I'll report back!

      • February 20, 2015 at 3:37 am
      AmandaLivingston
      Participant

      Thanks for responding – that's such great news that he's stable and feeling great! We just booked all our travel so we'll be out there the first week of March. I'll report back!

      • February 20, 2015 at 3:35 am
      AmandaLivingston
      Participant

      Wow! That's great about the Keytruda combo. He's been on keytruda for 7 months so we're hoping that will give him a boost too so I'll be sure to report back results. Thank you for responding!

      • February 20, 2015 at 3:35 am
      AmandaLivingston
      Participant

      Wow! That's great about the Keytruda combo. He's been on keytruda for 7 months so we're hoping that will give him a boost too so I'll be sure to report back results. Thank you for responding!

      • February 20, 2015 at 3:35 am
      AmandaLivingston
      Participant

      Wow! That's great about the Keytruda combo. He's been on keytruda for 7 months so we're hoping that will give him a boost too so I'll be sure to report back results. Thank you for responding!

      • February 17, 2015 at 12:18 am
      AmandaLivingston
      Participant

      I didn't even think about YouTube thanks for the recommendation – watching it now!

      • February 17, 2015 at 12:18 am
      AmandaLivingston
      Participant

      I didn't even think about YouTube thanks for the recommendation – watching it now!

      • February 17, 2015 at 12:18 am
      AmandaLivingston
      Participant

      I didn't even think about YouTube thanks for the recommendation – watching it now!

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