The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

aliersk

Forum Replies Created

Viewing 1 reply thread
  • Replies
      aliersk
      Participant

      An MRI will be more accurate.  My husband had bone mets to the spinal vertebrae T8-12 which he received radiation for – this didn't affect his mobility too much but he was in constant pain.  He then had spinal compression to the T3 which affected his mobility and he lost use of his legs, bowel and bladder.

      CT did show up the mets on his vertebrae but it did not show the other smaller spots.  If she is well enough I would recommend MRI so she can get started on pallative radiation – it did help my husband.

      aliersk
      Participant

      An MRI will be more accurate.  My husband had bone mets to the spinal vertebrae T8-12 which he received radiation for – this didn't affect his mobility too much but he was in constant pain.  He then had spinal compression to the T3 which affected his mobility and he lost use of his legs, bowel and bladder.

      CT did show up the mets on his vertebrae but it did not show the other smaller spots.  If she is well enough I would recommend MRI so she can get started on pallative radiation – it did help my husband.

      aliersk
      Participant

      An MRI will be more accurate.  My husband had bone mets to the spinal vertebrae T8-12 which he received radiation for – this didn't affect his mobility too much but he was in constant pain.  He then had spinal compression to the T3 which affected his mobility and he lost use of his legs, bowel and bladder.

      CT did show up the mets on his vertebrae but it did not show the other smaller spots.  If she is well enough I would recommend MRI so she can get started on pallative radiation – it did help my husband.

      aliersk
      Participant
      This is not a scam and I am not asking for people to send money. I’m not even sure if this can be posted but i’m willing to give it a shot to help someone in need.

      My husband was supposed to start PD1 with Dr Hamid in LA and was asked to bring this drug as he would be randomized and then would receive treatment on the same visit. He turned up and didn’t qualify due to a severe drop in hemoglobin and platelets. We were stuck in LA for a week leaving our 20 month old son with my mother in Canada. We eventually returned and my husband was admitted to hospital again and never came out – he went down hill so fast.

      He had mets to lungs, liver, bone – rib and spinal vertabre and during last 3 weeks lost mobility due to spinal compression to T3. He already had radiation to T8-T12.

      His medical team sadly saw no hope for him even before the spine/bone involvement but he fought and believed to the very end.

      This is a terrifying illness and only since my husband’s job passing that I have found out my friends and family know scores of people who have died of it.

      I have read this board for a long time but never posted as was too scared to be told the reality of my husbands situation.

      We have already donated 1 IPI to our local hospital since he could not tolerate the drug.

      aliersk
      Participant
      This is not a scam and I am not asking for people to send money. I’m not even sure if this can be posted but i’m willing to give it a shot to help someone in need.

      My husband was supposed to start PD1 with Dr Hamid in LA and was asked to bring this drug as he would be randomized and then would receive treatment on the same visit. He turned up and didn’t qualify due to a severe drop in hemoglobin and platelets. We were stuck in LA for a week leaving our 20 month old son with my mother in Canada. We eventually returned and my husband was admitted to hospital again and never came out – he went down hill so fast.

      He had mets to lungs, liver, bone – rib and spinal vertabre and during last 3 weeks lost mobility due to spinal compression to T3. He already had radiation to T8-T12.

      His medical team sadly saw no hope for him even before the spine/bone involvement but he fought and believed to the very end.

      This is a terrifying illness and only since my husband’s job passing that I have found out my friends and family know scores of people who have died of it.

      I have read this board for a long time but never posted as was too scared to be told the reality of my husbands situation.

      We have already donated 1 IPI to our local hospital since he could not tolerate the drug.

      aliersk
      Participant
      This is not a scam and I am not asking for people to send money. I’m not even sure if this can be posted but i’m willing to give it a shot to help someone in need.

      My husband was supposed to start PD1 with Dr Hamid in LA and was asked to bring this drug as he would be randomized and then would receive treatment on the same visit. He turned up and didn’t qualify due to a severe drop in hemoglobin and platelets. We were stuck in LA for a week leaving our 20 month old son with my mother in Canada. We eventually returned and my husband was admitted to hospital again and never came out – he went down hill so fast.

      He had mets to lungs, liver, bone – rib and spinal vertabre and during last 3 weeks lost mobility due to spinal compression to T3. He already had radiation to T8-T12.

      His medical team sadly saw no hope for him even before the spine/bone involvement but he fought and believed to the very end.

      This is a terrifying illness and only since my husband’s job passing that I have found out my friends and family know scores of people who have died of it.

      I have read this board for a long time but never posted as was too scared to be told the reality of my husbands situation.

      We have already donated 1 IPI to our local hospital since he could not tolerate the drug.

Viewing 1 reply thread
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.