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      • April 15, 2012 at 8:27 pm
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      Participant

        Sara,

         

        Thanks you also for the link!

        Ashley

        • April 15, 2012 at 8:27 pm
        abrown
        Participant

          Sara,

           

          Thanks you also for the link!

          Ashley

          • April 15, 2012 at 8:27 pm
          abrown
          Participant

            Sara,

             

            Thanks you also for the link!

            Ashley

            • April 15, 2012 at 8:25 pm
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            Participant

              Paul,

               

              Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

              However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

              Thanks againg,

              Ashley

              • April 15, 2012 at 8:25 pm
              abrown
              Participant

                Paul,

                 

                Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

                However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

                Thanks againg,

                Ashley

                • April 15, 2012 at 8:25 pm
                abrown
                Participant

                  Paul,

                   

                  Thanks for all the information.  I will definitely check out the list serv you linked.  My ocular oncologist does do the genetic testing.  I have heard his name mentioned a few different times on the other bulliten boards that I am a member of, and so far I have heard a lot of positive things about him.

                  However, I have already found that I have to be my own advocate.  This has been a challenge for me and I am continuing to work on it.  I appreciate every piece of advice or information that everyone has given me.  There was so much not told to me during my appointments that I would have never known if I hadn't joined websites like this and asked questions from people going through the same situations. 

                  Thanks againg,

                  Ashley

                  • April 7, 2012 at 4:20 pm
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                  Participant

                    Thank you Esther! I appreciate it.

                    Ashley

                    • April 7, 2012 at 4:20 pm
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                    Participant

                      Thank you Esther! I appreciate it.

                      Ashley

                      • April 7, 2012 at 4:20 pm
                      abrown
                      Participant

                        Thank you Esther! I appreciate it.

                        Ashley

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