Zelboraf working-BRAF V600D
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Zelboraf working-BRAF V600D

› Forums › General Melanoma Community › Zelboraf working-BRAF V600D

  • Post
    • June 27, 2012 at 12:45 pm
    awillett1991
    Participant
    I feel like the last unicorn being a BRAF V600D but I’m posting this in the hopes it can help someone else. I can’t be the only one. Despite there being no data available on its efficacy, Dr Sosman believed that Zelboraf would work on my tumor. I started 4-17 and was on and off for the horrid rash, then joint pain. I also suffer through the other many nasty side effects like so many people. I have been steady on 3 pills 2 times a day for 9 weeks or so. In April I had a cardiac met measuring 24x25mm and yesterday It measured 18x16mm.

    I feel like the last unicorn being a BRAF V600D but I’m posting this in the hopes it can help someone else. I can’t be the only one. Despite there being no data available on its efficacy, Dr Sosman believed that Zelboraf would work on my tumor. I started 4-17 and was on and off for the horrid rash, then joint pain. I also suffer through the other many nasty side effects like so many people. I have been steady on 3 pills 2 times a day for 9 weeks or so. In April I had a cardiac met measuring 24x25mm and yesterday It measured 18x16mm. It’s working and we are rejoicing for however long it lasts.

Viewing 14 reply threads
  • Replies
      • June 27, 2012 at 1:13 pm
      Gene_S
      Participant

      Great news keep celebrating and keep beating this monster.

      Judy

      • June 27, 2012 at 1:13 pm
      Gene_S
      Participant

      Great news keep celebrating and keep beating this monster.

      Judy

      • June 27, 2012 at 1:13 pm
      Gene_S
      Participant

      Great news keep celebrating and keep beating this monster.

      Judy

      • June 27, 2012 at 4:14 pm
      Tina D
      Participant

      Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

      • June 27, 2012 at 4:14 pm
      Tina D
      Participant

      Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

      • June 27, 2012 at 4:14 pm
      Tina D
      Participant

      Wonderful news! So glad you are getting good reports! Thank you for posting these encouraging results…

      • June 27, 2012 at 4:28 pm
      Richard_K
      Participant

      Great to hear, thanks for sharing.

      Dick

      • June 27, 2012 at 4:28 pm
      Richard_K
      Participant

      Great to hear, thanks for sharing.

      Dick

      • June 27, 2012 at 4:28 pm
      Richard_K
      Participant

      Great to hear, thanks for sharing.

      Dick

      • June 27, 2012 at 7:03 pm
      JerryfromFauq
      Participant

      Great!

      • June 27, 2012 at 7:03 pm
      JerryfromFauq
      Participant

      Great!

      • June 27, 2012 at 7:03 pm
      JerryfromFauq
      Participant

      Great!

      • June 28, 2012 at 10:43 am
      aldakota22
      Participant

      Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

      • June 28, 2012 at 10:43 am
      aldakota22
      Participant

      Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

      • June 28, 2012 at 10:43 am
      aldakota22
      Participant

      Great positive post.Will keep you in my prayers for contiued success.All the best.  Al

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