zelboraf help

My advise is to stay on full dose until you talk to your doc as soon as possible. "Z" side affects are sometimes extreme.Read some of the posts and you see there is no normal with"Z".Usually they lessen with time or change to even different symptoms.Check with your drug supplier for usually they have a contact phone#  with a pharmisit who  is on call that may answer questions you have.Stay tough for tonite. Beat the Beast.     Al

My advise is to stay on full dose until you talk to your doc as soon as possible. "Z" side affects are sometimes extreme.Read some of the posts and you see there is no normal with"Z".Usually they lessen with time or change to even different symptoms.Check with your drug supplier for usually they have a contact phone#  with a pharmisit who  is on call that may answer questions you have.Stay tough for tonite. Beat the Beast.     Al

My advise is to stay on full dose until you talk to your doc as soon as possible. "Z" side affects are sometimes extreme.Read some of the posts and you see there is no normal with"Z".Usually they lessen with time or change to even different symptoms.Check with your drug supplier for usually they have a contact phone#  with a pharmisit who  is on call that may answer questions you have.Stay tough for tonite. Beat the Beast.     Al

http://www.zelboraf.com/patient/support/partners

Good luck.

http://www.zelboraf.com/patient/support/partners

Good luck.

http://www.zelboraf.com/patient/support/partners

Good luck.

You definitely dont want to change dose without talking with/seeing your Dr first. But, like was said, the side effects can ramp up quickly, so you want to be sure to keep them apprised. I started with a rash on full dose that in a matter of days became rather astonishing. But, other times mild symptoms stayed in check. Most important thing on the Zelboraf is to be very sure to keep your Dr updated on any changes. Some Drs have not had many pts on Zelboraf and may not be as familiar with the side effects ( I was my Drs only pt on it) so the genentech line may be helpful in that event. For itching I found that tepid oatmeal baths offered fair relief.

Tina

You definitely dont want to change dose without talking with/seeing your Dr first. But, like was said, the side effects can ramp up quickly, so you want to be sure to keep them apprised. I started with a rash on full dose that in a matter of days became rather astonishing. But, other times mild symptoms stayed in check. Most important thing on the Zelboraf is to be very sure to keep your Dr updated on any changes. Some Drs have not had many pts on Zelboraf and may not be as familiar with the side effects ( I was my Drs only pt on it) so the genentech line may be helpful in that event. For itching I found that tepid oatmeal baths offered fair relief.

Tina

You definitely dont want to change dose without talking with/seeing your Dr first. But, like was said, the side effects can ramp up quickly, so you want to be sure to keep them apprised. I started with a rash on full dose that in a matter of days became rather astonishing. But, other times mild symptoms stayed in check. Most important thing on the Zelboraf is to be very sure to keep your Dr updated on any changes. Some Drs have not had many pts on Zelboraf and may not be as familiar with the side effects ( I was my Drs only pt on it) so the genentech line may be helpful in that event. For itching I found that tepid oatmeal baths offered fair relief.

Tina

I'm not a doctor, but I believe a white tongue is often indicative of thrush, a yeast infection. You probably are already doing this, but just in case, please be sure to check all drug interactions before taking anything for the thrush.  I can't remember where I saw it on this forum, but I know I read where someone took a drug for thrush and had terrible effects from its interaction with the Zelboraf. If you can have all prescriptions filled at the same pharmacy and make sure that the pharmacists is checking this out for you, it would be wise.  Sometimes even the oncology experts miss this type of problem.

I'm not a doctor, but I believe a white tongue is often indicative of thrush, a yeast infection. You probably are already doing this, but just in case, please be sure to check all drug interactions before taking anything for the thrush.  I can't remember where I saw it on this forum, but I know I read where someone took a drug for thrush and had terrible effects from its interaction with the Zelboraf. If you can have all prescriptions filled at the same pharmacy and make sure that the pharmacists is checking this out for you, it would be wise.  Sometimes even the oncology experts miss this type of problem.

I'm not a doctor, but I believe a white tongue is often indicative of thrush, a yeast infection. You probably are already doing this, but just in case, please be sure to check all drug interactions before taking anything for the thrush.  I can't remember where I saw it on this forum, but I know I read where someone took a drug for thrush and had terrible effects from its interaction with the Zelboraf. If you can have all prescriptions filled at the same pharmacy and make sure that the pharmacists is checking this out for you, it would be wise.  Sometimes even the oncology experts miss this type of problem.

I hope and expect that both you and your wife know that when you are taking Zelboraf you MUST stay out of the sun! Zelboraf makes your skin extremely sensitive and you can get a severe sunburn in 5 minutes even when using sunscreen. 

Do not skip doses or change your intake of the pills. As far as your doc goes, if possibe you should switch to someone that is easy to reach, as they should be closly monitoring you.

It is normal to break out in a rash on Z and you must avoid exposure to the sun at all costs. If symptoms get worse go to the er asap. 

With a lot of these new drugs, dry mouth is common and biotiene is suggested to keep your mouth moist, and as previouslty mentioned in a comment above, thrush is possible so you may want to consult your general physician for that not your oncologist, but do tell your onc about that side effect.

You're in my prayers!

Lilith Elmore

Freshman at Eastern University, Biology majoy

Do not skip doses or change your intake of the pills. As far as your doc goes, if possibe you should switch to someone that is easy to reach, as they should be closly monitoring you.

It is normal to break out in a rash on Z and you must avoid exposure to the sun at all costs. If symptoms get worse go to the er asap. 

With a lot of these new drugs, dry mouth is common and biotiene is suggested to keep your mouth moist, and as previouslty mentioned in a comment above, thrush is possible so you may want to consult your general physician for that not your oncologist, but do tell your onc about that side effect.

You're in my prayers!

Lilith Elmore

Freshman at Eastern University, Biology majoy

Do not skip doses or change your intake of the pills. As far as your doc goes, if possibe you should switch to someone that is easy to reach, as they should be closly monitoring you.

It is normal to break out in a rash on Z and you must avoid exposure to the sun at all costs. If symptoms get worse go to the er asap. 

With a lot of these new drugs, dry mouth is common and biotiene is suggested to keep your mouth moist, and as previouslty mentioned in a comment above, thrush is possible so you may want to consult your general physician for that not your oncologist, but do tell your onc about that side effect.

You're in my prayers!

Lilith Elmore

Freshman at Eastern University, Biology majoy

I had a period of bad rashes with the Zelboraf that lasted about six weeks.  I took Aveeno baths and used lots of Cortisone-10 cream.  Eventually it went away.  I'm in my ninth month on the Zelboraf and give a whole rundown of my experience to date in my profile.  But my skin has changed significantly and I am much more sensitive to soaps, fragrances, and shaving creams than I was before.

Sunscreen is a must.  I've been using a fragrance-free Nutrogena SPF 100 on the rare occasions I'm out in the sun.  I use the spray can for my arms and legs and the cream for my face.  Coincidentally, I did spend 3 days on a sailboat earlier this summer.  The boat had a biminy cover and I wore khaki's, loose-fitting long sleeve shirts, a wide-brimmed hat, SPF 100 and Zinc Oxide on my nose.  Unfortunately I forgot to protect my lips so I sunburned my lower lip pretty badly, which never has been a problem before.  While I came out mostly unscathed, I probably won't do it again any time soon.

Good luck!

I hope and expect that both you and your wife know that when you are taking Zelboraf you MUST stay out of the sun! Zelboraf makes your skin extremely sensitive and you can get a severe sunburn in 5 minutes even when using sunscreen. 

I hope and expect that both you and your wife know that when you are taking Zelboraf you MUST stay out of the sun! Zelboraf makes your skin extremely sensitive and you can get a severe sunburn in 5 minutes even when using sunscreen. 

I had a period of bad rashes with the Zelboraf that lasted about six weeks.  I took Aveeno baths and used lots of Cortisone-10 cream.  Eventually it went away.  I'm in my ninth month on the Zelboraf and give a whole rundown of my experience to date in my profile.  But my skin has changed significantly and I am much more sensitive to soaps, fragrances, and shaving creams than I was before.

Sunscreen is a must.  I've been using a fragrance-free Nutrogena SPF 100 on the rare occasions I'm out in the sun.  I use the spray can for my arms and legs and the cream for my face.  Coincidentally, I did spend 3 days on a sailboat earlier this summer.  The boat had a biminy cover and I wore khaki's, loose-fitting long sleeve shirts, a wide-brimmed hat, SPF 100 and Zinc Oxide on my nose.  Unfortunately I forgot to protect my lips so I sunburned my lower lip pretty badly, which never has been a problem before.  While I came out mostly unscathed, I probably won't do it again any time soon.

Good luck!

I had a period of bad rashes with the Zelboraf that lasted about six weeks.  I took Aveeno baths and used lots of Cortisone-10 cream.  Eventually it went away.  I'm in my ninth month on the Zelboraf and give a whole rundown of my experience to date in my profile.  But my skin has changed significantly and I am much more sensitive to soaps, fragrances, and shaving creams than I was before.

Sunscreen is a must.  I've been using a fragrance-free Nutrogena SPF 100 on the rare occasions I'm out in the sun.  I use the spray can for my arms and legs and the cream for my face.  Coincidentally, I did spend 3 days on a sailboat earlier this summer.  The boat had a biminy cover and I wore khaki's, loose-fitting long sleeve shirts, a wide-brimmed hat, SPF 100 and Zinc Oxide on my nose.  Unfortunately I forgot to protect my lips so I sunburned my lower lip pretty badly, which never has been a problem before.  While I came out mostly unscathed, I probably won't do it again any time soon.

Good luck!