› Forums › General Melanoma Community › Zelboraf and side effects
- This topic has 9 replies, 3 voices, and was last updated 12 years, 2 months ago by boot2aboot.
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- February 22, 2012 at 4:53 am
I have been taking Zelboraf since Oct. 2011 and so far NED! My question is how long do we stay on this drug and has anyone experienced severe hair loss, loss of appetite and stomach problems? Any help would be greatly appreciated, thank you.
Judy
I have been taking Zelboraf since Oct. 2011 and so far NED! My question is how long do we stay on this drug and has anyone experienced severe hair loss, loss of appetite and stomach problems? Any help would be greatly appreciated, thank you.
Judy
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- February 22, 2012 at 5:51 am
I have been o Zelboraf since 9/12/11.Side effects included hair loss ( head and body) loss of some taste.weight loss but still have very good appetite and occasional case of the runs about every 2 to 3 weeks lasting from 1 to 3 days.You stay on this drug as long as it works.Hopefully a very very long time.
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- February 22, 2012 at 5:51 am
I have been o Zelboraf since 9/12/11.Side effects included hair loss ( head and body) loss of some taste.weight loss but still have very good appetite and occasional case of the runs about every 2 to 3 weeks lasting from 1 to 3 days.You stay on this drug as long as it works.Hopefully a very very long time.
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- February 22, 2012 at 5:51 am
I have been o Zelboraf since 9/12/11.Side effects included hair loss ( head and body) loss of some taste.weight loss but still have very good appetite and occasional case of the runs about every 2 to 3 weeks lasting from 1 to 3 days.You stay on this drug as long as it works.Hopefully a very very long time.
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- February 22, 2012 at 7:28 pm
Judy
My situation is a little different than yours as I am part of the Zelboraf phase II clinical trial. As such, I will remain on Zelboraf as long as it continues to work, I believe that would be the same for others but I am not sure.
I’m not sure when it started, but I did have body hair loss. I’m 65 and the hair on my head was already thinning so I do not know if Zelboraf contributed to additional head hair loss but it definitely did not fall completely out although the texture did change. Today body hair has mostly returned although much thinner.
I never had any appetite or stomach problems.
Let me know if you have any more questions and I will try to answer. Continued good luck.
Dick
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- February 22, 2012 at 7:28 pm
Judy
My situation is a little different than yours as I am part of the Zelboraf phase II clinical trial. As such, I will remain on Zelboraf as long as it continues to work, I believe that would be the same for others but I am not sure.
I’m not sure when it started, but I did have body hair loss. I’m 65 and the hair on my head was already thinning so I do not know if Zelboraf contributed to additional head hair loss but it definitely did not fall completely out although the texture did change. Today body hair has mostly returned although much thinner.
I never had any appetite or stomach problems.
Let me know if you have any more questions and I will try to answer. Continued good luck.
Dick
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- February 22, 2012 at 7:28 pm
Judy
My situation is a little different than yours as I am part of the Zelboraf phase II clinical trial. As such, I will remain on Zelboraf as long as it continues to work, I believe that would be the same for others but I am not sure.
I’m not sure when it started, but I did have body hair loss. I’m 65 and the hair on my head was already thinning so I do not know if Zelboraf contributed to additional head hair loss but it definitely did not fall completely out although the texture did change. Today body hair has mostly returned although much thinner.
I never had any appetite or stomach problems.
Let me know if you have any more questions and I will try to answer. Continued good luck.
Dick
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- February 25, 2012 at 2:05 pm
I have been on Zelboraf for 6 mos. at a greatly reduced dose due to side effects:
On Full dose:
fever
arthragia with swelling
Erythema nodosums
diarrhea
Myalgia
Hair loss-everywhere
petechia
keratosis pilaris
foot and hand neuropathy
elevated ALT
scans showed 40% reduction of tumors, no new growths
On Half dose with steroids:
Body and face rashes
Itching,
Loss of body hair
Fever(but less than 100 degrees)
keratosis pilaris
foot neuropathy
elevated ALT
scans showed 30% reduction in tumors, no new growths
On less than Half dose without steroids:
keratosis pilaris
squamous cell cancer
last scans showed mild reduction of tumors, no new growth…some lung mets resolved
boots
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- February 25, 2012 at 2:05 pm
I have been on Zelboraf for 6 mos. at a greatly reduced dose due to side effects:
On Full dose:
fever
arthragia with swelling
Erythema nodosums
diarrhea
Myalgia
Hair loss-everywhere
petechia
keratosis pilaris
foot and hand neuropathy
elevated ALT
scans showed 40% reduction of tumors, no new growths
On Half dose with steroids:
Body and face rashes
Itching,
Loss of body hair
Fever(but less than 100 degrees)
keratosis pilaris
foot neuropathy
elevated ALT
scans showed 30% reduction in tumors, no new growths
On less than Half dose without steroids:
keratosis pilaris
squamous cell cancer
last scans showed mild reduction of tumors, no new growth…some lung mets resolved
boots
-
- February 25, 2012 at 2:05 pm
I have been on Zelboraf for 6 mos. at a greatly reduced dose due to side effects:
On Full dose:
fever
arthragia with swelling
Erythema nodosums
diarrhea
Myalgia
Hair loss-everywhere
petechia
keratosis pilaris
foot and hand neuropathy
elevated ALT
scans showed 40% reduction of tumors, no new growths
On Half dose with steroids:
Body and face rashes
Itching,
Loss of body hair
Fever(but less than 100 degrees)
keratosis pilaris
foot neuropathy
elevated ALT
scans showed 30% reduction in tumors, no new growths
On less than Half dose without steroids:
keratosis pilaris
squamous cell cancer
last scans showed mild reduction of tumors, no new growth…some lung mets resolved
boots
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