Yervoy side effects

Sorry your wife is going through this.

i lived on poached egg and white toast.

hope this helps. 

Karen

Sorry your wife is going through this.

i lived on poached egg and white toast.

hope this helps. 

Karen

Sorry your wife is going through this.

i lived on poached egg and white toast.

hope this helps. 

Karen

It sounds like your wife's doctor needs to be more aggressive in fighting the side effects. I worry that diet alone will not solve the problems–you don't want this to develop into colitis. The product information for Yervoy has a lot of information about treating bowel inflammation and diaherra, so I suggest that you read that. I think they also have a nurse-monitored 24/7 hotline that you could call for more help.

She should probably be taking Immodium or a prescription anti-diahrreal medication along with the prednisone. Stronger steroids like dexemthazone or budesonide are also possible. And some people have have benefitted from Remicade, which is used for Crohn's disease.

Only your wife's doctor can tell which treatment or combination of treatments are right for your wife. But please don't think this is "only" diahrrea, if it gets out of control, the conequences can be serious.

It sounds like your wife's doctor needs to be more aggressive in fighting the side effects. I worry that diet alone will not solve the problems–you don't want this to develop into colitis. The product information for Yervoy has a lot of information about treating bowel inflammation and diaherra, so I suggest that you read that. I think they also have a nurse-monitored 24/7 hotline that you could call for more help.

She should probably be taking Immodium or a prescription anti-diahrreal medication along with the prednisone. Stronger steroids like dexemthazone or budesonide are also possible. And some people have have benefitted from Remicade, which is used for Crohn's disease.

Only your wife's doctor can tell which treatment or combination of treatments are right for your wife. But please don't think this is "only" diahrrea, if it gets out of control, the conequences can be serious.

It sounds like your wife's doctor needs to be more aggressive in fighting the side effects. I worry that diet alone will not solve the problems–you don't want this to develop into colitis. The product information for Yervoy has a lot of information about treating bowel inflammation and diaherra, so I suggest that you read that. I think they also have a nurse-monitored 24/7 hotline that you could call for more help.

She should probably be taking Immodium or a prescription anti-diahrreal medication along with the prednisone. Stronger steroids like dexemthazone or budesonide are also possible. And some people have have benefitted from Remicade, which is used for Crohn's disease.

Only your wife's doctor can tell which treatment or combination of treatments are right for your wife. But please don't think this is "only" diahrrea, if it gets out of control, the conequences can be serious.

I also had diarrhea with Yervoy. Mine tended to show up a couple days after each dose and would last for about 2 weeks, clearing up just in time for the next dose. At times it was pretty bad, and I had to submit stool samples for the dreaded blood indicating colitis, but my doctor never put me on steroids. I was managed with immodium mostly and tried to eat bland, constpating foods (rice, potato, bread, pasta, cheese, etc) I also feel like yogurt (a little, not a lot every other day) helped me some. If it's not pure liquid, you might try more of a liquid diet for a day or 2? I drank Boost brand protein shakes to try and maintain my protein intake wthout being hard on my gut, I'm sure you can find other "liquid meals" with vitamins and minerals, etc. It's not very fun, but reducing the solids content and "resting" the gut might help if nothing else is. 

I also can't say enough good things about home make chicken stock. I never used to be a big believer (even though I grew up eating nothing but home made everything), but last winter when I was being treated with IL2 (which is really, really difficult) I became a big convert. I had pretty severe colitis with each week of IL2 (and believe me when I say they almost didn't let me try Yervoy because of that). IL2 works differently than Yervoy, but I swear drinking 2 cups of my hot home made stock each day after my discharge from the hospital for 5 days or so shortened the recovery time for the colitis by at least 2-3 days. I think it helped that it has all the nutrition of chicken soup (protein, vitamins, minerals, etc) without the solids so there wasn't anything for my colon to try and deal with. Plus, it's just delicious.  

If you've never made home made stock I'd give it a try- let me know if you want a "recipe/technique". I've got a pot of beef stock bubbling away on the stove as we speak and made a batch of chicken stock last week. It freezes really well and you can just pull it out of the freezer when you want some. 

Anyway, that was a long tangent about good stock. I think other posters had good suggestions about asking more questions of your doctor and the Yervoy help line for other treatments. I've also read that it can be difficult to get under control though, so I don't think you're alone. 

Best of luck

-Eva

I also had diarrhea with Yervoy. Mine tended to show up a couple days after each dose and would last for about 2 weeks, clearing up just in time for the next dose. At times it was pretty bad, and I had to submit stool samples for the dreaded blood indicating colitis, but my doctor never put me on steroids. I was managed with immodium mostly and tried to eat bland, constpating foods (rice, potato, bread, pasta, cheese, etc) I also feel like yogurt (a little, not a lot every other day) helped me some. If it's not pure liquid, you might try more of a liquid diet for a day or 2? I drank Boost brand protein shakes to try and maintain my protein intake wthout being hard on my gut, I'm sure you can find other "liquid meals" with vitamins and minerals, etc. It's not very fun, but reducing the solids content and "resting" the gut might help if nothing else is. 

I also can't say enough good things about home make chicken stock. I never used to be a big believer (even though I grew up eating nothing but home made everything), but last winter when I was being treated with IL2 (which is really, really difficult) I became a big convert. I had pretty severe colitis with each week of IL2 (and believe me when I say they almost didn't let me try Yervoy because of that). IL2 works differently than Yervoy, but I swear drinking 2 cups of my hot home made stock each day after my discharge from the hospital for 5 days or so shortened the recovery time for the colitis by at least 2-3 days. I think it helped that it has all the nutrition of chicken soup (protein, vitamins, minerals, etc) without the solids so there wasn't anything for my colon to try and deal with. Plus, it's just delicious.  

If you've never made home made stock I'd give it a try- let me know if you want a "recipe/technique". I've got a pot of beef stock bubbling away on the stove as we speak and made a batch of chicken stock last week. It freezes really well and you can just pull it out of the freezer when you want some. 

Anyway, that was a long tangent about good stock. I think other posters had good suggestions about asking more questions of your doctor and the Yervoy help line for other treatments. I've also read that it can be difficult to get under control though, so I don't think you're alone. 

Best of luck

-Eva

I also had diarrhea with Yervoy. Mine tended to show up a couple days after each dose and would last for about 2 weeks, clearing up just in time for the next dose. At times it was pretty bad, and I had to submit stool samples for the dreaded blood indicating colitis, but my doctor never put me on steroids. I was managed with immodium mostly and tried to eat bland, constpating foods (rice, potato, bread, pasta, cheese, etc) I also feel like yogurt (a little, not a lot every other day) helped me some. If it's not pure liquid, you might try more of a liquid diet for a day or 2? I drank Boost brand protein shakes to try and maintain my protein intake wthout being hard on my gut, I'm sure you can find other "liquid meals" with vitamins and minerals, etc. It's not very fun, but reducing the solids content and "resting" the gut might help if nothing else is. 

I also can't say enough good things about home make chicken stock. I never used to be a big believer (even though I grew up eating nothing but home made everything), but last winter when I was being treated with IL2 (which is really, really difficult) I became a big convert. I had pretty severe colitis with each week of IL2 (and believe me when I say they almost didn't let me try Yervoy because of that). IL2 works differently than Yervoy, but I swear drinking 2 cups of my hot home made stock each day after my discharge from the hospital for 5 days or so shortened the recovery time for the colitis by at least 2-3 days. I think it helped that it has all the nutrition of chicken soup (protein, vitamins, minerals, etc) without the solids so there wasn't anything for my colon to try and deal with. Plus, it's just delicious.  

If you've never made home made stock I'd give it a try- let me know if you want a "recipe/technique". I've got a pot of beef stock bubbling away on the stove as we speak and made a batch of chicken stock last week. It freezes really well and you can just pull it out of the freezer when you want some. 

Anyway, that was a long tangent about good stock. I think other posters had good suggestions about asking more questions of your doctor and the Yervoy help line for other treatments. I've also read that it can be difficult to get under control though, so I don't think you're alone. 

Best of luck

-Eva

hi. I'm living this now (Yervoy colitis; on Prednisone)

Just wanting to reiterate POW's point that there likely isn't a diet that will improve the colitis very drastically. The worst-case scenario, as I'm sure you know, is a ruptured colon. If things are getting worse rather than better, make sure you make yourself available for the big guns! (there are stronger steroids than Prednisone).

My own diet features rice, pasta, and toast. Occasionally I'll have some chicken noodle soup (good for electrolytes) — though I'm sure it's not as tasty as Eva's — or some cooked sweet potato.

Lately I've expanded my diet a little bit, as I've realized that I'm going to have some degree of diarrhea whether I have a bit of butter on my pasta or not — so I'd might as well have tolerable pasta!! Know what I mean? 

I was worried about dehydration when my frequency was 10-15x/day, and was drinking Gatorade. But my trial nurse told me to stop that, as it's full of sugar, which is quite inflammatory for the gut lining. She said that chicken soup was better for electrolyte replacment. Just thought I'd pass that along. 

best of luck..

hi. I'm living this now (Yervoy colitis; on Prednisone)

Just wanting to reiterate POW's point that there likely isn't a diet that will improve the colitis very drastically. The worst-case scenario, as I'm sure you know, is a ruptured colon. If things are getting worse rather than better, make sure you make yourself available for the big guns! (there are stronger steroids than Prednisone).

My own diet features rice, pasta, and toast. Occasionally I'll have some chicken noodle soup (good for electrolytes) — though I'm sure it's not as tasty as Eva's — or some cooked sweet potato.

Lately I've expanded my diet a little bit, as I've realized that I'm going to have some degree of diarrhea whether I have a bit of butter on my pasta or not — so I'd might as well have tolerable pasta!! Know what I mean? 

I was worried about dehydration when my frequency was 10-15x/day, and was drinking Gatorade. But my trial nurse told me to stop that, as it's full of sugar, which is quite inflammatory for the gut lining. She said that chicken soup was better for electrolyte replacment. Just thought I'd pass that along. 

best of luck..

hi. I'm living this now (Yervoy colitis; on Prednisone)

Just wanting to reiterate POW's point that there likely isn't a diet that will improve the colitis very drastically. The worst-case scenario, as I'm sure you know, is a ruptured colon. If things are getting worse rather than better, make sure you make yourself available for the big guns! (there are stronger steroids than Prednisone).

My own diet features rice, pasta, and toast. Occasionally I'll have some chicken noodle soup (good for electrolytes) — though I'm sure it's not as tasty as Eva's — or some cooked sweet potato.

Lately I've expanded my diet a little bit, as I've realized that I'm going to have some degree of diarrhea whether I have a bit of butter on my pasta or not — so I'd might as well have tolerable pasta!! Know what I mean? 

I was worried about dehydration when my frequency was 10-15x/day, and was drinking Gatorade. But my trial nurse told me to stop that, as it's full of sugar, which is quite inflammatory for the gut lining. She said that chicken soup was better for electrolyte replacment. Just thought I'd pass that along. 

best of luck..