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Yervoy side effect recovery timeline?
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Yervoy side effect recovery timeline?

› Forums › General Melanoma Community › Yervoy side effect recovery timeline?

  • Post
    • July 13, 2017 at 1:32 am
    LAC
    Participant

      My father had severe side effects after his 3d Yervoy/Opdivo treatment.  He developed colitis, became dehydrated, very weak and confused.  Mom had him in the ER 3 times over a 5 week period.   He's lost a ton of weight, is very weak, and mentally he has moments of confusion that are concerning.  

      Has anyone experienced the severity of these side effects, including "brain fog" or confusion?  If so, did the patient get better or back to normal?  How long did it take?  We see improvement in his eating and stamina finally…very little but at least it's progress.  However, his confusion and slurred speech are still very concerning.

      Thank you

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    • Replies
        • July 13, 2017 at 2:12 am
        jennunicorn
        Participant

          His oncologist should be notified immediately when any of these major side effects come up. The neurological ones are not typical and his oncologist will likely want to do a brain MRI.

            • July 13, 2017 at 7:50 am
            Patina
            Participant

              I agree. Sounds like he needs a brain MRI ASAP.

              – Don't move forward with whole brain radiation. Find the best radiation ocologist IF its brain mets and get a second opinion.

              • July 13, 2017 at 12:29 pm
              LAC
              Participant

                we got the brain MRI yesterday…will post results once we get them.  Thank you!

              • July 13, 2017 at 1:37 pm
              Gene_S
              Participant

                Is he being seen by a melanoma specialist?  There is medication you can take to help with appetite.  If you fill in the profile page it may help with some of the questions you ask so we will know what stage, where the cancer is located and even help guide you with Drs. in your area.

                  • July 13, 2017 at 6:16 pm
                  DocPain
                  Participant

                    I had much the same thing happen to me after my third Yervoy treatment. Finally diagnosed with viral encephalitis. Spent a week in the hospital and am at home recuperating. The really scary part is the awareness and confusion and being able to know what's real and what's not. Good luck to your family,!

                    • July 14, 2017 at 2:29 am
                    LAC
                    Participant

                      Thank you!  The MRI came back negative for brain bleeds or stroke.  We have now been asked to look at Normal Pressure Hydrocephalus (since my dad would drag his feet quite a bit…waaaaay before cancer or chemo).  I'll check out the viral encephalitis as well.  His appetite is improving slowly…but at least it's improving. 

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