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Yervoy 9ipilimumab)
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Yervoy 9ipilimumab)

› Forums › General Melanoma Community › Yervoy 9ipilimumab)

  • Post
    • May 15, 2012 at 6:48 pm
    janward
    Participant

      I have completed 4 infusions of Yervoy.  The PET scans shows a favorable response to the treatment.  I do, however, have immune-mediated neuropathy which is getting more and more painful.  Anyone have these symptoms?  What treatment have you tried for the neuropathy and how succesful was i t?

      I have completed 4 infusions of Yervoy.  The PET scans shows a favorable response to the treatment.  I do, however, have immune-mediated neuropathy which is getting more and more painful.  Anyone have these symptoms?  What treatment have you tried for the neuropathy and how succesful was i t?

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    • Replies
        • May 16, 2012 at 3:07 pm
        Karin L
        Participant

          Huge congrats on the favorable treatment!  I have not done Yervoy yet but I did do IL2 which is also an immunotherapy.  I developed severe neuropothy in both hands and lower legs and feet.  Eventually my whole body was being affected…(lips and teeth, ears, etc.  were tingly and numb.)  I would not have described it as painful though and I have seen it described as painful by others here quite a few times.  Not sure on that one.  As much as I didn't want to use any steroids I did high dose IV steroids (Solumedrol)  for 3 days and then an oral taper of Prednisone for 3 wks.  It worked excellent.  I hope you get an answer/solution  for your situation.

           

          Karin 

          • May 16, 2012 at 3:07 pm
          Karin L
          Participant

            Huge congrats on the favorable treatment!  I have not done Yervoy yet but I did do IL2 which is also an immunotherapy.  I developed severe neuropothy in both hands and lower legs and feet.  Eventually my whole body was being affected…(lips and teeth, ears, etc.  were tingly and numb.)  I would not have described it as painful though and I have seen it described as painful by others here quite a few times.  Not sure on that one.  As much as I didn't want to use any steroids I did high dose IV steroids (Solumedrol)  for 3 days and then an oral taper of Prednisone for 3 wks.  It worked excellent.  I hope you get an answer/solution  for your situation.

             

            Karin 

            • May 16, 2012 at 3:07 pm
            Karin L
            Participant

              Huge congrats on the favorable treatment!  I have not done Yervoy yet but I did do IL2 which is also an immunotherapy.  I developed severe neuropothy in both hands and lower legs and feet.  Eventually my whole body was being affected…(lips and teeth, ears, etc.  were tingly and numb.)  I would not have described it as painful though and I have seen it described as painful by others here quite a few times.  Not sure on that one.  As much as I didn't want to use any steroids I did high dose IV steroids (Solumedrol)  for 3 days and then an oral taper of Prednisone for 3 wks.  It worked excellent.  I hope you get an answer/solution  for your situation.

               

              Karin 

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