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WLE and SNLB intial results negative!

Forums General Melanoma Community WLE and SNLB intial results negative!

  • Post
    davekarrie
    Participant

      Just got back from the Mayo clinic in Rochester, and I highly recommend Dr. Brewer (dermatologist) and Dr. Donahue (surgeon) for anyone in this area. I had a melonoma at 1.5mm and Clarks level 4 and just had the WLE and SNLB and intial results came back negative. The Dr. said more testing will be done early this week and hopefully that all comes back negative.  Does anyone know why an initial result could be negative and later tests positive. He had to take 3 lymph nodes under my right and left arms, and it is very painful but getting a bit better each day.

      Just got back from the Mayo clinic in Rochester, and I highly recommend Dr. Brewer (dermatologist) and Dr. Donahue (surgeon) for anyone in this area. I had a melonoma at 1.5mm and Clarks level 4 and just had the WLE and SNLB and intial results came back negative. The Dr. said more testing will be done early this week and hopefully that all comes back negative.  Does anyone know why an initial result could be negative and later tests positive. He had to take 3 lymph nodes under my right and left arms, and it is very painful but getting a bit better each day. hopefully we got it all and the care at the Mayo clinic I highly recommend. thanks and good luck to all.

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        Doug-Pepper
        Participant

          Glad to hear that! My husband has finally healed up under his arm. One node was positive. We are kind of in the same boat. Not sure what to do next. Good luck! Pepper.

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          Doug-Pepper
          Participant

            Glad to hear that! My husband has finally healed up under his arm. One node was positive. We are kind of in the same boat. Not sure what to do next. Good luck! Pepper.

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              davekarrie
              Participant

                How long did it take your husband to heal up. mine is burning something fierce at times.

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                davekarrie
                Participant

                  How long did it take your husband to heal up. mine is burning something fierce at times.

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                  Doug-Pepper
                  Participant

                    Probably about 3 weeks.  He still does not have a lot of feeling in several places on that arm. He slept with his arm propped up on a pillow. It burned a lot too. He would forget & try to pick something heavy up or lift it too high. He said the worse part was when the drain was taken out.

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                    Doug-Pepper
                    Participant

                      Probably about 3 weeks.  He still does not have a lot of feeling in several places on that arm. He slept with his arm propped up on a pillow. It burned a lot too. He would forget & try to pick something heavy up or lift it too high. He said the worse part was when the drain was taken out.

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                      davekarrie
                      Participant

                        they didn't put any drains in mine that I can see, just internal sutures the way it looks. thanks for the info.

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                        davekarrie
                        Participant

                          they didn't put any drains in mine that I can see, just internal sutures the way it looks. thanks for the info.

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                          bluepeople
                          Participant

                             Hi,

                            My hubby had a SNB on Sept. 15, and then about a month later it got infected and he had to go in and have them open it up again, and then we had to pack the wound for a couple weeks.  Just saying this so that you keep an eye out for any swelling or pain the in the area, even weeks later.  He had a fever for a couple days, thought it was just the flu, but then realized it was an infection.  Now he's all healed and everything is fine, starting interferon today.  He had some pain (or I'd say discomfort) for about 3 weeks.  He still doesn't have feeling around the site of the SNBs, but that can be pretty common.  Good luck.

                            Akilyn

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                            bluepeople
                            Participant

                               Hi,

                              My hubby had a SNB on Sept. 15, and then about a month later it got infected and he had to go in and have them open it up again, and then we had to pack the wound for a couple weeks.  Just saying this so that you keep an eye out for any swelling or pain the in the area, even weeks later.  He had a fever for a couple days, thought it was just the flu, but then realized it was an infection.  Now he's all healed and everything is fine, starting interferon today.  He had some pain (or I'd say discomfort) for about 3 weeks.  He still doesn't have feeling around the site of the SNBs, but that can be pretty common.  Good luck.

                              Akilyn

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                              davekarrie
                              Participant

                                Thanks for the info. did his SNLB come back positive, just wondering if I will need anymore treatment if the nodes are negative as they appeared to be when they checked them when I was operated on. thanks.

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                                davekarrie
                                Participant

                                  Thanks for the info. did his SNLB come back positive, just wondering if I will need anymore treatment if the nodes are negative as they appeared to be when they checked them when I was operated on. thanks.

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                                  bluepeople
                                  Participant

                                     All of my husbands results were negative, both the SNB and the PET scan.  He is stage IIc and both of his were pretty deep (5mm and 2.4 mm), that is why he is doing the interferon.  The doctor gave him the option, basically saying if it's going to come back, interferon won't keep it from coming back, but may prolong the time it takes to come back.   We figure if he can get through the high dose, he'll then make the decision of whether or not to continue the low dose.  It really is crazy and you feel like you have to make a lot of decisions in such a short time.  It sounds like you had good results, so good luck with whatever comes up.

                                    Akilyn

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                                    bluepeople
                                    Participant

                                       All of my husbands results were negative, both the SNB and the PET scan.  He is stage IIc and both of his were pretty deep (5mm and 2.4 mm), that is why he is doing the interferon.  The doctor gave him the option, basically saying if it's going to come back, interferon won't keep it from coming back, but may prolong the time it takes to come back.   We figure if he can get through the high dose, he'll then make the decision of whether or not to continue the low dose.  It really is crazy and you feel like you have to make a lot of decisions in such a short time.  It sounds like you had good results, so good luck with whatever comes up.

                                      Akilyn

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