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Will start pembrolizumab soon, post Yervoy. Any success stories to share?

Forums General Melanoma Community Will start pembrolizumab soon, post Yervoy. Any success stories to share?

  • Post
    melinda2
    Participant

      My husband will start pembrolizumab next week, after having had Yervoy with no results, and disease progression during the Yervoy treatment period.  What I'm looking for is some GOOD news from those folks who have had (blessedly) good results with the pembrolizumab.  Let me hear it!

    Viewing 8 reply threads
    • Replies
        arthurjedi007
        Participant

          Here's what I posted a couple weeks ago. Sorry I got some head and spine stuff going on so didn't feel like a special personal post. Very good luck to your husband. I hope he gets great results with pd1.

          http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/merck-eap-pd1-pembro-first

          Artie

           

          arthurjedi007
          Participant

            Here's what I posted a couple weeks ago. Sorry I got some head and spine stuff going on so didn't feel like a special personal post. Very good luck to your husband. I hope he gets great results with pd1.

            http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/merck-eap-pd1-pembro-first

            Artie

             

            arthurjedi007
            Participant

              Here's what I posted a couple weeks ago. Sorry I got some head and spine stuff going on so didn't feel like a special personal post. Very good luck to your husband. I hope he gets great results with pd1.

              http://www.melanoma.org/find-support/patient-community/mpip-melanoma-patients-information-page/merck-eap-pd1-pembro-first

              Artie

               

                melinda2
                Participant

                  Artie,

                  Thank you so very much!  These posts were so encouraging to my husband and described so many similarities to his situation.  I can't tell you how much I appreciate that you took the time to send it, despite feeling crummy yesterday.  Blessings to you, and prayers for healing.

                  melinda2
                  Participant

                    Artie,

                    Thank you so very much!  These posts were so encouraging to my husband and described so many similarities to his situation.  I can't tell you how much I appreciate that you took the time to send it, despite feeling crummy yesterday.  Blessings to you, and prayers for healing.

                    melinda2
                    Participant

                      Artie,

                      Thank you so very much!  These posts were so encouraging to my husband and described so many similarities to his situation.  I can't tell you how much I appreciate that you took the time to send it, despite feeling crummy yesterday.  Blessings to you, and prayers for healing.

                    sweetaugust
                    Participant

                      Hi there,

                      I was one of the ones that posted on the thread that Artie shared with you.  I've been on Pembro for almost two years now and have really been doing great.  I am still working full-time and have actually had far less sick days than I did before this diagnosis.  Gosh, I think I've only had two sick days in my two years on this trial…and before that I was out sick at least 2 days a month.  That is so crazy to me.  That is probably due to a big change in diet, which put my immune system on a much better track.  And because I was eating healthier, I was feeling better and just living life with more appreciation and more light. 

                      The first year wasn't a picnic because I was trying to do all the right things to help my body fight back.  So it was a lot more thought about what is best for my health.  It was delegating tasks so I had less stress and just learning to not sweat the small stuff in life.   I am so lucky because my boss is the one that told me I could not have any stress…how crazy it that…a boss saying that.  He is a scientist and he says it's been proven by science that I must have a positive attitude and I must cut way down on the stress if I wanted to get better.

                      The second year though has been fantastic.  Totally healthy and just all about traveling, trying new things, and having fun.  I feel so lucky!

                      My best to you,

                      Laurie

                        Marianne quinn
                        Participant

                          My husband had progression on yervoy. Had  microwave ablation to a small liver mets in May.He had adhesions due to being hit by a drunk driver 40 years ago so it was not an easy surgery. We just got back today from  a 18 mile backpack up to 12000 feet and he did fantastic. CAT scan Friday. Praying for NED but anti pd1 might be in his future. Please keep us posted and share your name. People here care. 

                          Marianne quinn
                          Participant

                            My husband had progression on yervoy. Had  microwave ablation to a small liver mets in May.He had adhesions due to being hit by a drunk driver 40 years ago so it was not an easy surgery. We just got back today from  a 18 mile backpack up to 12000 feet and he did fantastic. CAT scan Friday. Praying for NED but anti pd1 might be in his future. Please keep us posted and share your name. People here care. 

                            Marianne quinn
                            Participant

                              My husband had progression on yervoy. Had  microwave ablation to a small liver mets in May.He had adhesions due to being hit by a drunk driver 40 years ago so it was not an easy surgery. We just got back today from  a 18 mile backpack up to 12000 feet and he did fantastic. CAT scan Friday. Praying for NED but anti pd1 might be in his future. Please keep us posted and share your name. People here care. 

                              melinda2
                              Participant

                                Laurie, thank you for that great, great news!  I wish you the best for continued health.

                                melinda2
                                Participant

                                  Laurie, thank you for that great, great news!  I wish you the best for continued health.

                                  melinda2
                                  Participant

                                    Laurie, thank you for that great, great news!  I wish you the best for continued health.

                                  sweetaugust
                                  Participant

                                    Hi there,

                                    I was one of the ones that posted on the thread that Artie shared with you.  I've been on Pembro for almost two years now and have really been doing great.  I am still working full-time and have actually had far less sick days than I did before this diagnosis.  Gosh, I think I've only had two sick days in my two years on this trial…and before that I was out sick at least 2 days a month.  That is so crazy to me.  That is probably due to a big change in diet, which put my immune system on a much better track.  And because I was eating healthier, I was feeling better and just living life with more appreciation and more light. 

                                    The first year wasn't a picnic because I was trying to do all the right things to help my body fight back.  So it was a lot more thought about what is best for my health.  It was delegating tasks so I had less stress and just learning to not sweat the small stuff in life.   I am so lucky because my boss is the one that told me I could not have any stress…how crazy it that…a boss saying that.  He is a scientist and he says it's been proven by science that I must have a positive attitude and I must cut way down on the stress if I wanted to get better.

                                    The second year though has been fantastic.  Totally healthy and just all about traveling, trying new things, and having fun.  I feel so lucky!

                                    My best to you,

                                    Laurie

                                    sweetaugust
                                    Participant

                                      Hi there,

                                      I was one of the ones that posted on the thread that Artie shared with you.  I've been on Pembro for almost two years now and have really been doing great.  I am still working full-time and have actually had far less sick days than I did before this diagnosis.  Gosh, I think I've only had two sick days in my two years on this trial…and before that I was out sick at least 2 days a month.  That is so crazy to me.  That is probably due to a big change in diet, which put my immune system on a much better track.  And because I was eating healthier, I was feeling better and just living life with more appreciation and more light. 

                                      The first year wasn't a picnic because I was trying to do all the right things to help my body fight back.  So it was a lot more thought about what is best for my health.  It was delegating tasks so I had less stress and just learning to not sweat the small stuff in life.   I am so lucky because my boss is the one that told me I could not have any stress…how crazy it that…a boss saying that.  He is a scientist and he says it's been proven by science that I must have a positive attitude and I must cut way down on the stress if I wanted to get better.

                                      The second year though has been fantastic.  Totally healthy and just all about traveling, trying new things, and having fun.  I feel so lucky!

                                      My best to you,

                                      Laurie

                                      RJoeyB
                                      Participant

                                        I've had Yervoy but not pembrolizumab (or any other anti-PD-1), but yours is a question that's been posed several times here.  There was a recent study published in The Lancet (a U.K. medical journal, similar to The New England Journal of Medicine) and an article discussing it on Medscape.  I posted a link here:

                                        http://www.melanoma.org/comment/77406#comment-77406

                                        You need to set up a free account on Medscape to view the article, hope you find it helpful.

                                        Best, Joe

                                         

                                        RJoeyB
                                        Participant

                                          I've had Yervoy but not pembrolizumab (or any other anti-PD-1), but yours is a question that's been posed several times here.  There was a recent study published in The Lancet (a U.K. medical journal, similar to The New England Journal of Medicine) and an article discussing it on Medscape.  I posted a link here:

                                          http://www.melanoma.org/comment/77406#comment-77406

                                          You need to set up a free account on Medscape to view the article, hope you find it helpful.

                                          Best, Joe

                                           

                                            melinda2
                                            Participant

                                              Thank you, Joe.  I'm going to take a look at that now.  I appreciate the help so much.  Best wishes to you!

                                              melinda2
                                              Participant

                                                Thank you, Joe.  I'm going to take a look at that now.  I appreciate the help so much.  Best wishes to you!

                                                melinda2
                                                Participant

                                                  Thank you, Joe.  I'm going to take a look at that now.  I appreciate the help so much.  Best wishes to you!

                                                RJoeyB
                                                Participant

                                                  I've had Yervoy but not pembrolizumab (or any other anti-PD-1), but yours is a question that's been posed several times here.  There was a recent study published in The Lancet (a U.K. medical journal, similar to The New England Journal of Medicine) and an article discussing it on Medscape.  I posted a link here:

                                                  http://www.melanoma.org/comment/77406#comment-77406

                                                  You need to set up a free account on Medscape to view the article, hope you find it helpful.

                                                  Best, Joe

                                                   

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