The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Will I be abler to work while on immunosuppressants?

Forums General Melanoma Community Will I be abler to work while on immunosuppressants?

  • Post
    caman
    Participant

    Hi everyone,

    Just in case, will I be able to work while on immunosuppressants or will the side effects keep me sidelined for a while.  Just want to prepare myself.

    Appreciate all you do here!!

     

     

Viewing 5 reply threads
  • Replies
      Mac
      Participant

      I go today for my 4th Opdivo infusion.  I think I would have missed some work since I started this, but I would still be working.  I am 66 and retired but I watch my grand daughters, 3 and 5 at their house.  They live 2 hours away so I spend a couple of nights a week there. I have missed exactly half of that time since diagnosis.  One of the hardest things for me is not being able to predict my schedule very well.  I've had a good 2 weeks since last infusion , but woke up this morning with a fever that is climbing. I see people at the Cancer Center getting chemo, not infusion, and I know how lucky I am.

      Hukill
      Participant

      While on the combo ipi and nivo I missed probably 1 – 2 days of work each week for about 2 months. After the 5th and final combo I had 52 doses of nivo and worked full time. Everyone reacts different. I had many side effects, 6 or 7 at a time, but all were mild and I worked and never skipped a dose.

      RichInLife2
      Participant

      Hi, assuming you mean immunotherapy, as others have said, it varies for everyone. Some have sailed through and not missed a beat, others have had to deal with some side effects. I missed about a week when I got diabetes and ended in the hospital. I would have missed more time if my job didn’t allow me to work from home when I need to. Of course, that doesn’t count days off for scans and treatment. 

      Hope this helps. Good luck!

      mandyjill
      Participant

      I assume you are talking about immunotherapy.  I was on a clinical trial of Opdivo/Yervoy for about a year.  I had a few days where I went it late, but never missed any full days.  But everyone reacts differently.

        caman
        Participant

        Thank you all!!..Appreciate it.  I  was  thinking  I  may  need  to  apply  for  disability.  This  is  good  news.  Lets  see  what  happens  going  forward.

      doragsda
      Participant

      Just to make sure you are looking for the correct information when you are searching,   immunotherapy agents (Yervoy, Opdivo, Keytruda) are NOT immunosuppresants.

      They are actually the opposite of immunosuppresants; they are designed to "rev up" the immune system so it can attack the melanoma cells.

      Michele B
      Participant

      Hello, my husband just had his 27th Immunotherapy today, and when he was 1st diagnosed he was very ill,so until they got things under control he did miss some work, but it has been 16 months and he has been back to work for 13 months, really Hs never missed a day. Of course Everyone reacts differently. Prayers thy you do well.

      Michele

        caman
        Participant

        Thank you Michelle.  I got diagnosed with Mel on April 18th.  Im assuming it will come back.  Just want to be prepared.  

Viewing 5 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics