› Forums › General Melanoma Community › Who checks your lymph nodes?
- This topic has 9 replies, 3 voices, and was last updated 7 years, 6 months ago by Alce123.
- Post
-
- October 14, 2016 at 3:16 am
I had a stage 1a melanoma removed in 07/2016. I have had follow up appointments with my surgeon (a few too many due to graft failure and what he believes to be some sort of hypersensitivity reaction… but that’s another story) and a skin check complete with full body photography. However, no one has checked my lymph nodes.Checking them myself makes me super anxious plus… someone should be doing this, right?
So, who checks your lymph nodes? Pcp? Dermatologist? I just watched to make sure I’m following up appropriately.
Thank you!
- Replies
-
-
- October 14, 2016 at 11:40 am
Hi,
Different systems seem to operate in diifferent countries.My lymph nodes were checked out 3 monthly for the first 3 years by the plastics team who did the wide excision – not the dermatologist who did the biopsy. This was a small thin melanoma and should have been low risk for progression but I fell the wrong side of the 95% cure line.The risk of recurrence is highest in the 2 year period following treatment BUT can happen years later even after follow up has ceased.
My recurrence was lymph nodes in the groin. It seems strange to say but it really did seem like it went from nothing to a hard noticable lump under the skin the size of a large grape or a bit bigger. The lump was painless., but easy to spot / feel washing in the shower.
At your stage the harm of a sentinel lymph node biopsy would outweigh probable benefits so that was the right call.
You should be aware of which lymph node group is nearest the original melanoma. This is the area at highest risk for lymph node spread, and so should be kept a particular eye on, but do not prod or poke at the nodes too frequently as they can enlarge due to the disturbance.
You will probably feel reassured if the nodes are checked out professionally by your preferred team at least 6 monthly .
Best wishes
Deb
-
- October 14, 2016 at 11:40 am
Hi,
Different systems seem to operate in diifferent countries.My lymph nodes were checked out 3 monthly for the first 3 years by the plastics team who did the wide excision – not the dermatologist who did the biopsy. This was a small thin melanoma and should have been low risk for progression but I fell the wrong side of the 95% cure line.The risk of recurrence is highest in the 2 year period following treatment BUT can happen years later even after follow up has ceased.
My recurrence was lymph nodes in the groin. It seems strange to say but it really did seem like it went from nothing to a hard noticable lump under the skin the size of a large grape or a bit bigger. The lump was painless., but easy to spot / feel washing in the shower.
At your stage the harm of a sentinel lymph node biopsy would outweigh probable benefits so that was the right call.
You should be aware of which lymph node group is nearest the original melanoma. This is the area at highest risk for lymph node spread, and so should be kept a particular eye on, but do not prod or poke at the nodes too frequently as they can enlarge due to the disturbance.
You will probably feel reassured if the nodes are checked out professionally by your preferred team at least 6 monthly .
Best wishes
Deb
-
- October 14, 2016 at 11:40 am
Hi,
Different systems seem to operate in diifferent countries.My lymph nodes were checked out 3 monthly for the first 3 years by the plastics team who did the wide excision – not the dermatologist who did the biopsy. This was a small thin melanoma and should have been low risk for progression but I fell the wrong side of the 95% cure line.The risk of recurrence is highest in the 2 year period following treatment BUT can happen years later even after follow up has ceased.
My recurrence was lymph nodes in the groin. It seems strange to say but it really did seem like it went from nothing to a hard noticable lump under the skin the size of a large grape or a bit bigger. The lump was painless., but easy to spot / feel washing in the shower.
At your stage the harm of a sentinel lymph node biopsy would outweigh probable benefits so that was the right call.
You should be aware of which lymph node group is nearest the original melanoma. This is the area at highest risk for lymph node spread, and so should be kept a particular eye on, but do not prod or poke at the nodes too frequently as they can enlarge due to the disturbance.
You will probably feel reassured if the nodes are checked out professionally by your preferred team at least 6 monthly .
Best wishes
Deb
-
- October 14, 2016 at 7:25 pm
I had a thin melanoma (Stage 0) in February 2015. At every visit since then (every six months), I have had my lymph nodes palpated by the dermatologists who see me (this is at a major university skin cancer clinic). They also taught me how to do it for myself at home. I pay particular attention to the lymph node basin closest to my lesion.
-
- October 14, 2016 at 7:25 pm
I had a thin melanoma (Stage 0) in February 2015. At every visit since then (every six months), I have had my lymph nodes palpated by the dermatologists who see me (this is at a major university skin cancer clinic). They also taught me how to do it for myself at home. I pay particular attention to the lymph node basin closest to my lesion.
-
- October 14, 2016 at 7:25 pm
I had a thin melanoma (Stage 0) in February 2015. At every visit since then (every six months), I have had my lymph nodes palpated by the dermatologists who see me (this is at a major university skin cancer clinic). They also taught me how to do it for myself at home. I pay particular attention to the lymph node basin closest to my lesion.
-
- October 14, 2016 at 8:06 pm
Thank you guys! I do know how to check my lymph nodes. I’m actually a medical professional but for some reason checking them myself makes me very anxious. I’ll have to work on that one and bring it up to you dermatologist as well (I see them most often so it probably makes sense to have them do it).Thanks agqin!
-
- October 14, 2016 at 8:06 pm
Thank you guys! I do know how to check my lymph nodes. I’m actually a medical professional but for some reason checking them myself makes me very anxious. I’ll have to work on that one and bring it up to you dermatologist as well (I see them most often so it probably makes sense to have them do it).Thanks agqin!
-
- October 14, 2016 at 8:06 pm
Thank you guys! I do know how to check my lymph nodes. I’m actually a medical professional but for some reason checking them myself makes me very anxious. I’ll have to work on that one and bring it up to you dermatologist as well (I see them most often so it probably makes sense to have them do it).Thanks agqin!
-
- You must be logged in to reply to this topic.