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when to start zelboraf
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when to start zelboraf

› Forums › General Melanoma Community › when to start zelboraf

  • Post
    • March 30, 2012 at 12:28 am
    fdess056
    Participant

      Hello, fellow warriors.  I completed Yervoy on March 1 and asked onc what's next ..

      Hello, fellow warriors.  I completed Yervoy on March 1 and asked onc what's next .. He's recommending Zelboraf.  I did some research which states that your body builds up resistance to it and eventually, it stops working.  My question is should I begin to use it if I'm stable or have a only small increase in size or new small  tumors?  It seems that i could watch and wait before starting since I'm feeling well and living normally right now ( I am able to run every day).  If i can remain this way for even a few more months before starting, I'll have that much more time before the Zelboraf stops working.  Past history: surgery,and standard radiation on my forehead and neck, Interferon, SRS on my knee and brain and just recently completed Yervoy.  Most recent scan shows 6 lung mets largest 8 mm  Any thoughts or suggestions would be appreciated

      Thanks

      FrankD Brooklyn

    Viewing 2 reply threads
    • Replies
        • March 30, 2012 at 5:21 am
        LynnLuc
        Participant

          Frank   Have you considered Anti-PD-1 before you do the B raf? It might be all you need and like for me I am in the booster/maintainance phase which is going to be 2 years of getting the infusion 1 time every 3 months- after which if I remain NED  my doc says I shold consider staying on it indefinately- to keep it away!  NED 2 years and 2 days Stage 4.

            • March 30, 2012 at 5:22 am
            LynnLuc
            Participant

              PS   you don't get many side effects with this either…

              • April 2, 2012 at 11:46 pm
              fdess056
              Participant

                Thanks, Lynn and congratulations on remaining NED…  This will definitely be on the agenda next time i see my onc.  I did notice, however, that some of the Anti-PD1 trials don't allow previous yervoy patients….some do, which I find a little strange.

                Thanks again for the suggestion and stay strong

                Frank

                • April 2, 2012 at 11:46 pm
                fdess056
                Participant

                  Thanks, Lynn and congratulations on remaining NED…  This will definitely be on the agenda next time i see my onc.  I did notice, however, that some of the Anti-PD1 trials don't allow previous yervoy patients….some do, which I find a little strange.

                  Thanks again for the suggestion and stay strong

                  Frank

                  • April 2, 2012 at 11:46 pm
                  fdess056
                  Participant

                    Thanks, Lynn and congratulations on remaining NED…  This will definitely be on the agenda next time i see my onc.  I did notice, however, that some of the Anti-PD1 trials don't allow previous yervoy patients….some do, which I find a little strange.

                    Thanks again for the suggestion and stay strong

                    Frank

                    • March 30, 2012 at 5:22 am
                    LynnLuc
                    Participant

                      PS   you don't get many side effects with this either…

                      • March 30, 2012 at 5:22 am
                      LynnLuc
                      Participant

                        PS   you don't get many side effects with this either…

                      • March 30, 2012 at 5:21 am
                      LynnLuc
                      Participant

                        Frank   Have you considered Anti-PD-1 before you do the B raf? It might be all you need and like for me I am in the booster/maintainance phase which is going to be 2 years of getting the infusion 1 time every 3 months- after which if I remain NED  my doc says I shold consider staying on it indefinately- to keep it away!  NED 2 years and 2 days Stage 4.

                        • March 30, 2012 at 5:21 am
                        LynnLuc
                        Participant

                          Frank   Have you considered Anti-PD-1 before you do the B raf? It might be all you need and like for me I am in the booster/maintainance phase which is going to be 2 years of getting the infusion 1 time every 3 months- after which if I remain NED  my doc says I shold consider staying on it indefinately- to keep it away!  NED 2 years and 2 days Stage 4.

                      Viewing 2 reply threads
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