The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

what next

Forums Cutaneous Melanoma Community what next

  • Post

      So-I've been on Keytruda now for seven treatments and my most recent PET scan showed tumor growth.  Doc thinks that the K may not be working.  She's recommending a variety of alternate treatments-adding another BRAC inhibitor drug, radiation (screw that-the tumor is touching my facial nerve), etc…On the one hand I'm lucky- no problems from the K, no brain mets, on the other hand it just seems that with desmoplastic melanoma, if you can't cut it out or radiate it out (which is my case because of the location-surrounding my facial nerve)-it's some kind of chemical treatment or it just keeps coming back.  Anyone out there with desmoplastic/non resectable/ of the head?  Looking for advice on which add on drug has the least side effects problems/best results.  Thanks pals

      Loading spinner
    Viewing 0 reply threads
    • Replies

          Hello Julie T, I had low dose chemo after failing ipi/nivo. After chemo we did Pembro and had an immediate response. My Dr.s reasoning behind was to aggravate the tumor and have pd1 finish the job. I had disease in lip, cheek, jaw bone and 1 node. My DMM  had neurotropism as well…

          Best, Paul

          Loading spinner
      Viewing 0 reply threads
      • You must be logged in to reply to this topic.
      About the MRF Patient Forum

      The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

      The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.