› Forums › General Melanoma Community › What lifestyle efforts may help?
- This topic has 18 replies, 6 voices, and was last updated 8 years, 11 months ago by Mkelley1.
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- June 11, 2015 at 4:34 pm
I'm a T1b. (.7mm 2mitosis/mm) it's thought that my lesion may be related to a decade of enbrel use. Have since switched to stelara for psoriatic arthritis.
I wasn't offered SLNB tho I now hear from my derm I probably should have been? Seeing a surgeon to revisit that soon, but having already ha WLE I know it's iffy.
I was just wondering what supplements or other lifestyle efforts I can make to reduce the chance of spread/recurrence?
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- June 11, 2015 at 7:33 pm
Hey Anonymous,
Wishing you luck with the SLN biopsy if they choose to go ahead, the WLE is definitely the bigger operation so congratulations on making it through that!
There are studies here or there that suggest drinking coffee or curcumin or taking ASA 81mg daily may be beneficial to prevent recurrence. I caution against studies like this. Often times these studies are done in a short period of time (6-12 months), many times on calles in a dish in a lab (and not on actual humans with complex physiology!), and in ridiculous high doses that would be preposterous or impractical to incorporate into a real world setting. And we are always flipping back and forth with suppliment recommendations (a few years ago omega fatty acids were in vogue, then we think they might cause harm. People were also advocating for vitamin D, now thinks it may be more harm than benefit).
I would encourage you to do your research with anything that is offered to you but save your dollars if something doesn't feel right. Natural medicine that works is just called medicine.
That being said if you find a practitioner who you like, makes you feel good, and can help you feel better pursue that! At the end of the day our studies tell us reducing stress through meditation, eating a balanced diet with lots of fruits and veggies, exercising, not smoking, staying out of the sun and sleeping well are the simple, cheap, and very effective ways to take care of yourself!
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- June 11, 2015 at 7:33 pm
Hey Anonymous,
Wishing you luck with the SLN biopsy if they choose to go ahead, the WLE is definitely the bigger operation so congratulations on making it through that!
There are studies here or there that suggest drinking coffee or curcumin or taking ASA 81mg daily may be beneficial to prevent recurrence. I caution against studies like this. Often times these studies are done in a short period of time (6-12 months), many times on calles in a dish in a lab (and not on actual humans with complex physiology!), and in ridiculous high doses that would be preposterous or impractical to incorporate into a real world setting. And we are always flipping back and forth with suppliment recommendations (a few years ago omega fatty acids were in vogue, then we think they might cause harm. People were also advocating for vitamin D, now thinks it may be more harm than benefit).
I would encourage you to do your research with anything that is offered to you but save your dollars if something doesn't feel right. Natural medicine that works is just called medicine.
That being said if you find a practitioner who you like, makes you feel good, and can help you feel better pursue that! At the end of the day our studies tell us reducing stress through meditation, eating a balanced diet with lots of fruits and veggies, exercising, not smoking, staying out of the sun and sleeping well are the simple, cheap, and very effective ways to take care of yourself!
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- June 12, 2015 at 1:26 pm
I disagree with the part of staying out of the sun. Your body needs Vitamin D3 and the best place is the sun. But you must not get burned but a few minutes several times a day will get you Vitamin D3 along with helping.
Using natural items as well are good. Mushrooms, curcurmin and many other things will help with cancers as many boost the immune system as well and a good healthy immune system can also help with getting rid of cancer.
Lots of juicing with non GMO fruits and vegetables as well are good to help build your immune system and make you healthier.
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- June 12, 2015 at 1:26 pm
I disagree with the part of staying out of the sun. Your body needs Vitamin D3 and the best place is the sun. But you must not get burned but a few minutes several times a day will get you Vitamin D3 along with helping.
Using natural items as well are good. Mushrooms, curcurmin and many other things will help with cancers as many boost the immune system as well and a good healthy immune system can also help with getting rid of cancer.
Lots of juicing with non GMO fruits and vegetables as well are good to help build your immune system and make you healthier.
-
- June 12, 2015 at 1:26 pm
I disagree with the part of staying out of the sun. Your body needs Vitamin D3 and the best place is the sun. But you must not get burned but a few minutes several times a day will get you Vitamin D3 along with helping.
Using natural items as well are good. Mushrooms, curcurmin and many other things will help with cancers as many boost the immune system as well and a good healthy immune system can also help with getting rid of cancer.
Lots of juicing with non GMO fruits and vegetables as well are good to help build your immune system and make you healthier.
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- June 13, 2015 at 2:38 pm
Dear SunFriend, the forum has a code of conduct about not using the forum for commercial purposes. Since you own the company (Sunfriend) and you are promoting your product it kind of brakes the rules. Now if you are a melanoma patient and looking for help on the board and I am wrong about your involvement in the company then I am sorry. Ed
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- June 13, 2015 at 2:38 pm
Dear SunFriend, the forum has a code of conduct about not using the forum for commercial purposes. Since you own the company (Sunfriend) and you are promoting your product it kind of brakes the rules. Now if you are a melanoma patient and looking for help on the board and I am wrong about your involvement in the company then I am sorry. Ed
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- June 13, 2015 at 2:38 pm
Dear SunFriend, the forum has a code of conduct about not using the forum for commercial purposes. Since you own the company (Sunfriend) and you are promoting your product it kind of brakes the rules. Now if you are a melanoma patient and looking for help on the board and I am wrong about your involvement in the company then I am sorry. Ed
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- June 16, 2015 at 3:23 am
I have the same pathology as you. .63 depth and 2 mitosis. I did not have the snlb because my doc said there is less than a 5 percent chance that it would be there so the surgery isn't worth it. Anyways feel free to contact me. I would like to know more based on the fact that u have a. Very similar diagnosis to my own- mark- [email protected]. 619-388-9054
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- June 16, 2015 at 3:23 am
I have the same pathology as you. .63 depth and 2 mitosis. I did not have the snlb because my doc said there is less than a 5 percent chance that it would be there so the surgery isn't worth it. Anyways feel free to contact me. I would like to know more based on the fact that u have a. Very similar diagnosis to my own- mark- [email protected]. 619-388-9054
-
- June 16, 2015 at 3:23 am
I have the same pathology as you. .63 depth and 2 mitosis. I did not have the snlb because my doc said there is less than a 5 percent chance that it would be there so the surgery isn't worth it. Anyways feel free to contact me. I would like to know more based on the fact that u have a. Very similar diagnosis to my own- mark- [email protected]. 619-388-9054
-
- June 11, 2015 at 7:33 pm
Hey Anonymous,
Wishing you luck with the SLN biopsy if they choose to go ahead, the WLE is definitely the bigger operation so congratulations on making it through that!
There are studies here or there that suggest drinking coffee or curcumin or taking ASA 81mg daily may be beneficial to prevent recurrence. I caution against studies like this. Often times these studies are done in a short period of time (6-12 months), many times on calles in a dish in a lab (and not on actual humans with complex physiology!), and in ridiculous high doses that would be preposterous or impractical to incorporate into a real world setting. And we are always flipping back and forth with suppliment recommendations (a few years ago omega fatty acids were in vogue, then we think they might cause harm. People were also advocating for vitamin D, now thinks it may be more harm than benefit).
I would encourage you to do your research with anything that is offered to you but save your dollars if something doesn't feel right. Natural medicine that works is just called medicine.
That being said if you find a practitioner who you like, makes you feel good, and can help you feel better pursue that! At the end of the day our studies tell us reducing stress through meditation, eating a balanced diet with lots of fruits and veggies, exercising, not smoking, staying out of the sun and sleeping well are the simple, cheap, and very effective ways to take care of yourself!
-
- June 13, 2015 at 1:41 am
See what you can do to help your immune system to help you. This means regular moderate exercise, eating REAL food (not processed and pesticide-laden food which just gunks up your liver and entire elimination system fending off toxicants) drink REAL water (clean, reverse-osmosis or spring water). Basically, avoid exposing your body to junk. You want your immune system and elimination systems focusing on the cancer, not distracted with extra work. If you've ever taken antibiotics, you might want to take a good daily pro-biotic to replenish a good healthy micro-biome (a healthy gut is key to remaining chronic-disease-free). Nothing I've suggested here is specific to melanoma. It is specific to keeping yourself healthy. The healthier you are, the better position your body is in to identify and fight things that don't belong there. And definitely reduce stress if stress is an issue for you.
Take care,
Maggie
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- June 13, 2015 at 1:41 am
See what you can do to help your immune system to help you. This means regular moderate exercise, eating REAL food (not processed and pesticide-laden food which just gunks up your liver and entire elimination system fending off toxicants) drink REAL water (clean, reverse-osmosis or spring water). Basically, avoid exposing your body to junk. You want your immune system and elimination systems focusing on the cancer, not distracted with extra work. If you've ever taken antibiotics, you might want to take a good daily pro-biotic to replenish a good healthy micro-biome (a healthy gut is key to remaining chronic-disease-free). Nothing I've suggested here is specific to melanoma. It is specific to keeping yourself healthy. The healthier you are, the better position your body is in to identify and fight things that don't belong there. And definitely reduce stress if stress is an issue for you.
Take care,
Maggie
-
- June 13, 2015 at 1:41 am
See what you can do to help your immune system to help you. This means regular moderate exercise, eating REAL food (not processed and pesticide-laden food which just gunks up your liver and entire elimination system fending off toxicants) drink REAL water (clean, reverse-osmosis or spring water). Basically, avoid exposing your body to junk. You want your immune system and elimination systems focusing on the cancer, not distracted with extra work. If you've ever taken antibiotics, you might want to take a good daily pro-biotic to replenish a good healthy micro-biome (a healthy gut is key to remaining chronic-disease-free). Nothing I've suggested here is specific to melanoma. It is specific to keeping yourself healthy. The healthier you are, the better position your body is in to identify and fight things that don't belong there. And definitely reduce stress if stress is an issue for you.
Take care,
Maggie
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