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What a night
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What a night

› Forums › General Melanoma Community › What a night

  • Post
    • December 7, 2012 at 4:09 am
    thrashter
    Participant
      Went to oncologist tonight with all intentions of starting Biochemo therapy. First they tell me because last surgery and melanoma now in soft tissue under arm I am now moved to high risk stage 4. Still some activity they want to watch from pet scan on Monday. They will send scans to surgeon for his opinion. We set next scan for six weeks and see if activity becomes more. No biochemo. We leave with mixed feelings. 20 minutes later in car on way home surgeon calls it is cancer to close to nerves and pectoral muscle. I say to him okay where to next. He says go get chemo now don’t wait.

      Went to oncologist tonight with all intentions of starting Biochemo therapy. First they tell me because last surgery and melanoma now in soft tissue under arm I am now moved to high risk stage 4. Still some activity they want to watch from pet scan on Monday. They will send scans to surgeon for his opinion. We set next scan for six weeks and see if activity becomes more. No biochemo. We leave with mixed feelings. 20 minutes later in car on way home surgeon calls it is cancer to close to nerves and pectoral muscle. I say to him okay where to next. He says go get chemo now don’t wait. What arise. Back to oncologist tomorrow to schedule biochemo. What a night

    Viewing 2 reply threads
    • Replies
        • December 7, 2012 at 7:27 am
        DeniseK
        Participant

          Wow, that is quite a night!  I'm curious if you've done any other type of treatment?  Have they tested your tumors for BRAF?  Just curious why they're starting you on bio chemo.  Is there any other mets in your body? 

          • December 7, 2012 at 7:27 am
          DeniseK
          Participant

            Wow, that is quite a night!  I'm curious if you've done any other type of treatment?  Have they tested your tumors for BRAF?  Just curious why they're starting you on bio chemo.  Is there any other mets in your body? 

            • December 7, 2012 at 7:27 am
            DeniseK
            Participant

              Wow, that is quite a night!  I'm curious if you've done any other type of treatment?  Have they tested your tumors for BRAF?  Just curious why they're starting you on bio chemo.  Is there any other mets in your body? 

                • December 7, 2012 at 2:21 pm
                Snickers60
                Participant

                  Wow – that was a tough night !!!.   So sorry !   I haven't read your bio, but hope this is the best route for you to get to NED ! 

                  Sending best wishes for the treatement !  

                   

                  Nancy (devoted wife of 3 X Warrior Wayne) 

                  • December 7, 2012 at 2:21 pm
                  Snickers60
                  Participant

                    Wow – that was a tough night !!!.   So sorry !   I haven't read your bio, but hope this is the best route for you to get to NED ! 

                    Sending best wishes for the treatement !  

                     

                    Nancy (devoted wife of 3 X Warrior Wayne) 

                    • December 7, 2012 at 2:21 pm
                    Snickers60
                    Participant

                      Wow – that was a tough night !!!.   So sorry !   I haven't read your bio, but hope this is the best route for you to get to NED ! 

                      Sending best wishes for the treatement !  

                       

                      Nancy (devoted wife of 3 X Warrior Wayne) 

                      • December 7, 2012 at 2:33 pm
                      thrashter
                      Participant

                        braf negative Interferon not shown to do much. All mets in same area upper back and under arm. newest 2 mets near pectorals no surgery. Bio showing 15%+ success rate best option with status.

                        • December 7, 2012 at 3:21 pm
                        Tina D
                        Participant

                          Crazy how things change from moment to moment sometimes! Emotional high-speed rollercoaster! Sounds like they are getting you started right away, keep us all posted of your progress. So glad we live in a place where things can move so quickly to get the best care possible. Wishing you the very best response!!

                          Tina

                          • December 7, 2012 at 3:21 pm
                          Tina D
                          Participant

                            Crazy how things change from moment to moment sometimes! Emotional high-speed rollercoaster! Sounds like they are getting you started right away, keep us all posted of your progress. So glad we live in a place where things can move so quickly to get the best care possible. Wishing you the very best response!!

                            Tina

                            • December 7, 2012 at 3:21 pm
                            Tina D
                            Participant

                              Crazy how things change from moment to moment sometimes! Emotional high-speed rollercoaster! Sounds like they are getting you started right away, keep us all posted of your progress. So glad we live in a place where things can move so quickly to get the best care possible. Wishing you the very best response!!

                              Tina

                              • December 8, 2012 at 11:17 pm
                              NYKaren
                              Participant
                                Hi,
                                So sorry you’re going through this. I too am BRAF-
                                Has Yervoy been mentioned? Are you at a Melanoma center of excellence?
                                Please keep us posted.
                                Karen
                                • December 8, 2012 at 11:17 pm
                                NYKaren
                                Participant
                                  Hi,
                                  So sorry you’re going through this. I too am BRAF-
                                  Has Yervoy been mentioned? Are you at a Melanoma center of excellence?
                                  Please keep us posted.
                                  Karen
                                  • December 9, 2012 at 3:29 pm
                                  thrashter
                                  Participant

                                    Because all of my mets have been in the same area of the shoulder auxilla and not moving to other parts of the body Yervoy is not an option yet. Most likely next if Bio has no results. I am at Kaiser riverside Dr. Gailani tops in so cal

                                    • December 9, 2012 at 3:29 pm
                                    thrashter
                                    Participant

                                      Because all of my mets have been in the same area of the shoulder auxilla and not moving to other parts of the body Yervoy is not an option yet. Most likely next if Bio has no results. I am at Kaiser riverside Dr. Gailani tops in so cal

                                      • December 10, 2012 at 6:35 pm
                                      NYKaren
                                      Participant
                                        Sounds like you’re in great hands. I hope this works for you.
                                        Best,
                                        Karen
                                        • December 10, 2012 at 6:35 pm
                                        NYKaren
                                        Participant
                                          Sounds like you’re in great hands. I hope this works for you.
                                          Best,
                                          Karen
                                          • December 10, 2012 at 6:35 pm
                                          NYKaren
                                          Participant
                                            Sounds like you’re in great hands. I hope this works for you.
                                            Best,
                                            Karen
                                            • December 9, 2012 at 3:29 pm
                                            thrashter
                                            Participant

                                              Because all of my mets have been in the same area of the shoulder auxilla and not moving to other parts of the body Yervoy is not an option yet. Most likely next if Bio has no results. I am at Kaiser riverside Dr. Gailani tops in so cal

                                              • December 8, 2012 at 11:17 pm
                                              NYKaren
                                              Participant
                                                Hi,
                                                So sorry you’re going through this. I too am BRAF-
                                                Has Yervoy been mentioned? Are you at a Melanoma center of excellence?
                                                Please keep us posted.
                                                Karen
                                                • December 7, 2012 at 2:33 pm
                                                thrashter
                                                Participant

                                                  braf negative Interferon not shown to do much. All mets in same area upper back and under arm. newest 2 mets near pectorals no surgery. Bio showing 15%+ success rate best option with status.

                                                  • December 7, 2012 at 2:33 pm
                                                  thrashter
                                                  Participant

                                                    braf negative Interferon not shown to do much. All mets in same area upper back and under arm. newest 2 mets near pectorals no surgery. Bio showing 15%+ success rate best option with status.

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