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Webinar from NORD: The Rare Sibling Experience

Forums Pediatric & AYA Melanoma Community Webinar from NORD: The Rare Sibling Experience

  • Post
    Amy-MRF
    Keymaster
      Please see the below information about this important webinar hosted by NORD:

      The Rare Sibling Experience
      Thu, Mar 25, 2021 2:00 PM EDT

      The impact of a rare disease extends beyond the patient and is interwoven into the entire family dynamic. Siblings of rare disease patients often face personal challenges inside and outside of the home. Guidance and nurturing can empower unaffected sibs to be supportive members of the family, while maintaining their unique identities. Please join NORD to hear child life specialist, Kate McGowen, and psychologist, Dr. David Rintell, share commonly observed barriers and best practices for fostering healthy sibling relationships. Hannah Raskin-Gross will share how her experience growing up with a brother who has a rare disease has shaped her commitment to advocacy. This webinar, moderated by NORD guest and child life specialist, Eden Van Alstine, is perfect for patients, advocates, caregivers, students, and the public.

      Register for this free, 60-minute webinar on March 25, 2021 at 2pm.

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