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Please see the below information about this important webinar hosted by NORD:
The Rare Sibling Experience
Thu, Mar 25, 2021 2:00 PM EDT
The impact of a rare disease extends beyond the patient and is interwoven into the entire family dynamic. Siblings of rare disease patients often face personal challenges inside and outside of the home. Guidance and nurturing can empower unaffected sibs to be supportive members of the family, while maintaining their unique identities. Please join NORD to hear child life specialist, Kate McGowen, and psychologist, Dr. David Rintell, share commonly observed barriers and best practices for fostering healthy sibling relationships. Hannah Raskin-Gross will share how her experience growing up with a brother who has a rare disease has shaped her commitment to advocacy. This webinar, moderated by NORD guest and child life specialist, Eden Van Alstine, is perfect for patients, advocates, caregivers, students, and the public.
Register for this free, 60-minute webinar on March 25, 2021 at 2pm.
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About the MRF Patient Forum
The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.
The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.