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WBRT Again

Forums General Melanoma Community WBRT Again

  • Post
    RitysMom
    Participant

    Last Thursday, my daughter met with a radiation oncologist, neurosurgeon, and her melanoma specialist at MDA. All three said her only option was a second round of WBRT. Her first round was 3 weeks in August of 2016. This time they're planning to do 2 weeks. Afterward, they will start her on Keytruda. They also said that gamma knife might be an option in the future, once the number of brain mets is a more manageable number.

    The neurosurgeon said that one of the long-term effects of WBRT was memory loss, but that if she's experiencing that 1 or 2 years in the future, we should celebrate that she's still here…that was hard to hear. In spite of that, I truly am hopeful that she will overcome this most recent setback. What I'd like to know is what might we be looking at side-effect wise…is memory loss the worst thing she might experience? I'm not discounting how frustrating that would be for her, but as her mom, I just want her to live.

    This is from her MRI

    Findings: As noted on the recent prior comparison examination there are multiple hemorrhagic lesions seen within the brain parenchyma. The dominant lesion is seen in the LEFT occipital lobe measuring 32 mm with central necrosis and moderate surrounding vasogenic edema. There is a largely solid lesion seen within the RIGHT single gyrus measuring 19 mm. Minimal additional lesions are identified most of which are smaller in size. A 21 mm cyst seen lobe.

    Impression: Rapid development of greater than 20 hemorrhagic intra-axial enhancing lesions associated with mild/moderate vasogenic edema. These are consistent with hemorrhagic metastases.

     

    Any insight is appreciated.

     

     

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      Patrisa
      Participant

      Dear Cindy,

      I am so sorry your daughter has to deal with this…

      My friends mother had a wbrt (lung cancer) and she didn't lose her memory at all… So don't expect your daughter definitely will… maybe something subtle like litle trouble remembering some things, not full blown memory loss…

      And yes, i agree with doctors, beeing alive outweighs and other non life threathening condition…

      Radiation plus keytruda sounds like a great plan…

      Take care,

      Patrisa

        meltedtime
        Participant

        Hopefully her age helps. Most studies on memory loss and dementia are in older patients. I am 42 and just finished WBRT for 2 weeks. It's scary as hell with everything going on to add in the thought of surviving without my faculties. Keep the brain working as much as possible. The brain is highly adaptive, keep the neurons firing; work on memory games, sokudo, crosswords.

        RitysMom
        Participant

        That's great advice…thank you! Hoping radiation did its job for you!

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