› Forums › General Melanoma Community › Very Flusterated
- This topic has 9 replies, 3 voices, and was last updated 12 years, 3 months ago by
Lauri England.
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- January 17, 2012 at 7:06 pm
I called my Onc office yesterday morning at 9am to see if I could get my PET scan results. The lady at the front desk confirmed that the Path report was there and the doctor had signed off on it. She said a nurse would call me later with results. Well I called again at 4pm and was told that they were very busy today and nurse probably did not get to it yet and to be patient. Well, then suddenly it was 5pm and the office was closed. At 8:30am this morning I received a call from nurse there and she just had some questions about a release of medical records t
I called my Onc office yesterday morning at 9am to see if I could get my PET scan results. The lady at the front desk confirmed that the Path report was there and the doctor had signed off on it. She said a nurse would call me later with results. Well I called again at 4pm and was told that they were very busy today and nurse probably did not get to it yet and to be patient. Well, then suddenly it was 5pm and the office was closed. At 8:30am this morning I received a call from nurse there and she just had some questions about a release of medical records that she received from Melanoma Clinic in GR. She said she sees that there is a note out there on my electronic file to contact me for Path results. She asked if she could place me on hold for a minute, It was about 5 minutes. Anyway she come back on and said she could not give me results to my test but she would tell me that from a nurses point of view the results looked OK…So not to worry myself to much. That was all the info she could give to me and said the doctor wants to give me results Thursday at my appointment. Are you kidding me???Do they not realize how stressful waiting is????No probably not. When we got off the phone I called Breslin back and wanted to see if I was still going to be contacted by a nurse with the results that I was told I could get and had confirmed with the 1st phone call yesterday that they were in and the doctor had signed off of them. The lady I spoke to this time said if the nurses called each patient with results to tests that had been run they would be on the phone all day long. No way I could be hearing this. I wanted to explode. She told me that worse case scenario I would get the results Thursday. I am so upset. I have never had a problem getting Path report over the phone, ever. The last time in October I was told that the nurse had to get the doctors permission to release path results to me but it was same day. I was also informed both of my doctors are out today so there is nothing I can do today. The last time the doctors permission was needed to release info they found some things and I can't help but get a bad feeling this time. I am trying to get through the rest of today and pray they call tomorrow. It just does not feel good to me and I have a bad feeling. Any thoughts????
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- January 17, 2012 at 7:21 pm
We go directly to the facility where the test was and get the results ourselves. After his imaging, he waits and picks up the digital copy of the images and then he goes back for the written when they are ready.
They are your results and you should have a copy of them for your records.
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- January 17, 2012 at 7:21 pm
We go directly to the facility where the test was and get the results ourselves. After his imaging, he waits and picks up the digital copy of the images and then he goes back for the written when they are ready.
They are your results and you should have a copy of them for your records.
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- January 17, 2012 at 7:21 pm
We go directly to the facility where the test was and get the results ourselves. After his imaging, he waits and picks up the digital copy of the images and then he goes back for the written when they are ready.
They are your results and you should have a copy of them for your records.
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- January 17, 2012 at 8:46 pm
I agee! What is the problem-why its so hard on the admin side. My brother has had alot of medical record errors over the past 9 years in his fight with Mel. There have been so many costly mistakes. I agree with last post-go and wait for films and written report in person. Best of luck.
MrsMarilyn
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- January 17, 2012 at 8:46 pm
I agee! What is the problem-why its so hard on the admin side. My brother has had alot of medical record errors over the past 9 years in his fight with Mel. There have been so many costly mistakes. I agree with last post-go and wait for films and written report in person. Best of luck.
MrsMarilyn
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- January 17, 2012 at 8:46 pm
I agee! What is the problem-why its so hard on the admin side. My brother has had alot of medical record errors over the past 9 years in his fight with Mel. There have been so many costly mistakes. I agree with last post-go and wait for films and written report in person. Best of luck.
MrsMarilyn
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- January 17, 2012 at 10:07 pm
Well I took the advice to go get the report myself. I just got back. I have to say this report is a lot different then the one I am used to getting at the doctors office. It says for the Thorax findings
Mediastinal structures are unremarkable
No evidence for adenopathy or mass
Lung parenchyma and pleural spaces are normal
Bone structures are normal.
There is nothing noted about that nodual from my last CT scan which I assume is great. Findings on the liver and biliary tree is unremarkable. So I assume that is good as well. The only noted thing of concern is
Subtle focus of activity in the right pelvic region appears to be social with oval structure measuring up to 2.9cm in greatest size best seen at slice position -603.76. I suspect this more likely represents old variant uptake in the overy rather then representing metastatic abnormality. SUV maximum 3.2.
Focal activity right pelvis more likely related to the ovary then metastatic disease, untrasound would confirm.
Well I take this to mean there is something in my stomach now to watch and I guess they will probably be doing an altrasound. I guess this was not to bad. I surely wish for clear scans though and not to have to watch something all the time. I will be getting a second opinion with melanoma specialist though. I will be taking CDs of all the scans I have to them to review and path reports and records.
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- January 17, 2012 at 10:07 pm
Well I took the advice to go get the report myself. I just got back. I have to say this report is a lot different then the one I am used to getting at the doctors office. It says for the Thorax findings
Mediastinal structures are unremarkable
No evidence for adenopathy or mass
Lung parenchyma and pleural spaces are normal
Bone structures are normal.
There is nothing noted about that nodual from my last CT scan which I assume is great. Findings on the liver and biliary tree is unremarkable. So I assume that is good as well. The only noted thing of concern is
Subtle focus of activity in the right pelvic region appears to be social with oval structure measuring up to 2.9cm in greatest size best seen at slice position -603.76. I suspect this more likely represents old variant uptake in the overy rather then representing metastatic abnormality. SUV maximum 3.2.
Focal activity right pelvis more likely related to the ovary then metastatic disease, untrasound would confirm.
Well I take this to mean there is something in my stomach now to watch and I guess they will probably be doing an altrasound. I guess this was not to bad. I surely wish for clear scans though and not to have to watch something all the time. I will be getting a second opinion with melanoma specialist though. I will be taking CDs of all the scans I have to them to review and path reports and records.
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- January 17, 2012 at 10:07 pm
Well I took the advice to go get the report myself. I just got back. I have to say this report is a lot different then the one I am used to getting at the doctors office. It says for the Thorax findings
Mediastinal structures are unremarkable
No evidence for adenopathy or mass
Lung parenchyma and pleural spaces are normal
Bone structures are normal.
There is nothing noted about that nodual from my last CT scan which I assume is great. Findings on the liver and biliary tree is unremarkable. So I assume that is good as well. The only noted thing of concern is
Subtle focus of activity in the right pelvic region appears to be social with oval structure measuring up to 2.9cm in greatest size best seen at slice position -603.76. I suspect this more likely represents old variant uptake in the overy rather then representing metastatic abnormality. SUV maximum 3.2.
Focal activity right pelvis more likely related to the ovary then metastatic disease, untrasound would confirm.
Well I take this to mean there is something in my stomach now to watch and I guess they will probably be doing an altrasound. I guess this was not to bad. I surely wish for clear scans though and not to have to watch something all the time. I will be getting a second opinion with melanoma specialist though. I will be taking CDs of all the scans I have to them to review and path reports and records.
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