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Vertigo
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Vertigo

› Forums › General Melanoma Community › Vertigo

  • Post
    • October 16, 2016 at 10:19 pm
    youngann
    Participant

      I just had my 3rd dose of Ipi 3mg/kg and, so far, in addition to 5 days of constipation with each dose, I’ve had only mild nausea, itchiness and fatigue. However, since starting the Ipi, about 3 or 4 times a week, I’ve had a spell of vertigo when getting into bed at night. It’s only happening after I turn out the light and as my head hits the pillow. I have to force myself to stare at the alarm clock in order to stop the bed from tilting and trying to tip me onto the floor.

      My thought is this is something totally unrelated to melanoma or Ipi but I was wondering if anyone else had experienced this dark vertigo thing while under treatment.

      Ann

    Viewing 8 reply threads
    • Replies
        • October 16, 2016 at 10:29 pm
        debwray
        Participant

          Hi,

          Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

          Best wishes

          Deb

          • October 16, 2016 at 10:29 pm
          debwray
          Participant

            Hi,

            Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

            Best wishes

            Deb

            • October 16, 2016 at 10:29 pm
            debwray
            Participant

              Hi,

              Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

              Best wishes

              Deb

                • October 20, 2016 at 5:44 am
                Anthony214
                Participant

                  I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

                  • October 20, 2016 at 5:44 am
                  Anthony214
                  Participant

                    I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

                    • October 20, 2016 at 5:44 am
                    Anthony214
                    Participant

                      I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

                    • October 16, 2016 at 11:08 pm
                    keepthefaith11
                    Participant
                      My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

                      Annie

                      • October 16, 2016 at 11:08 pm
                      keepthefaith11
                      Participant
                        My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

                        Annie

                        • October 16, 2016 at 11:08 pm
                        keepthefaith11
                        Participant
                          My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

                          Annie

                          • October 18, 2016 at 2:15 pm
                          cancersnewnormal
                          Participant

                            Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

                              • October 18, 2016 at 5:28 pm
                              youngann
                              Participant

                                Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

                                • October 18, 2016 at 5:28 pm
                                youngann
                                Participant

                                  Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

                                  • October 18, 2016 at 5:28 pm
                                  youngann
                                  Participant

                                    Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

                                    • October 18, 2016 at 6:02 pm
                                    cancersnewnormal
                                    Participant

                                      The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

                                      • October 18, 2016 at 6:02 pm
                                      cancersnewnormal
                                      Participant

                                        The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

                                        • October 18, 2016 at 9:02 pm
                                        youngann
                                        Participant

                                          That makes a lot of sense, Niki, thank you.

                                          • October 18, 2016 at 9:02 pm
                                          youngann
                                          Participant

                                            That makes a lot of sense, Niki, thank you.

                                            • October 18, 2016 at 9:02 pm
                                            youngann
                                            Participant

                                              That makes a lot of sense, Niki, thank you.

                                              • October 18, 2016 at 6:02 pm
                                              cancersnewnormal
                                              Participant

                                                The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

                                              • October 18, 2016 at 2:15 pm
                                              cancersnewnormal
                                              Participant

                                                Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

                                                • October 18, 2016 at 2:15 pm
                                                cancersnewnormal
                                                Participant

                                                  Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

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