Vertigo
REGISTER
The information on this site is not intended or implied to be a substitute for professional medical advice, diagnosis or treatment. Content within the patient forum is user-generated and has not been reviewed by medical professionals. Other sections of the Melanoma Research Foundation website include information that has been reviewed by medical professionals as appropriate. All medical decisions should be made in consultation with your doctor or other qualified medical professional.

Vertigo

› Forums › General Melanoma Community › Vertigo

  • Post
    • October 16, 2016 at 10:19 pm
    youngann
    Participant

    I just had my 3rd dose of Ipi 3mg/kg and, so far, in addition to 5 days of constipation with each dose, I’ve had only mild nausea, itchiness and fatigue. However, since starting the Ipi, about 3 or 4 times a week, I’ve had a spell of vertigo when getting into bed at night. It’s only happening after I turn out the light and as my head hits the pillow. I have to force myself to stare at the alarm clock in order to stop the bed from tilting and trying to tip me onto the floor.

    My thought is this is something totally unrelated to melanoma or Ipi but I was wondering if anyone else had experienced this dark vertigo thing while under treatment.

    Ann

Viewing 8 reply threads
  • Replies
      • October 16, 2016 at 10:29 pm
      debwray
      Participant

      Hi,

      Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

      Best wishes

      Deb

      • October 16, 2016 at 10:29 pm
      debwray
      Participant

      Hi,

      Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

      Best wishes

      Deb

        • October 20, 2016 at 5:44 am
        Anthony214
        Participant

        I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

        • October 20, 2016 at 5:44 am
        Anthony214
        Participant

        I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

        • October 20, 2016 at 5:44 am
        Anthony214
        Participant

        I had BPPV  a few years ago, the vertigo was so bad that I felt a spinning sensation when I make quick movement with my head. After a day or two it turned into a sort of head cold and the vertigo feeling was gone. With one of my friends suggestion, I took the BBPV physiotherapy treatment from a clinic in Toronto which was really effective in managing dizziness and vertigo to a great extent. 

      • October 16, 2016 at 10:29 pm
      debwray
      Participant

      Hi,

      Think dizzyness / vertigo is quite commonly reported with ipi. just been reading up on side effects but expect someone with personal experience will feedback soon.

      Best wishes

      Deb

      • October 16, 2016 at 11:08 pm
      keepthefaith11
      Participant
      My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

      Annie

      • October 16, 2016 at 11:08 pm
      keepthefaith11
      Participant
      My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

      Annie

      • October 16, 2016 at 11:08 pm
      keepthefaith11
      Participant
      My dad had 3 days of dizziness/vertigo after his 2nd Nivo infusion. We were attributing it to the drug. Love to hear other opinions on this though.

      Annie

      • October 18, 2016 at 2:15 pm
      cancersnewnormal
      Participant

      Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

      • October 18, 2016 at 2:15 pm
      cancersnewnormal
      Participant

      Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

      • October 18, 2016 at 2:15 pm
      cancersnewnormal
      Participant

      Thinking back, I do recall having a few spells during the Ipi days. Might have been a direct result of the drug… but then it knocked my thryroid offline, and it might have been the hypo symptoms. Are they checking your FT4 and TSH levels with your pre infusion blood labs?

        • October 18, 2016 at 5:28 pm
        youngann
        Participant

        Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

        • October 18, 2016 at 6:02 pm
        cancersnewnormal
        Participant

        The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

        • October 18, 2016 at 9:02 pm
        youngann
        Participant

        That makes a lot of sense, Niki, thank you.

        • October 18, 2016 at 9:02 pm
        youngann
        Participant

        That makes a lot of sense, Niki, thank you.

        • October 18, 2016 at 9:02 pm
        youngann
        Participant

        That makes a lot of sense, Niki, thank you.

        • October 18, 2016 at 6:02 pm
        cancersnewnormal
        Participant

        The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

        • October 18, 2016 at 6:02 pm
        cancersnewnormal
        Participant

        The darkness to your pupils may be the same response as closing your eyes. In yoga, during balance poses, when we feel super comfortable, we try to close our eyes and maintain the pose. It's much harder to balance without the visual input of where we are in relation to the universe. Might also explain why staring at the clock helps to stop the spin. I'm not sure what the science or medical explanation is behind this… It's just something I've noted. When I go in for check ups with my radiation oncologist, they always run me through neuro tests, including closing my eyes and holding my arms straight out in front of me, or simply maintaining balance. Sort of like a roadside DUI test. LOL! The drugs are probably affecting something in your head, but you don't notice it until your eyes can't "confirm" your position in the world. Hmmmmm.

        • October 18, 2016 at 5:28 pm
        youngann
        Participant

        Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

        • October 18, 2016 at 5:28 pm
        youngann
        Participant

        Yes, my bloods have been, in the doctor's own words, "as perfect as any I've ever seen". I didn't really connect it with the Ipi as it only seems to happen when I first turn out the light.

Viewing 8 reply threads
  • You must be logged in to reply to this topic.
About the MRF Patient Forum

The MRF Patient Forum is the oldest and largest online community of people affected by melanoma. It is designed to provide peer support and information to caregivers, patients, family and friends. There is no better place to discuss different parts of your journey with this cancer and find the friends and support resources to make that journey more bearable.

The information on the forum is open and accessible to everyone. To add a new topic or to post a reply, you must be a registered user. Please note that you will be able to post both topics and replies anonymously even though you are logged in. All posts must abide by MRF posting policies.

Popular Topics