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Update Post Surgery Clinical Trial Etc
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Update Post Surgery Clinical Trial Etc

› Forums › General Melanoma Community › Update Post Surgery Clinical Trial Etc

  • Post
    • November 16, 2013 at 2:11 am
    MattF
    Participant

      So i got the scans and tests done for the Ipi v Interferon clinical Trial at UCLA for my head melanoma….

       

      PET Scan verbal report came back with 2 hot nodes…one directly under the dissection site and the other behind my clavacle. 

      I am only 5 weeks out of surgery….this of course put me on hold for that trial and we await the complete PET-CT report.

      5 weeks after they remove my parotid gland and 60 lymph nodes….I get two things that prelim reports show as hot perfectly round nodes….is this normal wierd etc?

    Viewing 5 reply threads
    • Replies
        • November 16, 2013 at 2:58 pm
        noisy77
        Participant

          I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

          • November 16, 2013 at 2:58 pm
          noisy77
          Participant

            I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

              • November 16, 2013 at 3:17 pm
              MattF
              Participant

                See thats what i expected…maybe the jaw , cheek and ear to show up as a hot mass….

                but the verbal "telephone report" certainly makes it sound as if it is two identifiable nodes 3 to 4 inches apart. 

                thanks

                • November 16, 2013 at 11:50 pm
                killmel
                Participant

                  Matt,

                   

                  I am sorry to hear that the verbal report indicates further active disease. There is never a "norm" when dealing with melanoma. Try not to worry.

                  Angela

                  • November 17, 2013 at 12:28 am
                  killmel
                  Participant

                    Matt, Forgot is ask you whether or not you are going forward with the clinical trial?

                    • November 17, 2013 at 12:28 am
                    killmel
                    Participant

                      Matt, Forgot is ask you whether or not you are going forward with the clinical trial?

                      • November 17, 2013 at 12:28 am
                      killmel
                      Participant

                        Matt, Forgot is ask you whether or not you are going forward with the clinical trial?

                        • November 16, 2013 at 11:50 pm
                        killmel
                        Participant

                          Matt,

                           

                          I am sorry to hear that the verbal report indicates further active disease. There is never a "norm" when dealing with melanoma. Try not to worry.

                          Angela

                          • November 16, 2013 at 11:50 pm
                          killmel
                          Participant

                            Matt,

                             

                            I am sorry to hear that the verbal report indicates further active disease. There is never a "norm" when dealing with melanoma. Try not to worry.

                            Angela

                            • November 16, 2013 at 3:17 pm
                            MattF
                            Participant

                              See thats what i expected…maybe the jaw , cheek and ear to show up as a hot mass….

                              but the verbal "telephone report" certainly makes it sound as if it is two identifiable nodes 3 to 4 inches apart. 

                              thanks

                              • November 16, 2013 at 3:17 pm
                              MattF
                              Participant

                                See thats what i expected…maybe the jaw , cheek and ear to show up as a hot mass….

                                but the verbal "telephone report" certainly makes it sound as if it is two identifiable nodes 3 to 4 inches apart. 

                                thanks

                                • November 17, 2013 at 3:28 pm
                                94z28joe
                                Participant

                                  matt I had the same surgery and they saw a couple nodes in my neck that they didnt like after a scan and sent me for a ultrasound fine needle asperation. my results came back clean they think they where just that way from the surgery as the havent changed (fingers crossed) since then so far. I was able to get into the Ippi trial wish you luck. 

                                  • November 17, 2013 at 3:28 pm
                                  94z28joe
                                  Participant

                                    matt I had the same surgery and they saw a couple nodes in my neck that they didnt like after a scan and sent me for a ultrasound fine needle asperation. my results came back clean they think they where just that way from the surgery as the havent changed (fingers crossed) since then so far. I was able to get into the Ippi trial wish you luck. 

                                    • November 17, 2013 at 3:28 pm
                                    94z28joe
                                    Participant

                                      matt I had the same surgery and they saw a couple nodes in my neck that they didnt like after a scan and sent me for a ultrasound fine needle asperation. my results came back clean they think they where just that way from the surgery as the havent changed (fingers crossed) since then so far. I was able to get into the Ippi trial wish you luck. 

                                    • November 16, 2013 at 2:58 pm
                                    noisy77
                                    Participant

                                      I'm not sure- but I do know after my moms lymph node dissection – the whole area showed up as "hot" on the next PET scan.  

                                      • November 18, 2013 at 2:00 am
                                      Tina D
                                      Participant

                                        Five weeks seems soon for a PET after surgery. Those areas can be likely to uptake because of the tissue damage, etc. Hopefully that is all that is being seen here. What is the plan at this point? I am sure this is frustrating, to say the least… How are you feeling as far as your recovery goes? That was a big surgery youhad.

                                        Tina

                                        • November 18, 2013 at 2:00 am
                                        Tina D
                                        Participant

                                          Five weeks seems soon for a PET after surgery. Those areas can be likely to uptake because of the tissue damage, etc. Hopefully that is all that is being seen here. What is the plan at this point? I am sure this is frustrating, to say the least… How are you feeling as far as your recovery goes? That was a big surgery youhad.

                                          Tina

                                          • November 18, 2013 at 2:00 am
                                          Tina D
                                          Participant

                                            Five weeks seems soon for a PET after surgery. Those areas can be likely to uptake because of the tissue damage, etc. Hopefully that is all that is being seen here. What is the plan at this point? I am sure this is frustrating, to say the least… How are you feeling as far as your recovery goes? That was a big surgery youhad.

                                            Tina

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