Update PD 1
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Update PD 1

› Forums › General Melanoma Community › Update PD 1

  • Post
    • December 21, 2013 at 6:44 pm
    tasjacques
    Participant

    My husband, Jacques has been doing so well in PD 1, his response has been fantastic as we posted back in August at the 12 weeks mark, and then he has continue to response to it as the next scans showed still regression/shrinkage of the tumors on the lungs, liver and lymph nodes Great! 

    BUT since the beginning of November he has been suffering this excruciating stomach pains, diagnosed as gastritis, no medication is really helping him with the pain. About a week and a half ago his blood pressure drop to low 70's over 50's and last Tuesday when we went to the doc his BP was 64/37. He is now in the hospital to bring the BP up, give him nutrients (at this point he was not eating much or not at all). He has had severe fatigue, pain all over, decrease appetite.

    Today they will be testing for hypothyroidism to see if this is the culprit.

    has anyone experience hypothyroidism? What were your symptoms, all the doctors that have seen him, don't have an answer really for us in what is causing all his symptoms.

    I don't know how to feel, I am frustrated that we can't help him, that we can't find what's going on for him to have all these symptoms, specially the abdominal pain. 

    He was doing so good, and BAM! has lost 20 lbs, extreme fatigue, sleeping all day, unable to walk for long…

    thanks for reading. I keep praying but feel lost

    Elenise

    (Jacques profile is under tasjacques)

     

Viewing 11 reply threads
  • Replies
      • December 21, 2013 at 10:28 pm
      awillett1991
      Participant

      Pd1 and Ipi both are hard on the endocrine system.  I've been both hypo and hyper thyroid because of them and the good news is these are easily controlled with medication and easily diagnosed via blood testing. I hope they can help him out and quickly!

      amy

      • December 21, 2013 at 10:28 pm
      awillett1991
      Participant

      Pd1 and Ipi both are hard on the endocrine system.  I've been both hypo and hyper thyroid because of them and the good news is these are easily controlled with medication and easily diagnosed via blood testing. I hope they can help him out and quickly!

      amy

      • December 21, 2013 at 10:28 pm
      awillett1991
      Participant

      Pd1 and Ipi both are hard on the endocrine system.  I've been both hypo and hyper thyroid because of them and the good news is these are easily controlled with medication and easily diagnosed via blood testing. I hope they can help him out and quickly!

      amy

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 22, 2013 at 6:46 pm
      tasjacques
      Participant

      Amy,

      thank you for your reply, I do hope is simple to remedy his symptoms. I am also glad we are under a melanoma specialist (though far away from us) because he is the one helping us figure out. We are still waiting for results on the blood tests…wait due to weekend schedules. It helps me think that with specific mess he will rebounce back and start to be healthy again. It is so hard to see him suffer so much 🙁

      Elenise

       

      • December 26, 2013 at 3:54 pm
      killmel
      Participant

      How is Jacque doing?

      • December 26, 2013 at 3:54 pm
      killmel
      Participant

      How is Jacque doing?

      • December 26, 2013 at 3:54 pm
      killmel
      Participant

      How is Jacque doing?

Viewing 11 reply threads
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