Hello everyone,
Thought I should post another update which will give hope to other fellow sufferers.
In March 2014 changed from Zelboraf to Tafinlar which shows lesser side effects for sun sensitivity and skin problems. Tafinlar contains the same substance as Zelboraf, namely vemurafenib.
I had some troublesome months since April 2014 when small lesions started to appear on the scan.
There was among others a possible bone metastasis on the sacrum wing and the doctors were already planning some radiotherapy sessions, but since it didn't hurt anymore, they decided that it was not appropriate to start the irradiation. They decided to wait until the next scan and the lesion showed unchanged after two months.
In the meantime, I had an accident and I broke my hip. This happened in August and during surgery they placed a hip prothesis. My scan of September showed also various lesions, but the doctors said that this was due to the accident.
And then in October 2014, I passed another petscan which shows NED again.
This is just to say that when the scan shows sometimes worrying lesions, that these can dissappear again after a few months. During all this time I didn't stop my medication and I feel very good for the moment. I have very little side effects now and I'm fully recovered from my hip surgery.
I will be able to celebrate another wonderful Christmas together with my family.
Greetings to everyone 😀
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