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Update on my friend Helen
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Update on my friend Helen

› Forums › General Melanoma Community › Update on my friend Helen

  • Post
    • January 22, 2013 at 8:08 pm
    vicuk
    Participant

      Just to update you all on her latest scan. She's on the GSK Dabrafenib/Tranetenib trial. She was told 6 months ago that she had six months to live. This scan, so far, has been her biggest mentally as she was expecting the worst. Six months ago, she had tumours in her lungs and a big one on her hip. Last scan she was told lung tumours were immesurable and hip tumour had started to decay. This scan she's been told lung mets still immesurable and now hip tumour started to decrease in size.

      Just to update you all on her latest scan. She's on the GSK Dabrafenib/Tranetenib trial. She was told 6 months ago that she had six months to live. This scan, so far, has been her biggest mentally as she was expecting the worst. Six months ago, she had tumours in her lungs and a big one on her hip. Last scan she was told lung tumours were immesurable and hip tumour had started to decay. This scan she's been told lung mets still immesurable and now hip tumour started to decrease in size. This was a fantastic result and also a massive hurdle for Helen to get over as she now knows that what they told her was wrong. It has given her hope. She looks fantastic, is working part time with me in school and part time on her family farm. She has absolutely no side effects on these drugs  except from slight photo sensitivity. It's unbelievable that she was told she would only have up to now. I think the point I'm trying to make is that there are remarkable drugs and developments afoot .

      I read this forum daily and think of you all througout the day every day. I read this site for hope, inspiration and knowledge. I get it in buckets from you.

      Kindest regards and very best wishes,

      Vic.

    Viewing 14 reply threads
    • Replies
        • January 22, 2013 at 9:25 pm
        bikerwife
        Participant

          whoop whoop happy dance

          • January 22, 2013 at 9:25 pm
          bikerwife
          Participant

            whoop whoop happy dance

            • January 22, 2013 at 9:25 pm
            bikerwife
            Participant

              whoop whoop happy dance

              • January 22, 2013 at 10:10 pm
              aldakota22
              Participant

                Thank God.Happy that another fighter on this site proves once again we are not statistics.Against odds their are more of us beating this disease..Happy day when we all will be able to Beat the Beast.Keep the good news coming and keep tha PMA..   Al

                • January 22, 2013 at 10:10 pm
                aldakota22
                Participant

                  Thank God.Happy that another fighter on this site proves once again we are not statistics.Against odds their are more of us beating this disease..Happy day when we all will be able to Beat the Beast.Keep the good news coming and keep tha PMA..   Al

                  • January 22, 2013 at 10:10 pm
                  aldakota22
                  Participant

                    Thank God.Happy that another fighter on this site proves once again we are not statistics.Against odds their are more of us beating this disease..Happy day when we all will be able to Beat the Beast.Keep the good news coming and keep tha PMA..   Al

                    • January 23, 2013 at 1:34 am
                    Swanee
                    Participant

                      Thank you for posting such great news, it helps us all in a very big way!  This is so encouraging to so many and we share in your joy and celebrate with you!   Wishing Helen continued healing and survivorship and soon the coveted NED status!  

                      Swanee

                        • January 23, 2013 at 6:05 pm
                        vicuk
                        Participant

                          Thanks very much. I've passed your kind wishes on.

                          • January 23, 2013 at 6:05 pm
                          vicuk
                          Participant

                            Thanks very much. I've passed your kind wishes on.

                            • January 23, 2013 at 6:05 pm
                            vicuk
                            Participant

                              Thanks very much. I've passed your kind wishes on.

                            • January 23, 2013 at 1:34 am
                            Swanee
                            Participant

                              Thank you for posting such great news, it helps us all in a very big way!  This is so encouraging to so many and we share in your joy and celebrate with you!   Wishing Helen continued healing and survivorship and soon the coveted NED status!  

                              Swanee

                              • January 23, 2013 at 1:34 am
                              Swanee
                              Participant

                                Thank you for posting such great news, it helps us all in a very big way!  This is so encouraging to so many and we share in your joy and celebrate with you!   Wishing Helen continued healing and survivorship and soon the coveted NED status!  

                                Swanee

                                • January 23, 2013 at 10:50 pm
                                JerryfromFauq
                                Participant

                                  Tell Helen I was told the same thing in Feb 2007.  Hope to see her report in another 5 years!  Yes, the statistics that were available in the past expected 50% of stage IV people to not make it for more than 6 months from diagnoses.  My advice upon receiving the stage IV diagnoses is:

                                  1. to make sure ones significant others know what they need to take care of things if we go in that time. 

                                  2.  To learn and work in the attempt to keep them from having to use what they learned. 

                                  Remember statistics are for a mass of people.  I'm just a me , not a group!

                                  Love to see posts l ike yours.

                                  • January 23, 2013 at 10:50 pm
                                  JerryfromFauq
                                  Participant

                                    Tell Helen I was told the same thing in Feb 2007.  Hope to see her report in another 5 years!  Yes, the statistics that were available in the past expected 50% of stage IV people to not make it for more than 6 months from diagnoses.  My advice upon receiving the stage IV diagnoses is:

                                    1. to make sure ones significant others know what they need to take care of things if we go in that time. 

                                    2.  To learn and work in the attempt to keep them from having to use what they learned. 

                                    Remember statistics are for a mass of people.  I'm just a me , not a group!

                                    Love to see posts l ike yours.

                                      • January 24, 2013 at 1:36 am
                                      NYKaren
                                      Participant
                                        Great news, Vic. So happy and encouraging. Thanks for sharing it with us. We’re making those old statistics obsolete!
                                        Love to Helen.
                                        Karen
                                        • January 24, 2013 at 1:36 am
                                        NYKaren
                                        Participant
                                          Great news, Vic. So happy and encouraging. Thanks for sharing it with us. We’re making those old statistics obsolete!
                                          Love to Helen.
                                          Karen
                                          • January 24, 2013 at 1:36 am
                                          NYKaren
                                          Participant
                                            Great news, Vic. So happy and encouraging. Thanks for sharing it with us. We’re making those old statistics obsolete!
                                            Love to Helen.
                                            Karen
                                          • January 23, 2013 at 10:50 pm
                                          JerryfromFauq
                                          Participant

                                            Tell Helen I was told the same thing in Feb 2007.  Hope to see her report in another 5 years!  Yes, the statistics that were available in the past expected 50% of stage IV people to not make it for more than 6 months from diagnoses.  My advice upon receiving the stage IV diagnoses is:

                                            1. to make sure ones significant others know what they need to take care of things if we go in that time. 

                                            2.  To learn and work in the attempt to keep them from having to use what they learned. 

                                            Remember statistics are for a mass of people.  I'm just a me , not a group!

                                            Love to see posts l ike yours.

                                            • January 25, 2013 at 3:18 am
                                            BrianP
                                            Participant

                                              Thanks for the uplifting news!

                                              • January 25, 2013 at 3:18 am
                                              BrianP
                                              Participant

                                                Thanks for the uplifting news!

                                                • January 25, 2013 at 3:18 am
                                                BrianP
                                                Participant

                                                  Thanks for the uplifting news!

                                              Viewing 14 reply threads
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