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Update on Ipi versus Nivo trial
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Update on Ipi versus Nivo trial

› Forums › General Melanoma Community › Update on Ipi versus Nivo trial

  • Post
    • September 22, 2015 at 1:35 pm
    dentholla
    Participant

      Today marks week 12 for my husband on the Ipi versus Nivo trial at Texas Oncology.  He is Stage iiib and we are hoping for the best as scans are already underway.  We should meet with our doctor later today to see if we can proceed with treatment.  

      He and I both feel fortunate as he has experienced very little side effects.  He is either getting 9mg of Ipi or 3mg of Nivo.  A little fatigue the day of/after treatments.  At the beginning had a slight rash on his arm but it went away.  A little upset stomach here and there but to date hasn't had to offset it with meds.  Bloodwork has been in the normal range and low LDH when they've tested him for it.  He will be tested for LDH again today.

      I've read so many positive things about this trial and hopeful that the efficacy we all expect to see with these drugs being used in adjuvant setting prove in the research.  Here's to hope!!!

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    • Replies
        • September 25, 2015 at 2:36 am
        geriakt
        Participant

           

          I am on the same trial. I am on week 3 so far. Yesterday I developed ichy skin all over. I was only tired after my first double infusion. Did you get a port?

          Tom

           

            • September 25, 2015 at 1:01 pm
            dentholla
            Participant

              Hi Tom, no port and I don't think he's planning on it either.  He hates getting stuck all the time but from here on out he's getting infusions every other week so that helps.

              He had itchy skin but it's gone away now. I think he put some topical cream on it but it never really bothered him.  We got his scans back Tuesday and all is clear so 3 months NED. 

              Good luck to you on the trial. 

              Kristi

              • October 3, 2015 at 8:18 pm
              Beehappy
              Participant

                This is so great to hear!  My husband is in the same trial although he just started his first infusion was 2 weeks ago.  He was diagnosed 3c and we are thrilled to be in this study (as the only other treatment offered would have been Interferon).  Congratulations on NED status!  

                Best of luck yo you both on this journey.

                Bee

                • October 3, 2015 at 8:18 pm
                Beehappy
                Participant

                  This is so great to hear!  My husband is in the same trial although he just started his first infusion was 2 weeks ago.  He was diagnosed 3c and we are thrilled to be in this study (as the only other treatment offered would have been Interferon).  Congratulations on NED status!  

                  Best of luck yo you both on this journey.

                  Bee

                  • October 3, 2015 at 8:18 pm
                  Beehappy
                  Participant

                    This is so great to hear!  My husband is in the same trial although he just started his first infusion was 2 weeks ago.  He was diagnosed 3c and we are thrilled to be in this study (as the only other treatment offered would have been Interferon).  Congratulations on NED status!  

                    Best of luck yo you both on this journey.

                    Bee

                    • September 25, 2015 at 1:01 pm
                    dentholla
                    Participant

                      Hi Tom, no port and I don't think he's planning on it either.  He hates getting stuck all the time but from here on out he's getting infusions every other week so that helps.

                      He had itchy skin but it's gone away now. I think he put some topical cream on it but it never really bothered him.  We got his scans back Tuesday and all is clear so 3 months NED. 

                      Good luck to you on the trial. 

                      Kristi

                      • September 25, 2015 at 1:01 pm
                      dentholla
                      Participant

                        Hi Tom, no port and I don't think he's planning on it either.  He hates getting stuck all the time but from here on out he's getting infusions every other week so that helps.

                        He had itchy skin but it's gone away now. I think he put some topical cream on it but it never really bothered him.  We got his scans back Tuesday and all is clear so 3 months NED. 

                        Good luck to you on the trial. 

                        Kristi

                      • September 25, 2015 at 2:36 am
                      geriakt
                      Participant

                         

                        I am on the same trial. I am on week 3 so far. Yesterday I developed ichy skin all over. I was only tired after my first double infusion. Did you get a port?

                        Tom

                         

                        • September 25, 2015 at 2:36 am
                        geriakt
                        Participant

                           

                          I am on the same trial. I am on week 3 so far. Yesterday I developed ichy skin all over. I was only tired after my first double infusion. Did you get a port?

                          Tom

                           

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