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UH OH!!! 3RD Time is the charm? URGENT!

Forums General Melanoma Community UH OH!!! 3RD Time is the charm? URGENT!

  • Post
    mom3girlsFL
    Participant

      Short hx: 2003 stage 1, 2007-2010 stage 3c inguinal nodes recurrence, iliac nodes recurrence,obturator nodes recurrence. failed interferon. Radical node dissection resolved issues. Numerous nodes containing mel. (Several surgeries). 

       

      Since 2010 have had clean scans every 6 mths then annual till now. Latest ct abdomen/pelvis: New enlarged retroperitoneal lymph nodes in the abd and pelvis compatible with metastatic disease. Also noted was multiple enlarged para aortic nodes, largest measuring up to 2.5×2.6 cm. Also enlarged iliac nodes 2.5×1.5 cm. Retrocaval node at level of kidneys 1.7×1 cm. Portacaval node 2.4×2 cm. In lung, a nodule went from prior scan 3mm to 9×8 mm.

       

       

       

      So, i am sort of freaking out! How much trouble do you think im in? PET scan tomorrow (just got news tuesday).

       

       

       

       

       

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    • Replies
        273c
        Participant

          First ((((hugs))))

          Cancer treatment has come a long way since 2010.  There are now three drugs, which are far better (fewer side effects, better effectiveness) than interferon that have been FDA approved in the last couple of years. 

          There are also other treatments in the pipeline.  Melanoma treatment is a whole new ball game and the future is much brighter than it was even two years ago. 

           

          Kathy

            Toby0987
            Participant

              Scary sounding-but try to operate with what you know, which right now is little-the PET will tell you a lot

              . My friend had breast cancer and then a year later a scan showed a spot on her brain. After a week of sleepless nights, they found it was really nothing. 

              I'm up at mayo now getting ready for my scans tomorrow and the doc told me that scans are good to point them in the right direction but until the pathologies come back the scans are just indicators. Praying for you

              Toby0987
              Participant

                Scary sounding-but try to operate with what you know, which right now is little-the PET will tell you a lot

                . My friend had breast cancer and then a year later a scan showed a spot on her brain. After a week of sleepless nights, they found it was really nothing. 

                I'm up at mayo now getting ready for my scans tomorrow and the doc told me that scans are good to point them in the right direction but until the pathologies come back the scans are just indicators. Praying for you

                Toby0987
                Participant

                  Scary sounding-but try to operate with what you know, which right now is little-the PET will tell you a lot

                  . My friend had breast cancer and then a year later a scan showed a spot on her brain. After a week of sleepless nights, they found it was really nothing. 

                  I'm up at mayo now getting ready for my scans tomorrow and the doc told me that scans are good to point them in the right direction but until the pathologies come back the scans are just indicators. Praying for you

                273c
                Participant

                  First ((((hugs))))

                  Cancer treatment has come a long way since 2010.  There are now three drugs, which are far better (fewer side effects, better effectiveness) than interferon that have been FDA approved in the last couple of years. 

                  There are also other treatments in the pipeline.  Melanoma treatment is a whole new ball game and the future is much brighter than it was even two years ago. 

                   

                  Kathy

                  273c
                  Participant

                    First ((((hugs))))

                    Cancer treatment has come a long way since 2010.  There are now three drugs, which are far better (fewer side effects, better effectiveness) than interferon that have been FDA approved in the last couple of years. 

                    There are also other treatments in the pipeline.  Melanoma treatment is a whole new ball game and the future is much brighter than it was even two years ago. 

                     

                    Kathy

                    Mom2Addy
                    Participant

                      Your history could be my husband's! In December we found out he has 5 tumors plus 2 brain mets. I literally lost my breath and thought I had to prepare for the worst. Then, we got a great Mel specialist and found out about SRS and immunotherapy. Now our days are full of hope and making long term plans. Even after IPI failed, we remain positive. Stay strong, get a specialist and as others have already said, so many new treatment options since 2010, so keep the faith! Prayers for you!

                      Mom2Addy
                      Participant

                        Your history could be my husband's! In December we found out he has 5 tumors plus 2 brain mets. I literally lost my breath and thought I had to prepare for the worst. Then, we got a great Mel specialist and found out about SRS and immunotherapy. Now our days are full of hope and making long term plans. Even after IPI failed, we remain positive. Stay strong, get a specialist and as others have already said, so many new treatment options since 2010, so keep the faith! Prayers for you!

                        Mom2Addy
                        Participant

                          Your history could be my husband's! In December we found out he has 5 tumors plus 2 brain mets. I literally lost my breath and thought I had to prepare for the worst. Then, we got a great Mel specialist and found out about SRS and immunotherapy. Now our days are full of hope and making long term plans. Even after IPI failed, we remain positive. Stay strong, get a specialist and as others have already said, so many new treatment options since 2010, so keep the faith! Prayers for you!

                          JakeinNY
                          Participant

                            Amen! Go to a melanoma specialist. If you are near NY, I'd recommend Dr. Anna Pavlick at NYU.

                            JakeinNY
                            Participant

                              Amen! Go to a melanoma specialist. If you are near NY, I'd recommend Dr. Anna Pavlick at NYU.

                              JakeinNY
                              Participant

                                Amen! Go to a melanoma specialist. If you are near NY, I'd recommend Dr. Anna Pavlick at NYU.

                            Viewing 8 reply threads
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