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Tomorrow is the final cycle!

Forums General Melanoma Community Tomorrow is the final cycle!

  • Post
    LynnLuc
    Participant

    I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

    I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

    wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

    I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

    I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

    wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

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  • Replies
      jim Breitfeller
      Participant

      Lucy,

      Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

       

      Jimmy B

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      jim Breitfeller
      Participant

      Lucy,

      Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

       

      Jimmy B

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      NicOz
      Participant

      Hooray! Way to go :) Great to hear!!

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      NicOz
      Participant

      Hooray! Way to go :) Great to hear!!

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      Carmon in NM
      Participant

      Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

      I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

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        LynnLuc
        Participant

        Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

        A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

        Hoping we all get to be NED and stay that way!!

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        LynnLuc
        Participant

        Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

        A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

        Hoping we all get to be NED and stay that way!!

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      Carmon in NM
      Participant

      Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

      I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

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