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Tomorrow is the final cycle!

Forums General Melanoma Community Tomorrow is the final cycle!

  • Post
    LynnLuc
    Participant

      I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

      I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

      wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

      I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

      I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

      wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

    Viewing 5 reply threads
    • Replies
        jim Breitfeller
        Participant

          Lucy,

          Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

           

          Jimmy B

          jim Breitfeller
          Participant

            Lucy,

            Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

             

            Jimmy B

            NicOz
            Participant

              Hooray! Way to go 🙂 Great to hear!!

              NicOz
              Participant

                Hooray! Way to go 🙂 Great to hear!!

                Carmon in NM
                Participant

                  Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

                  I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

                    LynnLuc
                    Participant

                      Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

                      A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

                      Hoping we all get to be NED and stay that way!!

                      LynnLuc
                      Participant

                        Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

                        A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

                        Hoping we all get to be NED and stay that way!!

                      Carmon in NM
                      Participant

                        Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

                        I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

                    Viewing 5 reply threads
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