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Tomorrow is the final cycle!
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Tomorrow is the final cycle!

› Forums › General Melanoma Community › Tomorrow is the final cycle!

  • Post
    • March 2, 2011 at 3:34 am
    LynnLuc
    Participant

      I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

      I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

      wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

      I have blood work at 745- see Dr Weber  around 8 and do the last regular cycle in my trial- tah dah I am now going on to my 12 month of Stage 4 melanoma NED…oh NED is my best buddy!

      I get scans and apheresis next week  then I guess every 3 months I will get scans, blood work and booster IV of  Anti PD-1 for 2 years if I remain NED.

      wow…I also returned to work and nearing my 3rd week -it is still so exhausting but hoping as I get farther awhile from the trial meds the less tired I will be…

    Viewing 5 reply threads
    • Replies
        • March 2, 2011 at 1:00 pm
        jim Breitfeller
        Participant

          Lucy,

          Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

           

          Jimmy B

          • March 2, 2011 at 1:00 pm
          jim Breitfeller
          Participant

            Lucy,

            Congrats!!!!!!! on your acheivement. LIfe is Good!!!!

             

            Jimmy B

            • March 2, 2011 at 11:06 pm
            NicOz
            Participant

              Hooray! Way to go 🙂 Great to hear!!

              • March 2, 2011 at 11:06 pm
              NicOz
              Participant

                Hooray! Way to go 🙂 Great to hear!!

                • March 3, 2011 at 3:26 pm
                Carmon in NM
                Participant

                  Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

                  I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

                    • March 6, 2011 at 3:36 am
                    LynnLuc
                    Participant

                      Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

                      A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

                      Hoping we all get to be NED and stay that way!!

                      • March 6, 2011 at 3:36 am
                      LynnLuc
                      Participant

                        Are you going to do boosters too? I will get  the anti-pd-1 every 3 months for at least 2 years…Dr Weber says he thinks it maybe approved in 2 years(never know about the FDA) and then the option of staying on it  might also be an option if I remain NED.

                        A side note about the FDA…you would think that any drug that gives even a slight benefit should be available to a patient using it and perhaps if they sign a waiver to remove any liability from the manufacturer…should have access to it…just my feeling!!

                        Hoping we all get to be NED and stay that way!!

                      • March 3, 2011 at 3:26 pm
                      Carmon in NM
                      Participant

                        Congratulations! I am so happy for you! I will be in your place on March 14th when I get my last infusion on this drug trial and I can hardly supress the excitement of having this six month trial behind me!

                        I hope that this is the beginning of years and years of being NED for all of us! Carmon in NM

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