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Thoughts on Ipi
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Thoughts on Ipi

› Forums › Cutaneous Melanoma Community › Thoughts on Ipi

  • Post
    • June 24, 2012 at 11:08 am
    deardad
    Participant

      Hi Ipi is no longer FDA approved in Australia which means we would have to pay a total of $120,000AUD for the treatment.

      My dad has brain mets x 7, liver x 4, lung x 2, spleen x 3 and subcutaneous spots x 3. Over all they are all still small under 10mm I believe.

      Does anyone recommend this drug? I know it won't cure him but a few on this board have had some success with it, what are your thoughts?

      Thanks in advance.

      Nahmi

      Hi Ipi is no longer FDA approved in Australia which means we would have to pay a total of $120,000AUD for the treatment.

      My dad has brain mets x 7, liver x 4, lung x 2, spleen x 3 and subcutaneous spots x 3. Over all they are all still small under 10mm I believe.

      Does anyone recommend this drug? I know it won't cure him but a few on this board have had some success with it, what are your thoughts?

      Thanks in advance.

      Nahmi

    Viewing 5 reply threads
    • Replies
        • June 24, 2012 at 1:27 pm
        Gene_S
        Participant

          My husband has been on Ipi for 15 months now and he had liver x 3 lungs x 2 on back of head pushing on the spine and inoperable and 3 sub qs.  He is down to the largest on in the liver and it is almost unmeasureable.  See his profile for any other information.

          He is happy Ipi is working and waiting for scans in 6 weeks to tell us it is gone so he can be NED.

          Judy (loving wife of Gene)

          • June 24, 2012 at 1:27 pm
          Gene_S
          Participant

            My husband has been on Ipi for 15 months now and he had liver x 3 lungs x 2 on back of head pushing on the spine and inoperable and 3 sub qs.  He is down to the largest on in the liver and it is almost unmeasureable.  See his profile for any other information.

            He is happy Ipi is working and waiting for scans in 6 weeks to tell us it is gone so he can be NED.

            Judy (loving wife of Gene)

            • June 24, 2012 at 1:27 pm
            Gene_S
            Participant

              My husband has been on Ipi for 15 months now and he had liver x 3 lungs x 2 on back of head pushing on the spine and inoperable and 3 sub qs.  He is down to the largest on in the liver and it is almost unmeasureable.  See his profile for any other information.

              He is happy Ipi is working and waiting for scans in 6 weeks to tell us it is gone so he can be NED.

              Judy (loving wife of Gene)

              • June 24, 2012 at 2:08 pm
              Linny
              Participant

                You are such a trooper for your dad. He is so lucky to have you as his advocate.

                If your dad has no autoimmune disorder and you have the money, you've got nothing to lose by getting him on Ipi.

                I remember reading an article about a woman who did Ipi and radiation together and the combo worked together brilliantly: http://www.bloomberg.com/news/2012-03-07/radiation-blast-may-turbocharge-bristol-myers-melanoma-drug-report-shows.html. That's something you may want to ask about if you're going to be looking at putting your dad on Ipi.

                • June 24, 2012 at 2:08 pm
                Linny
                Participant

                  You are such a trooper for your dad. He is so lucky to have you as his advocate.

                  If your dad has no autoimmune disorder and you have the money, you've got nothing to lose by getting him on Ipi.

                  I remember reading an article about a woman who did Ipi and radiation together and the combo worked together brilliantly: http://www.bloomberg.com/news/2012-03-07/radiation-blast-may-turbocharge-bristol-myers-melanoma-drug-report-shows.html. That's something you may want to ask about if you're going to be looking at putting your dad on Ipi.

                  • June 24, 2012 at 2:08 pm
                  Linny
                  Participant

                    You are such a trooper for your dad. He is so lucky to have you as his advocate.

                    If your dad has no autoimmune disorder and you have the money, you've got nothing to lose by getting him on Ipi.

                    I remember reading an article about a woman who did Ipi and radiation together and the combo worked together brilliantly: http://www.bloomberg.com/news/2012-03-07/radiation-blast-may-turbocharge-bristol-myers-melanoma-drug-report-shows.html. That's something you may want to ask about if you're going to be looking at putting your dad on Ipi.

                Viewing 5 reply threads

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