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The right questions
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The right questions

› Forums › General Melanoma Community › The right questions

  • Post
    • January 16, 2021 at 7:35 pm
    space oddity
    Participant
      Hello to you all and wish you a healthy, better New Year.

      After a long battle with melanoma, my husband became NED and stopped taking Keytruda last November. On Monday, he is going to have his first appointment with his doctor after the completion of his therapy in order to discuss what is going to follow. It’s hard to find his oncologist on the phone,so I think he should leave this meeting with all the necessary information he needs. What would really be the right questions in this case?

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    • Replies
        • January 17, 2021 at 6:33 pm
        tkoss
        Participant
          3c.

          i finished 24x Opvido in december.

          NED

           

          i share your issue about getting info from docs. fortunately i have a patient portal where i can put questions to provider as they arise.

           

          the most important question: how long will i live? To which Onc said SR stats unreliable because of limited history of immo therapy.

           

          was advised to get covid vaccine, which i did . no problems.

           

          but that’s really all the questions i had.

           

          scan in 2 weeks should tell the tale.

           

           

          • January 17, 2021 at 11:22 pm
          Rosiepup
          Participant
            Oh I soo wish I was at the point of potentially NED! 🤞🙏 Great news for you! For me, the main question I would have is, will I still have close follow up including scans, blood tests, etc, for at least a year? Hopefully longer?  And any possible symptoms of relapse, will I be automatically able to contact and get a review?

            Although this is probably because, despite my best efforts, I’ve become a ‘glass half empty’ person about myself!

            • January 18, 2021 at 2:08 am
            tkoss
            Participant
              not to play doctor rosie, but,,,,

              they did lay out a schedule for the next year…CT scans every 3 months…….along with the occasional consult. that’s about it.

               

              of course as long as i remain NED. if not, i will have about 18 pages of questions for this forum.

               

              in fact i am posting a new one right now.

               

               

              • January 20, 2021 at 6:24 pm
              space oddity
              Participant
                Thank you for your responses. Indeed, the discussion went around the limited history of immunotherapy, getting vaccined and tests every three months. Fingers crossed!
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