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temodar

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  • Post
    • May 12, 2011 at 7:08 pm
    petie540
    Participant

      Has anybody who has been diagnosed as stage 1V been treated only with temodar after the initial diagnosis was elevated to stage 1V?On8/10 after a 11B dx. on 3/09 with only observation I was started on temodar 140mg.for 42 day cycles and 14 days off. Now in cycle 5 and have been so far NED.Next cat/pet is in June then might go off all meds at that time .We will see then. Thanks.And by the way I want to thank the board for the kind responses to my previous post about waiting. That night I let my emotions get the best of me.

      Has anybody who has been diagnosed as stage 1V been treated only with temodar after the initial diagnosis was elevated to stage 1V?On8/10 after a 11B dx. on 3/09 with only observation I was started on temodar 140mg.for 42 day cycles and 14 days off. Now in cycle 5 and have been so far NED.Next cat/pet is in June then might go off all meds at that time .We will see then. Thanks.And by the way I want to thank the board for the kind responses to my previous post about waiting. That night I let my emotions get the best of me.

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    • Replies
        • May 12, 2011 at 11:42 pm
        KatyWI
        Participant

          Unfortunately, I can't answer your question – temodar is definitely sometimes used for stage IV mm but I haven't had it.  After I had my brain met, I asked about whether I should consider it, because it does pass the blood-brain barrier, but both my local doc and my mm specialist didn't think much of it, at least as an adjuvant to surgical resection / radiation.  But you appear to have had quite a dramatic response.

          KatyWI

          • May 12, 2011 at 11:42 pm
          KatyWI
          Participant

            Unfortunately, I can't answer your question – temodar is definitely sometimes used for stage IV mm but I haven't had it.  After I had my brain met, I asked about whether I should consider it, because it does pass the blood-brain barrier, but both my local doc and my mm specialist didn't think much of it, at least as an adjuvant to surgical resection / radiation.  But you appear to have had quite a dramatic response.

            KatyWI

            • May 13, 2011 at 12:16 am
            killmel
            Participant

              Hi,

               

              I am also thinking about Temador as a treatment for my stage 3 recurrences.

               

              What are the side effects that you have been experiencing on Temador? How do you manange them?

               

              Continued good luck w/ Temador.

               

              Jan

                • May 13, 2011 at 1:17 am
                petie540
                Participant

                  medium fatigue. Minor constipation. Take Zofran for nausea

                  • May 13, 2011 at 1:17 am
                  petie540
                  Participant

                    medium fatigue. Minor constipation. Take Zofran for nausea

                  • May 13, 2011 at 12:16 am
                  killmel
                  Participant

                    Hi,

                     

                    I am also thinking about Temador as a treatment for my stage 3 recurrences.

                     

                    What are the side effects that you have been experiencing on Temador? How do you manange them?

                     

                    Continued good luck w/ Temador.

                     

                    Jan

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