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Temodar Drug -need immed. infor
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Temodar Drug -need immed. infor

› Forums › General Melanoma Community › Temodar Drug -need immed. infor

  • Post
    • December 13, 2011 at 5:18 am
    j.m.l.
    Participant

      Started on IPI for mel tumors. Now dr. see that inoperable tumor is growing. Not respond to IPI. Does anyone have any experience with Temodar? Dr. want to start that immed. Any information appreciated.

      Started on IPI for mel tumors. Now dr. see that inoperable tumor is growing. Not respond to IPI. Does anyone have any experience with Temodar? Dr. want to start that immed. Any information appreciated.

    Viewing 5 reply threads
    • Replies
        • December 13, 2011 at 5:22 pm
        Janner
        Participant

          No experience, but there are many who have done Temodar here.  Do a search for Temodar on the BB.  At the top of the postings, there is a separate tab for "Search".  Try doing a search there first.  In general, I believe it is tolerated very well by most to take it.

          Best wishes,
          Janner

          • December 13, 2011 at 5:22 pm
          Janner
          Participant

            No experience, but there are many who have done Temodar here.  Do a search for Temodar on the BB.  At the top of the postings, there is a separate tab for "Search".  Try doing a search there first.  In general, I believe it is tolerated very well by most to take it.

            Best wishes,
            Janner

            • December 13, 2011 at 5:22 pm
            Janner
            Participant

              No experience, but there are many who have done Temodar here.  Do a search for Temodar on the BB.  At the top of the postings, there is a separate tab for "Search".  Try doing a search there first.  In general, I believe it is tolerated very well by most to take it.

              Best wishes,
              Janner

              • December 15, 2011 at 1:36 am
              Charlie S
              Participant

                Though not completely understood why, Temador (temozolomide) is thought to disrupt the cellular functions of cancer and is known to be able to penetrate the blood brain membrane.  It is given in various day cycles and has been used widely with many types of cancers and has varied results over varied timelines.

                Mainly, the side effects can be nauseau, fatigue and  constipation.  These symptoms can be moderated by the time of day taken and the proper timing of food intake.

                Temador has also been combined many times with Thalidomide(thalomide)………..known as T&T.

                Yes, I have taken it.

                Dependent on tumor location, have you considered IL-2?

                Cheers,

                Charlie S

                  • December 15, 2011 at 8:17 am
                  j.m.l.
                  Participant

                    I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                    not very happy now, JML

                    • December 15, 2011 at 8:17 am
                    j.m.l.
                    Participant

                      I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                      not very happy now, JML

                      • December 15, 2011 at 8:17 am
                      j.m.l.
                      Participant

                        I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                        not very happy now, JML

                        • December 15, 2011 at 8:19 am
                        j.m.l.
                        Participant

                          I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                          not very happy now, JML

                          • December 16, 2011 at 2:44 am
                          MariaH
                          Participant

                            My husband is on Temodar (low dose) right now.  I can't give any results, because he goes for scans on the 22nd.  He first tried IL-2, which he was not a responder, and then Temodar.

                            I hope it is woking for him, but in all realty, don't know right now.

                            Best wishes,

                            Maria

                            • December 16, 2011 at 2:44 am
                            MariaH
                            Participant

                              My husband is on Temodar (low dose) right now.  I can't give any results, because he goes for scans on the 22nd.  He first tried IL-2, which he was not a responder, and then Temodar.

                              I hope it is woking for him, but in all realty, don't know right now.

                              Best wishes,

                              Maria

                              • December 16, 2011 at 2:44 am
                              MariaH
                              Participant

                                My husband is on Temodar (low dose) right now.  I can't give any results, because he goes for scans on the 22nd.  He first tried IL-2, which he was not a responder, and then Temodar.

                                I hope it is woking for him, but in all realty, don't know right now.

                                Best wishes,

                                Maria

                                • December 15, 2011 at 8:19 am
                                j.m.l.
                                Participant

                                  I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                                  not very happy now, JML

                                  • December 15, 2011 at 8:19 am
                                  j.m.l.
                                  Participant

                                    I understand the temodar is used with other kinds of cancer, I have right now an inoperable melanoma tumor in my arm. Ipi did not reduce this tumor at all. You said that you have taken this drug. Did you find any success????. If yes, great for you. If not, what did you do next??

                                    not very happy now, JML

                                  • December 15, 2011 at 1:36 am
                                  Charlie S
                                  Participant

                                    Though not completely understood why, Temador (temozolomide) is thought to disrupt the cellular functions of cancer and is known to be able to penetrate the blood brain membrane.  It is given in various day cycles and has been used widely with many types of cancers and has varied results over varied timelines.

                                    Mainly, the side effects can be nauseau, fatigue and  constipation.  These symptoms can be moderated by the time of day taken and the proper timing of food intake.

                                    Temador has also been combined many times with Thalidomide(thalomide)………..known as T&T.

                                    Yes, I have taken it.

                                    Dependent on tumor location, have you considered IL-2?

                                    Cheers,

                                    Charlie S

                                    • December 15, 2011 at 1:36 am
                                    Charlie S
                                    Participant

                                      Though not completely understood why, Temador (temozolomide) is thought to disrupt the cellular functions of cancer and is known to be able to penetrate the blood brain membrane.  It is given in various day cycles and has been used widely with many types of cancers and has varied results over varied timelines.

                                      Mainly, the side effects can be nauseau, fatigue and  constipation.  These symptoms can be moderated by the time of day taken and the proper timing of food intake.

                                      Temador has also been combined many times with Thalidomide(thalomide)………..known as T&T.

                                      Yes, I have taken it.

                                      Dependent on tumor location, have you considered IL-2?

                                      Cheers,

                                      Charlie S

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