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Taking a break from Interferon

Forums General Melanoma Community Taking a break from Interferon

  • Post
    Wolverine
    Participant

      I am stage IIIC melanoma with unknown primary.  I have been taken Interferon since November 2012.  Overall I have done fine with the exception of being wiped out (tired) and a little weight loss.  I haven't had the energy to exercise.  I am seriously considering taking off for the spring/summer.  As I understand, Interferon has not been proven to extend overall survival rates.  I have come to the opinion that I have a better chance of survival if I am not worn down and unable to stay active.

      Wishing everyone well.

      I am stage IIIC melanoma with unknown primary.  I have been taken Interferon since November 2012.  Overall I have done fine with the exception of being wiped out (tired) and a little weight loss.  I haven't had the energy to exercise.  I am seriously considering taking off for the spring/summer.  As I understand, Interferon has not been proven to extend overall survival rates.  I have come to the opinion that I have a better chance of survival if I am not worn down and unable to stay active.

      Wishing everyone well.

    Viewing 8 reply threads
    • Replies
        Fen
        Participant

          I stopped after 6 months and never regretted it.  The data isn't strong and I had a terrible time with it – I was in a wheelchair towards the end.  For me, there have been long term cognitive and emotional side effects (just my subjective opinion).  Whatever you decide to do don't look back.  I have been NED since then.   Good luck!

          Fen

            Wolverine
            Participant

              Thank you very much Fen.  

              Wolverine
              Participant

                Thank you very much Fen.  

                Wolverine
                Participant

                  Thank you very much Fen.  

                Fen
                Participant

                  I stopped after 6 months and never regretted it.  The data isn't strong and I had a terrible time with it – I was in a wheelchair towards the end.  For me, there have been long term cognitive and emotional side effects (just my subjective opinion).  Whatever you decide to do don't look back.  I have been NED since then.   Good luck!

                  Fen

                  Fen
                  Participant

                    I stopped after 6 months and never regretted it.  The data isn't strong and I had a terrible time with it – I was in a wheelchair towards the end.  For me, there have been long term cognitive and emotional side effects (just my subjective opinion).  Whatever you decide to do don't look back.  I have been NED since then.   Good luck!

                    Fen

                    Hstevens0072
                    Participant
                      I did the full year… And was diagnosed stage 4 13 months later. I don’t regret doing the interferon but I wonder sometimes if it was worth it. It is a tough row to hoe.
                      Best of luck with whatever you decide.
                      Holly
                      Hstevens0072
                      Participant
                        I did the full year… And was diagnosed stage 4 13 months later. I don’t regret doing the interferon but I wonder sometimes if it was worth it. It is a tough row to hoe.
                        Best of luck with whatever you decide.
                        Holly
                        Hstevens0072
                        Participant
                          I did the full year… And was diagnosed stage 4 13 months later. I don’t regret doing the interferon but I wonder sometimes if it was worth it. It is a tough row to hoe.
                          Best of luck with whatever you decide.
                          Holly
                          ncdaniel
                          Participant

                            Wolvrine, My wife electeced not to do interferon at all since the chance of good results seem questionable. At the U of M ( Michigan) we were told 10% effective at best with some studies suggesting more in the 2% range. I would study this a lot.

                            Go Bucks , NC Daniel

                            ncdaniel
                            Participant

                              Wolvrine, My wife electeced not to do interferon at all since the chance of good results seem questionable. At the U of M ( Michigan) we were told 10% effective at best with some studies suggesting more in the 2% range. I would study this a lot.

                              Go Bucks , NC Daniel

                              ncdaniel
                              Participant

                                Wolvrine, My wife electeced not to do interferon at all since the chance of good results seem questionable. At the U of M ( Michigan) we were told 10% effective at best with some studies suggesting more in the 2% range. I would study this a lot.

                                Go Bucks , NC Daniel

                            Viewing 8 reply threads
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