Dear all,
I would like to update my father’s (67y.o.)story.
He was diagnosed in 04/2018, primary removed in 05/2018 with results : nodular type, III C stage, breslow 2,2 mm, clark IV, Ulcerated, 2 sentinel nodes positive.
Reocurence in 10/2018, two nodules arround scar, growing really very fast(tennis balls in final) with more and more mets in skin.
He got imunotherapy (keytruda/ pembrolizumab) in 11/2018
After 5 rounds no results. Tumors grew very fast, and made more and more metastatic balls ( more than 40!!) arround scar from chest to knee (primary located on abdomen)
We started to be absolutely desperate seeing him suffer so much.
He was not able to walk or sit anymore.. Was in terrific pain.. No medicament helped..
He went to hospital in 02/2019. Ct results showed keytruda failed, and he has many small nodules in lungs..
We thought he will die there.. Was not able to speak.. Morphine didn’t work, he was in constant horrible pain.. Every night.. I woke up, with terrifying feeling I am loosing him.. And that I am so *** helpless! So full of *** feeling I failed!!
Onkologist visited him in hospital and after some tests decided to change his treatment to Tafinlar/Mekinist.. Cos they found he is BRAF positive..
And the mirracle came.. Finally!!!
My father started to walk, his tumors on skin reduced and shrinked more than 50%! His skin starting to look so healthy and perfect.. Balls are dissapearing everyday.. He has only few of them now!! He speak again, he is in sooo wonderful positive mood. More positive than ever.. He stand up from bed and walk, exercise a little bit to get fit.. Does some small housework..
I love him so much and my heart is dancing like never!
This is one of my precious moments in my life.. To see his smile again.. He is without pain.. I can’t believe it..
Hope this treatment will last very long time.. (I know it’s very disputable) I pray for it everyday..
I do not have any questions.. Just would like to share our story.. To give hope maybe.. I like reading sories here, they give me so much hope and strenght… Thank you all for sharing and helping ppl..
(sry 4 my english 🙂 )
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