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support for caregivers…..

Forums Caregiver Community support for caregivers…..

  • Post
    snow white
    Participant

      Hello my friends.  i am reaching out for my Mom.  She is desperatley in need of some kind of support to get her through this time with my Dad.  Unfortuantely, the boards I believe are just to much information for her.  Mom has tried to get in contact with a few groups, but unfortunaltey has never received a reply back.  I have also reached out to MRF to see of any suggestions from them.  Let me know if you have any suggestions.  THANK YOU!!!!

      Jen

    Viewing 5 reply threads
    • Replies
        debwray
        Participant

          Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver

          Is your Mum happy with forums or is it telephone support more likely to hit the spot ?

          If you were in the UK would suggest Macmillan..or Maggys Centres….

          Deb

            jpg
            Participant

              Yes, and MIF also has a helpline for patients and caregivers:  866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only

              snow white
              Participant

                Awesome!  I didnt know about the caregivers only forum.  I will check it out and ask her what she thinks!

                Thanks again!

                Jen

                snow white
                Participant

                  Awesome!  I didnt know about the caregivers only forum.  I will check it out and ask her what she thinks!

                  Thanks again!

                  Jen

                  snow white
                  Participant

                    Awesome!  I didnt know about the caregivers only forum.  I will check it out and ask her what she thinks!

                    Thanks again!

                    Jen

                    jpg
                    Participant

                      Yes, and MIF also has a helpline for patients and caregivers:  866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only

                      jpg
                      Participant

                        Yes, and MIF also has a helpline for patients and caregivers:  866-463-6663 plus the forum just for caregivers: http://forum.melanomainternational.org/mif/for-caregivers-only

                        snow white
                        Participant

                          Thanks Deb, I will look into your link!  I think telephone support might be the best option.

                          πŸ™‚

                          Jen

                          snow white
                          Participant

                            Thanks Deb, I will look into your link!  I think telephone support might be the best option.

                            πŸ™‚

                            Jen

                            snow white
                            Participant

                              Thanks Deb, I will look into your link!  I think telephone support might be the best option.

                              πŸ™‚

                              Jen

                            debwray
                            Participant

                              Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver

                              Is your Mum happy with forums or is it telephone support more likely to hit the spot ?

                              If you were in the UK would suggest Macmillan..or Maggys Centres….

                              Deb

                              debwray
                              Participant

                                Are these any use http://melanomainternational.org/web-resources/online-resources/#Caregiver

                                Is your Mum happy with forums or is it telephone support more likely to hit the spot ?

                                If you were in the UK would suggest Macmillan..or Maggys Centres….

                                Deb

                                Charlie S
                                Participant

                                  You are a good daughter to try and understand both the unique needs of your Mother and Father.

                                  Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.

                                  I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.

                                  Most states have a Council on Aging or something similiar.  

                                  Also……………do not think they are just for the dying……………..call Hospice.

                                  This is just a first blush.  If you tell me which state you are in, and the age of your parents,  I will be happy to work up a resource list for you.

                                  The internet is great, but there is a lot at your local fingertips.

                                  My best to you and your family.

                                  Cheers,

                                  Charlie

                                   

                                   

                                    snow white
                                    Participant

                                      Thank you so much Charlie!!!!  I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area.  I have been at a loss as to who to contact.  When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups.  Thank you so much for you help.  I will look forward to your reply.

                                      Jen

                                      snow white
                                      Participant

                                        Thank you so much Charlie!!!!  I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area.  I have been at a loss as to who to contact.  When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups.  Thank you so much for you help.  I will look forward to your reply.

                                        Jen

                                        Cindyco
                                        Participant

                                          Hi Jen,

                                          We live in Orange County and similarly have not been able to find a nearby support system for my mom.  Although in my case, my mom is the patient.  We thought it would be good for her emotional/mental health to have some support system separate from our family.  Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums.  To a lesser extent, she also has a small language barrier.  We are now looking for a therapist or counselor trained to speak with cancer patients.  That might be helpful as well?

                                          Cindyco
                                          Participant

                                            Hi Jen,

                                            We live in Orange County and similarly have not been able to find a nearby support system for my mom.  Although in my case, my mom is the patient.  We thought it would be good for her emotional/mental health to have some support system separate from our family.  Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums.  To a lesser extent, she also has a small language barrier.  We are now looking for a therapist or counselor trained to speak with cancer patients.  That might be helpful as well?

                                            snow white
                                            Participant

                                              Thank you for a great suggestion.  Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers.  I will let you know if we come up with anything.

                                              Jen

                                              snow white
                                              Participant

                                                Thank you for a great suggestion.  Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers.  I will let you know if we come up with anything.

                                                Jen

                                                snow white
                                                Participant

                                                  Thank you for a great suggestion.  Mom went online today and is going to try to find a therapist that specializes in cancer patients/care givers.  I will let you know if we come up with anything.

                                                  Jen

                                                  Cindyco
                                                  Participant

                                                    Hi Jen,

                                                    We live in Orange County and similarly have not been able to find a nearby support system for my mom.  Although in my case, my mom is the patient.  We thought it would be good for her emotional/mental health to have some support system separate from our family.  Unfortunately, she is not very mobile right now and she is not tech-savvy enough to utilize the boards or forums.  To a lesser extent, she also has a small language barrier.  We are now looking for a therapist or counselor trained to speak with cancer patients.  That might be helpful as well?

                                                    jennunicorn
                                                    Participant
                                                      NED

                                                      Hi Jen, I did a quick Google search to see what would come up and found this:

                                                      http://www.cancersupportredondobeach.org/programs/weekly-support-groups

                                                      They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver. 

                                                      This one came up as well:

                                                      http://www.torrancememorial.org/Medical_Services/Cancer_Institute/Resources_and_Support/Cancer_Support_Groups.aspx

                                                       

                                                      jennunicorn
                                                      Participant
                                                        NED

                                                        Hi Jen, I did a quick Google search to see what would come up and found this:

                                                        http://www.cancersupportredondobeach.org/programs/weekly-support-groups

                                                        They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver. 

                                                        This one came up as well:

                                                        http://www.torrancememorial.org/Medical_Services/Cancer_Institute/Resources_and_Support/Cancer_Support_Groups.aspx

                                                         

                                                        snow white
                                                        Participant

                                                          Thank you Jenn.  I have looked into one of those and it did not work out.  I will definitely check the other one. Thanks for taking the time to help.

                                                          :). Jen

                                                          snow white
                                                          Participant

                                                            Thank you Jenn.  I have looked into one of those and it did not work out.  I will definitely check the other one. Thanks for taking the time to help.

                                                            :). Jen

                                                            snow white
                                                            Participant

                                                              Thank you Jenn.  I have looked into one of those and it did not work out.  I will definitely check the other one. Thanks for taking the time to help.

                                                              :). Jen

                                                              jennunicorn
                                                              Participant
                                                                NED

                                                                Hi Jen, I did a quick Google search to see what would come up and found this:

                                                                http://www.cancersupportredondobeach.org/programs/weekly-support-groups

                                                                They have a family/partners support group. You are unlikely to find any melanoma specific support groups, even up here in SF area it's impossible to find mel specific. But I have attended a couple general cancer support groups at Stanford and realized it really doesn't matter what kind of cancer you have, we all had such similar feelings anyway it felt good to talk to others in person. I imagine it would be the same experience for a caregiver. 

                                                                This one came up as well:

                                                                http://www.torrancememorial.org/Medical_Services/Cancer_Institute/Resources_and_Support/Cancer_Support_Groups.aspx

                                                                 

                                                                Charlie S
                                                                Participant

                                                                  I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.

                                                                  Got these for starters:

                                                                  CAREGIVER SUPPORT GROUPS
                                                                  Advantage Program Caregiver Support Contact: 310-519-4711
                                                                  Group When: Every Tuesday
                                                                  Torrance Memorial Medical Center 6:30-8:00 p.m.
                                                                  3330 Lomita Boulevard Fee: First session free
                                                                  Torrance, CA 90503 Following sessions $2 each
                                                                  Additional Information: On-going support group provides information, support and companionship to
                                                                  individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
                                                                  Floor, Room H.
                                                                  Caregiver’s Support Group Contact: 310-832-6031

                                                                  Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
                                                                  challenges and struggles. Listen to others as we support each other with common issues.
                                                                  Caregiver Resource Center Contact: 855-872-6060
                                                                  USC Family Care Givers Support Group
                                                                  http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
                                                                  Additional information: Free website resources with care planning, decision-making, timely articles and
                                                                  online access to a variety of medical and legal experts. Visit the website for more details on support
                                                                  groups, respite, work shops and classes.

                                                                   

                                                                  A lady fronm their senior services is supposed to get to back to me with some others.

                                                                  Hope this helps,

                                                                  Cheers,

                                                                  Charlie
                                                                   

                                                                  Charlie S
                                                                  Participant

                                                                    I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.

                                                                    Got these for starters:

                                                                    CAREGIVER SUPPORT GROUPS
                                                                    Advantage Program Caregiver Support Contact: 310-519-4711
                                                                    Group When: Every Tuesday
                                                                    Torrance Memorial Medical Center 6:30-8:00 p.m.
                                                                    3330 Lomita Boulevard Fee: First session free
                                                                    Torrance, CA 90503 Following sessions $2 each
                                                                    Additional Information: On-going support group provides information, support and companionship to
                                                                    individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
                                                                    Floor, Room H.
                                                                    Caregiver’s Support Group Contact: 310-832-6031

                                                                    Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
                                                                    challenges and struggles. Listen to others as we support each other with common issues.
                                                                    Caregiver Resource Center Contact: 855-872-6060
                                                                    USC Family Care Givers Support Group
                                                                    http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
                                                                    Additional information: Free website resources with care planning, decision-making, timely articles and
                                                                    online access to a variety of medical and legal experts. Visit the website for more details on support
                                                                    groups, respite, work shops and classes.

                                                                     

                                                                    A lady fronm their senior services is supposed to get to back to me with some others.

                                                                    Hope this helps,

                                                                    Cheers,

                                                                    Charlie
                                                                     

                                                                    snow white
                                                                    Participant

                                                                      Wow!  Thank you so much Charlie!!!!  I appreciate all of your time spent on this.  These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info.  Again, thank you so much, we appreciate it so much.

                                                                      xo Jen

                                                                      Bubbles
                                                                      Participant

                                                                        The 'S' in Charlie's name stands for SUPERman!!!  c

                                                                        snow white
                                                                        Participant

                                                                          I completely agree Celeste πŸ™‚

                                                                          snow white
                                                                          Participant

                                                                            I completely agree Celeste πŸ™‚

                                                                            snow white
                                                                            Participant

                                                                              I completely agree Celeste πŸ™‚

                                                                              Bubbles
                                                                              Participant

                                                                                The 'S' in Charlie's name stands for SUPERman!!!  c

                                                                                Bubbles
                                                                                Participant

                                                                                  The 'S' in Charlie's name stands for SUPERman!!!  c

                                                                                  snow white
                                                                                  Participant

                                                                                    Wow!  Thank you so much Charlie!!!!  I appreciate all of your time spent on this.  These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info.  Again, thank you so much, we appreciate it so much.

                                                                                    xo Jen

                                                                                    snow white
                                                                                    Participant

                                                                                      Wow!  Thank you so much Charlie!!!!  I appreciate all of your time spent on this.  These looks like they could be promising. I have been so overwhelmed with Dads latest development, I have taken the time to dig deeper for info.  Again, thank you so much, we appreciate it so much.

                                                                                      xo Jen

                                                                                      Charlie S
                                                                                      Participant

                                                                                        I gave a whistle to the City of Redondo Beach and spoke with some helpful folks.

                                                                                        Got these for starters:

                                                                                        CAREGIVER SUPPORT GROUPS
                                                                                        Advantage Program Caregiver Support Contact: 310-519-4711
                                                                                        Group When: Every Tuesday
                                                                                        Torrance Memorial Medical Center 6:30-8:00 p.m.
                                                                                        3330 Lomita Boulevard Fee: First session free
                                                                                        Torrance, CA 90503 Following sessions $2 each
                                                                                        Additional Information: On-going support group provides information, support and companionship to
                                                                                        individuals providing care for another. Group meets at Torrance Memorial Medical Center, West Tower, 5th
                                                                                        Floor, Room H.
                                                                                        Caregiver’s Support Group Contact: 310-832-6031

                                                                                        Do you provide care for a spouse, parent, or loved one? Caregiving gives joy and satisfaction, and presents
                                                                                        challenges and struggles. Listen to others as we support each other with common issues.
                                                                                        Caregiver Resource Center Contact: 855-872-6060
                                                                                        USC Family Care Givers Support Group
                                                                                        http://www.losangelescrc.org When: Mon – Fri, 8:30 a.m. – 5:00 p.m.
                                                                                        Additional information: Free website resources with care planning, decision-making, timely articles and
                                                                                        online access to a variety of medical and legal experts. Visit the website for more details on support
                                                                                        groups, respite, work shops and classes.

                                                                                         

                                                                                        A lady fronm their senior services is supposed to get to back to me with some others.

                                                                                        Hope this helps,

                                                                                        Cheers,

                                                                                        Charlie
                                                                                         

                                                                                        snow white
                                                                                        Participant

                                                                                          Thank you so much Charlie!!!!  I appreciate your reply. My Dad is 72 and Mom 70, we live in California, more specifically the Redondo Beach area.  I have been at a loss as to who to contact.  When I was going through my battle with Uterine cancer, my oncologist office was able to point me to support groups.  Thank you so much for you help.  I will look forward to your reply.

                                                                                          Jen

                                                                                        Charlie S
                                                                                        Participant

                                                                                          You are a good daughter to try and understand both the unique needs of your Mother and Father.

                                                                                          Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.

                                                                                          I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.

                                                                                          Most states have a Council on Aging or something similiar.  

                                                                                          Also……………do not think they are just for the dying……………..call Hospice.

                                                                                          This is just a first blush.  If you tell me which state you are in, and the age of your parents,  I will be happy to work up a resource list for you.

                                                                                          The internet is great, but there is a lot at your local fingertips.

                                                                                          My best to you and your family.

                                                                                          Cheers,

                                                                                          Charlie

                                                                                           

                                                                                           

                                                                                          Charlie S
                                                                                          Participant

                                                                                            You are a good daughter to try and understand both the unique needs of your Mother and Father.

                                                                                            Although MPIP and many online resources are available to help in certain degress; please do not forget local , in person resources………………….there are many.

                                                                                            I do not know what state you are in nor the age of your parents, but you would be surprised the level of support that abounds with not only governmental resources but many non-profits and foundations.

                                                                                            Most states have a Council on Aging or something similiar.  

                                                                                            Also……………do not think they are just for the dying……………..call Hospice.

                                                                                            This is just a first blush.  If you tell me which state you are in, and the age of your parents,  I will be happy to work up a resource list for you.

                                                                                            The internet is great, but there is a lot at your local fingertips.

                                                                                            My best to you and your family.

                                                                                            Cheers,

                                                                                            Charlie

                                                                                             

                                                                                             

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