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Still have the Uveitis
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Still have the Uveitis

› Forums › General Melanoma Community › Still have the Uveitis

  • Post
    • March 22, 2012 at 12:32 am
    yoopergirl
    Participant

      The eye doctor is still  going to continue the prednisone drops along with the dilating ones for 2 more weeks and he again said that I should not have the last treatment of ipi. The oncologist who first treated me with the ipi called today, actually his nurse did and they would like to follow my care along with Dr Mc Farland form UW Madison, she said that I did the right thing by going to a Melanoma specialist and that I can get into a clinical trial at Madison but not at their clinic.

      The eye doctor is still  going to continue the prednisone drops along with the dilating ones for 2 more weeks and he again said that I should not have the last treatment of ipi. The oncologist who first treated me with the ipi called today, actually his nurse did and they would like to follow my care along with Dr Mc Farland form UW Madison, she said that I did the right thing by going to a Melanoma specialist and that I can get into a clinical trial at Madison but not at their clinic. He is the head of research so I imagine he would like to follow my care, and I thought that was very good of him to do that and also said if I ever need anything done locally they would be happy to do that for me. So I guess I am covered in both places. Now just have to wait until the 26th for the MRI and car scan results, which I will have that same day.

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        • March 22, 2012 at 3:11 pm
        Maxximom
        Participant

          I am so sorry that you still have the Uveitis and can't continue your Ippy. I am very glad that you did go to Madison though..I know it is a long trip for you..but well worth it.Do you plan to do the clinical trial and exactly what is the trial they are speaking of?Details please..when you have them.I hope that all goes well with your scans on the 26..I will be thinking of you.Your Uveitis issues have made me more aware of my own eyes and I will have my Opthomologist check me very carefully when I see him on Wednesday.. he is a Glaucoma specialist.. but will do a extra check when I tell him that I was recently diagnosed with Metastatic Melanoma and have been on the Ippy and that some Ippy people have had Uveitis issues..he is a most compassionate doctor and one of the few I trust.

          Joan

          • March 22, 2012 at 3:11 pm
          Maxximom
          Participant

            I am so sorry that you still have the Uveitis and can't continue your Ippy. I am very glad that you did go to Madison though..I know it is a long trip for you..but well worth it.Do you plan to do the clinical trial and exactly what is the trial they are speaking of?Details please..when you have them.I hope that all goes well with your scans on the 26..I will be thinking of you.Your Uveitis issues have made me more aware of my own eyes and I will have my Opthomologist check me very carefully when I see him on Wednesday.. he is a Glaucoma specialist.. but will do a extra check when I tell him that I was recently diagnosed with Metastatic Melanoma and have been on the Ippy and that some Ippy people have had Uveitis issues..he is a most compassionate doctor and one of the few I trust.

            Joan

            • March 22, 2012 at 3:11 pm
            Maxximom
            Participant

              I am so sorry that you still have the Uveitis and can't continue your Ippy. I am very glad that you did go to Madison though..I know it is a long trip for you..but well worth it.Do you plan to do the clinical trial and exactly what is the trial they are speaking of?Details please..when you have them.I hope that all goes well with your scans on the 26..I will be thinking of you.Your Uveitis issues have made me more aware of my own eyes and I will have my Opthomologist check me very carefully when I see him on Wednesday.. he is a Glaucoma specialist.. but will do a extra check when I tell him that I was recently diagnosed with Metastatic Melanoma and have been on the Ippy and that some Ippy people have had Uveitis issues..he is a most compassionate doctor and one of the few I trust.

              Joan

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